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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


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    • NoGlutenCooties
      Thanks Scott.  That's why I was hoping for a recommendation of a place known to be safe.  Jenny  
    • jeriM
      Thank you so much.  It helps just knowing there is a connection and it's not my imagination.    I am seeking help from a nutritionist and will talk to my PC about inflammation marker testing - thank you.  During one flare I went to see an ophthalmologist because my symptoms were so severe.  He didn't draw any connection but just said that my eyes were extremely dry and recommended drops, which I use.  However, when a flare develops, the drops are only marginally effective.   I think I've eliminated one source of contamination.  We had 20 chickens until less than a month ago, when we sold that property.   Although I scrubbed after feeding and taking care of the chickens, the feed is mostly wheat and I'm sure I had to be inhaling wheat 'dust' every day.   I'm feeling like there will be improvement.   Thank you so much for your reply, the help and suggestions. 
    • Zuma888
      Thank you so much for your response! Does this mean that each of my parents on their own may not have HLA-DQ8 but combined together gave me HLA-DQ8?
    • Scott Adams
      Any chance you are getting traces of gluten in your diet? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Your interpretation is on the right track! Based on your results, you do have one of the genetic markers associated with celiac risk—HLA-DQ8—which means you inherited DQA1*03 from one parent and DQB1*0302 from the other. These two alleles together form the HLA-DQ8 haplotype, so having both confirms the DQ8 positivity (not just one alone). Since you’re DQ2-negative but DQ8-positive, this still means you have a genetic predisposition to celiac (though not everyone with DQ8 develops it). If you’re experiencing symptoms, the next step would be discussing antibody testing (like tTG-IgA) or an endoscopy with your doctor, but I think you decided not to do the gluten challenge and just go gluten-free.
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