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Coping with Celiac Disease
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Recent Activity
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- NoGlutenCooties replied to NoGlutenCooties's topic in Gluten-Free Restaurants2gluten-free in Wilmington, DE
Thanks Scott. That's why I was hoping for a recommendation of a place known to be safe. Jenny -
- jeriM replied to jeriM's topic in Related Issues & Disorders2Can Celiac flares affect my eyes?
Thank you so much. It helps just knowing there is a connection and it's not my imagination. I am seeking help from a nutritionist and will talk to my PC about inflammation marker testing - thank you. During one flare I went to see an ophthalmologist because my symptoms were so severe. He didn't draw any connection but just said that my eyes were extremely... -
- Zuma888 replied to Zuma888's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2How to interpret my genetic test results
Thank you so much for your response! Does this mean that each of my parents on their own may not have HLA-DQ8 but combined together gave me HLA-DQ8? -
- Scott Adams replied to Vickey Matteson's topic in Related Issues & Disorders2Upset stomach
Any chance you are getting traces of gluten in your diet? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
- Scott Adams replied to Zuma888's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
How to interpret my genetic test results
Your interpretation is on the right track! Based on your results, you do have one of the genetic markers associated with celiac risk—HLA-DQ8—which means you inherited DQA1*03 from one parent and DQB1*0302 from the other. These two alleles together form the HLA-DQ8 haplotype, so having both confirms the DQ8 positivity (not just one alone). Since you’re ...- 1
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By NoGlutenCooties · Posted
Thanks Scott. That's why I was hoping for a recommendation of a place known to be safe. Jenny -
Thank you so much. It helps just knowing there is a connection and it's not my imagination. I am seeking help from a nutritionist and will talk to my PC about inflammation marker testing - thank you. During one flare I went to see an ophthalmologist because my symptoms were so severe. He didn't draw any connection but just said that my eyes were extremely dry and recommended drops, which I use. However, when a flare develops, the drops are only marginally effective. I think I've eliminated one source of contamination. We had 20 chickens until less than a month ago, when we sold that property. Although I scrubbed after feeding and taking care of the chickens, the feed is mostly wheat and I'm sure I had to be inhaling wheat 'dust' every day. I'm feeling like there will be improvement. Thank you so much for your reply, the help and suggestions.
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Thank you so much for your response! Does this mean that each of my parents on their own may not have HLA-DQ8 but combined together gave me HLA-DQ8?
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By Scott Adams · Posted
Any chance you are getting traces of gluten in your diet? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
By Scott Adams · Posted
Your interpretation is on the right track! Based on your results, you do have one of the genetic markers associated with celiac risk—HLA-DQ8—which means you inherited DQA1*03 from one parent and DQB1*0302 from the other. These two alleles together form the HLA-DQ8 haplotype, so having both confirms the DQ8 positivity (not just one alone). Since you’re DQ2-negative but DQ8-positive, this still means you have a genetic predisposition to celiac (though not everyone with DQ8 develops it). If you’re experiencing symptoms, the next step would be discussing antibody testing (like tTG-IgA) or an endoscopy with your doctor, but I think you decided not to do the gluten challenge and just go gluten-free.
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