Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tests Results I'm Confused

Tigerpawtoo

Recommended Posts

Tigerpawtoo Newbie
Tigerpawtoo
Posted

I've been suffering various symptoms over the last three years. Tested slight RA positive, have Reynaud's - but tests for Sjogrens and Lupus negative. I'm frustrated the Dr's can't find the cause. My recent search led me to Celiac. I've been ordering my own blood work hoping for answers, but now that I have my results back I'm confused.

 

All negative but a slight low immunoglobin A Qn. Spent hours researching this, so far it seems I may need additional tests to rule out Celiac's disease? One site said AGA and EMA are required when you have a low immuniglobulin - I think these were done with my blood panel but I'm not sure.

 

Also another site said that if you do have a low immunoglobulin A Qn other antibodies testing for autoimmune disease may show a false negative. Does this mean I could still have Lupus or Sjogrens but test negative????

 

Should I be concerned and what other test would I need if any?????  It's been so long and I'm so frustrated having no answer, appreciate any help or direction.

 

Test results:

Deamidated Gliadin Abs, IgA          3       (negative 0-19)

Deamidated Gliadin Abs, IgG          2       (negative 0-19)

 

t-Transglutaminase (tTG) IgA         <2      (negative 0-3)

t-Transglutaminase (tTG) IgG         <2      (negative 0-5)

 

Endonysial Antibody IgA               negative

 

Immunoglobulin A, Qn, Serum     flagged as low - 90    (negative 91-414)

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

When your Immunoglobulin A, Qn, Serum is out of range, they usually run the IgG versions of the tests instead of the IgA.  In your case you have had both the DGP and the tTG IgG run already.  You would need the AGA IgG and the EMA IgG run.

 

I do not know how low total IgA would affect testing for other autoimmune diseases.  Interesting that you have a weak positive for RA.  Mine was completely negative.

 

Welcome to the board, and keep asking questions and pushing :)   It's the only way we get anywhere.

nvsmom Community Regular
nvsmom
Posted

...Everything Mushroom said.  :)

 

Beaware that you could have no-celiac gluten intolerance (NCGI) for which there are no blood tests at this time even though it is many many times more common. Celiac is starting to be considered just one end of the gluten intolerance spectrum; NCGI is just another way that gluten can have a bad effect on people's health.

 

Good luck.

Tigerpawtoo Newbie
Tigerpawtoo
Posted
  • Author

When your Immunoglobulin A, Qn, Serum is out of range, they usually run the IgG versions of the tests instead of the IgA.  In your case you have had both the DGP and the tTG IgG run already.  You would need the AGA IgG and the EMA IgG run.

 

I do not know how low total IgA would affect testing for other autoimmune diseases.  Interesting that you have a weak positive for RA.  Mine was completely negative.

 

Welcome to the board, and keep asking questions and pushing :)   It's the only way we get anywhere.

Thank you so much, hopefully i can find these tests online - do they have other names they may go by? I have a hard time matching up the right tests.

I also tested high for thyroid peridoxidase (sp) but all other thyroid tests normal. I tested ANA positive two weeks ago, but then ran the ANA IFA test for the titer and it was negative. I'm seeing a new rheumatologist, but so far she's not doing any testing, just relying on all the negative tests that were run last year. I have no idea what direction she's taking next. I have a lot of shoulder pain and numbness/weakness so she did an MRI to rule out any neck issues. But I haven't heard back and there is no way this could be causing all my other bizarre symptoms.

 

I'm also seeing a lyme specilaist next month but it has taken 5 months for this appointment. I  lost my job as I have so many horrible days - after three years I'm so desperate for answers to get my life back. Curious can celiac disease or intolerance cause you to be stuck on the couch for a day or two feeling so weak you can't get up?

Thank you so very much for you reply.

Tigerpawtoo Newbie
Tigerpawtoo
Posted
  • Author

...Everything Mushroom said.  :)

 

Beaware that you could have no-celiac gluten intolerance (NCGI) for which there are no blood tests at this time even though it is many many times more common. Celiac is starting to be considered just one end of the gluten intolerance spectrum; NCGI is just another way that gluten can have a bad effect on people's health.

 

Good luck.

thank you so much, I'm seeing a lyme specialist in a month I think after that I may do  trial gluten free diet, I have nothing else left to try - I think i've tested my blood for everything I can come up with, lol.

mushroom Proficient
mushroom
Posted

Thank you so much, hopefully i can find these tests online - do they have other names they may go by? I have a hard time matching up the right tests.

The AGA stands for Anti-Gliadin Antibodies and the EMA stands for Endomysial Antibodies.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748
    Stacy W
    Newest Member
    Stacy W
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.