Hla-Dq Testing

[shorebird]

This may seem like a silly question, but I was wondering if I had genetic testing done for DQ2 and DQ8 if it would be affected by being gluten-free for 5 years? 

[kareng]

No. Your genes are always the same.

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[GottaSki]

Your genes come from your parents -- it is possible to have a pair of any gene if your parents happen to pass a copy of the same gene to you.

 

Gene testing can be done from birth - it cannot diagnose Celiac Disease on it's own -- yet can be an important part of the puzzle when diagnosis is difficult.

[shorebird]

Ok, lol thanks that's what I figured. I felt stupid for asking but just wanted to make sure. #brainfart

[mommida]

No.  Don't feel bad at all.  Doctors should have explained testing, test results, and what it takes to diagnose.

[GottaSki]

Ok, lol thanks that's what I figured. I felt stupid for asking but just wanted to make sure. #brainfart

 

 

Mommida is spot on -- no dumb questions when it comes to understanding this process -- one day all our doctors will understand these tests as well as their patients

[shorebird]

Thank you.  I don't feel as bad now asking. I've been trying to figure out what testing I should get done through Entero Labs since my symptoms are returning after years of being gluten-free. Anyone used them before? When I was dx'd with celiac disease, I only had an endoscopy/biopsies that showed patches of flattened villi in my small intestine. The GI doctor for whatever reason never did any blood tests or stool samples. I'm assuming he was right saying it's celiac disease because of the biopsy results and positive response to being gluten-free (up until now). But now that I'm getting sick again I got curious about the testing I could have done (HLA-DQ, IgA, other food sensitivities, etc.) I'm hoping it might clue me in.

[Takala]

More likely you have either developed an additional intolerance to something like gluten-free oats (this got me about 8 years into my diet change, it took another year to figure it out, only because I was fortunate in that a local gluten-free health food store owner told me to think of that option, after I told her which products seemed to be setting me off).  Or soy.  Or you could be getting cross contaminated by some of the processed products you are using on yourself, on a pet, etc.  It could be medications, over the counter or prescription.... you really have to be a sleuth detective to figure this out, sometimes.

 

I had a terrific bout of breaking out in a rash this winter after cheerfully munching down 2 new, tasty items over the holidays, so, when I get a time frame when I feel like testing out which one it really is, that won't ruin my week, I will add one back in and see what happens.  Then, the other, but not together.  The odd part about that was that I didn't get the other reactions, so I'm not quite sure, but consistently my skin lets me know when I have screwed up, sometimes even before the neuro symptoms start.   

[shorebird]

More likely you have either developed an additional intolerance to something like gluten-free oats (this got me about 8 years into my diet change, it took another year to figure it out, only because I was fortunate in that a local gluten-free health food store owner told me to think of that option, after I told her which products seemed to be setting me off).  Or soy.  Or you could be getting cross contaminated by some of the processed products you are using on yourself, on a pet, etc.  It could be medications, over the counter or prescription.... you really have to be a sleuth detective to figure this out, sometimes.

 

I had a terrific bout of breaking out in a rash this winter after cheerfully munching down 2 new, tasty items over the holidays, so, when I get a time frame when I feel like testing out which one it really is, that won't ruin my week, I will add one back in and see what happens.  Then, the other, but not together.  The odd part about that was that I didn't get the other reactions, so I'm not quite sure, but consistently my skin lets me know when I have screwed up, sometimes even before the neuro symptoms start.   

I've been thinking it might be the gluten-free oats since I started eating them for breakfast. It's been almost a week since I've had any but my symptoms haven't gone away yet. Yesterday I ate some corn tortilla chips (same ones I've always eaten) and I felt awful afterward. I had bad pain under my ribs in my back and stomach cramps. I'm thinking I could also be reacting to corn as well. The problem is I have no idea how long I need to eliminate these foods from my diet before my symptoms will disappear. When I went gluten-free it took a few months after 10+ years of being sick before feeling normal again. I'm hoping my food diary will help me figure things out.