Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seen A Gi


Danijela

Recommended Posts

Danijela Contributor

Hey everyone!

I went to see a GI guy yesterday I told him my symptoms. He really didn't seem interested in anything besides the gas, bloating, constipation, and swollen stomach. When I went into the symptoms of brain fogg, lock of balance, fatigue, dizzyness and so on he stopped writting them down and wasn't even looking at me. I'm pretty sure he doen't see a connection.

He has only been practicing for a few years now, I was hoping being fresh out of school would make him more knowledgable, but I just don't know???

He listened to my stomach and pushed on it and said there is definitly something going on..... I made a point of asking him if he knew what was causing my hunger and anxiety and he said there is a syndrome that he wasn't sure i'd heard of called irritable bowel syndrome that could definitly cause nervousness.... it took everything in me not to laugh cause some how I knew that was coming....

I asked him about malabsorbtion because of the attacks he said because I have a few extra pounds on that wasn't likley....

I told him by definition I am having hypoglycemic attacks but my sugars are in normal range i explained that this happens every 3-5 hours (thats the only way to explain whats happening)

He said he knew what i was talking about and that was just the body saying its really hungry ????

anyways he ordered a barium enema ?

If I do have celiac disease will he find out through this test?

its taking place next week.

I don't know too much about it all I know is i've been feeling like crap since I was 15 and its gotten much worse over this last year and I just want some answers....

thanks for listening


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



judy05 Apprentice
Hey everyone!

I went to see a GI guy yesterday I told him my symptoms. He really didn't seem interested in anything besides the gas, bloating, constipation, and swollen stomach. When I went into the symptoms of brain fogg, lock of balance, fatigue, dizzyness and so on he stopped writting them down and wasn't even looking at me. I'm pretty sure he doen't see a connection.

He has only been practicing for a few years now, I was hoping being fresh out of school would make him more knowledgable, but I just don't know???

He listened to my stomach and pushed on it and said there is definitly something going on..... I made a point of asking him if he knew what was causing my hunger and anxiety and he said there is a syndrome that he wasn't sure i'd heard of called irritable bowel syndrome that could definitly cause nervousness.... it took everything in me not to laugh cause some how I knew that was coming....

I asked him about malabsorbtion because of the  attacks he said because I have a few extra pounds on that wasn't likley....

I told him by definition I am having hypoglycemic attacks but my sugars are in normal range i explained that this happens every 3-5 hours (thats the only way to explain whats happening)

He said he knew what i was talking about and that was just the body saying its really hungry ????

anyways he ordered a barium enema ?

If I do have celiac disease will he find out through this test?

its taking place next week.

I don't know too much about it all I know is i've been feeling like crap since I was 15 and its gotten much worse over this last year and I just want some answers....

thanks for listening

<{POST_SNAPBACK}>

I can tell you he will not find celiac disease by doing a barium enema. You need to insist on an Endoscopy(upper scope) and have a biopsy done. Be proactive and insist on it. He is probably looking for diverticulitis on the barium enema. I have some of that too. Before I went gluten-free my blood sugars were all over the place, I almost passed out in Eckerds. IBS, if it really exists can cause the bloating and pain because you have a lot of air in your abdomen. However celiac disease imitates a lot of the symptoms and they just don't get it! Your neurological symptoms sound like you have it also, The brain fog and eye problems which I had didn't go away completely until I gave up casein (protein in dairy). Hope this helps!

ravenwoodglass Mentor
Hey everyone!

I went to see a GI guy yesterday I told him my symptoms. He really didn't seem interested in anything besides the gas, bloating, constipation, and swollen stomach. When I went into the symptoms of brain fogg, lock of balance, fatigue, dizzyness and so on he stopped writting them down and wasn't even looking at me. I'm pretty sure he doen't see a connection.

He has only been practicing for a few years now, I was hoping being fresh out of school would make him more knowledgable, but I just don't know???

He listened to my stomach and pushed on it and said there is definitly something going on..... I made a point of asking him if he knew what was causing my hunger and anxiety and he said there is a syndrome that he wasn't sure i'd heard of called irritable bowel syndrome that could definitly cause nervousness.... it took everything in me not to laugh cause some how I knew that was coming....

I asked him about malabsorbtion because of the  attacks he said because I have a few extra pounds on that wasn't likley....

I told him by definition I am having hypoglycemic attacks but my sugars are in normal range i explained that this happens every 3-5 hours (thats the only way to explain whats happening)

He said he knew what i was talking about and that was just the body saying its really hungry ????

anyways he ordered a barium enema ?

If I do have celiac disease will he find out through this test?

its taking place next week.

I don't know too much about it all I know is i've been feeling like crap since I was 15 and its gotten much worse over this last year and I just want some answers....

thanks for listening

<{POST_SNAPBACK}>

If you are able to try to see an allergist. Or before your appointment print out evrything you can find on celiac, gut and brain symptoms and tell him you want to look for this before he does other testing. Maybe you can educate the guy.

KaitiUSA Enthusiast

This this guy is new he may be more open to learning than others. Try to educate him and push for celiac tests even if he does not think it is celiac.

Also, the test he ordered will not show for celiac.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.