Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About ''traces Of Wheat'' Etc


CHiLLEN

Recommended Posts

CHiLLEN Newbie

Hi everyone,

 

I have recently started cutting gluten out of my diet completely, in a bid to start feeling better as I have a Arachnoid Cyst on the brain. 

 

My cyst is not life threatening but life changing.. I had done research on alternative options to feeling better and gluten free was one of them, which I'm going to follow for the rest of my life if I get any kind of improvement.

 

Now for the question :) as I don't have an allergy to gluten, would products listed as ''May contain traces of wheat'' for example, effect my chances of hopefully having a positive effect on my body?

 

Thank you for taking your time to read my question, I really appreciate it.

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Not if you are not gluten intolerant or celiac, it shouldn't.  For those of us who are very sensitive, we get more sensitive over time to trace contamination, and sometimes this matters a lot, depending on how the manufacturing or packing facility handles the ingredients, do they have a dedicated, gluten free line, or do they run gluten or wheat products on the same lines, then wash them down afterwards ?  I've reacted to some processed foods that are listed on the label as "gluten free" :angry:  but at the same time I've sometimes switched brands to one with no gluten free labeling, but no gluten ingredients AND good manufacturing processes and dedicated lines, plus the warning says "may be processed in a facility that has traces of _______" (with no gluten listed)  and had a successful outcome.   These researchers who say the 20 ppm (that's 20 parts per million) is the amount of gluten cross contamination a regular celiac/gluten intolerant can take before showing symptoms, are dealing with what they believe to be the statistical averages, not the high and low ends of what really happens.  Compare this to my spouse, who eats gluten free at home....  it doesn't matter the least to him, and he can switch back and forth from a "safe" menu for me, to a regular meal out.  He just needs a bit more carbohydrate than I do, because we are different in how we process it. 

 

Surprises in the brain, been there, done that, got the T- shirt....  you're in uncharted territory, but I hope it works out for you, whatever happens. 

CHiLLEN Newbie

Thank you Takala :)

flowerqueen Community Regular

Takala gave a good answer to your question and there's not much I can add to that, other than to say it has to be your choice.  Personally, if you feel that you would improve the quality of your life by cutting out all gluten and wheat, I would also remove foods which say 'may contain traces of wheat/gluten' then you have removed all reasonable doubt that you are helping your condition as much as humanly possible.  Good luck with the diet and I hope it works for you, whatever you decide.

cavernio Enthusiast

Yes they might impede improvement. Of note is that 'traces of x' isn't a mandatory statement. Barley, oats, or rye aren't even mandatory labelling for ingredients. Oats may or may  not affect you, and there can be gluten free oat products.

 

I'm just not sure how much you'll feel better on a gluten free if aren't a celiac or gluten intolerant.

Pegleg84 Collaborator

Welcome to the forum, Chillen

 

Have you been tested for Celiac? If not, you might want to get blood tests done now before you go gluten-free, just to check. Either way, anything that will help you is worth trying. If you're not Celiac/gluten intolerant, then you shouldn't react as strongly to trace amounts. However, if after a while (several months to a year) gluten free you're feeling better but not quite there, then cutting out all traces might help.

CHiLLEN Newbie

Thank you all for the information, very helpful :)

 

I think it might be best if I just avoid anything with ''May contain X'', as I don't really struggle eating Gluten free as it is. 

 

I have not been tested for celiac. I should get tested just in case, 

 

I'm willing to try anything now days to feel even a tad better. On research on Arachnoid cysts, some sufferers have coped a lot better since turning Gluten Free as it's supposed to cut down the  inflammation  on the brain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.