Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Palmoplanter Pustular Psoriasis?


jhol

Recommended Posts

jhol Enthusiast

hi everyone,
 
i have had a rash on the palms of my hands for at least 15 years - doctors just threw steroid creams at it. so i googled rash on palms and this is what it came up with.
small yellow blisters that dried up leaving the skin on top all thick and dry that eventually flaked off. for years now ive picked at it constantly, even tried filing it down with an emery board to keep it smooth.it looks awfull and my palms are always red and sore.
it has cleared up somewhat on the gluten and dairy free diet (at one point it had virtually disappeared- thought it was the dairy) but its still lingering.  
so as i said i already knew what it was but just googled it again and this time its said its linked to auto immune diseases like celiac!!!!. maybe i googled it before my doctor went down the whole celiac route coz i dont remember the connection or maybe i was just didnt  put 2 and 2 together!!! 
 
if thats right im soooo pissed off. if all this information is available on the net then why dont doctors know about it!!!
so thats palmoplantor pustular psoriasis, and scleritis - something the doctors didnt explain to me what it was !!! both auto immune diseases but all my results came back negative so havent even been diagnosed with celiac.

 

im just sooo mad at the moment. if this could have been sorted out 15 years ago!!!!

has anyone else had it / got it. is it connected to celiac. do i need to go back to docs to explain the connection!! ive been off gluten for 8 weeks now- havent tried a gluten trial yet so dont know how i,ll react if i have to go back on it.  im just so mad at the moment

. this is me right now lol  :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I've got it. It's on my feet too. When I went gluten-free it started to clear up. Now I get it back if I eat corn or foods high in salicylates (almonds, most fruits, all berries, and some vegetables). If I am really careful with my diet it goes away completely. Right now my hands are completely healed but I still have some on my feet from the last time I got glutened/corned.

 

It was when my PPP got so bad that it hurt to play my guitar and it hurt to walk that I looked it up and discovered that it was likely celiac that was causing it. My Mom had plaque psoriasis that cleared up completely when she was dignosed with celiac and went gluten-free. This was back in the eighties and doctors knew even less than they do now. They all thought it was just a coincidence. When I saw on the internet that they were indeed connected, I went gluten-free. (I never got tested because I have no insurance but the results coupled with the genetic factor prove to me that I do have celiac.)

 

You may have further intolerances too, or you may just need to give it more time. I noticed an improvement within days but it was months before it completely cleared up. If you decide to get tested, print out some of the articles from reputable sources (like the Mayo clinic) and show your doctor. Or you could just do as I did - stick to the gluten-free diet, keep a food diary and pay attention to your psoriasis. If you get new pustules, go back and see what you ate that was different. For me, it takes eight to twelve hours for new pustules to show up. That makes it easy - it's always something I ate the day before.

jhol Enthusiast

hi bartfull,

 

thanks for answering. im just trying to sort out some other intolerences - nightshades . got a rash on face also which seems to flare up with peppers and potato,s seem to make my joint pains worse. struggling at moment coz potato is in all gluten free products. i did rely on the gluten-free pittas when i was desperate for bread. and ive never been a lover of fruit- it makes my mouth feel odd.

really hope corn isnt a problem i eat it all the time.

i,ll look up the salicylates , and i never thought of checking the blisters and whether they were related to foods id eaten.

thanks..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.