Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tummy Ache After Quinoa - Other Non-Grain Subs?


archaeo in FL

Recommended Posts

archaeo in FL Apprentice

After a little searching online, I'm finding that I'm not alone in loving quinoa but not how it makes me feel. I know it is a safe grain, and my reactions aren't like my Celiac reactions (Celiac involves alternating d and c, severe fatigue, brain fog; after quinoa, it's stomach and upper GI pain, pretty acid feeling, and I almost never get an acid stomach).

 

It appears that some folks simply don't do well with this item, whether it is cleaned or not. (Quinoa has to be cleaned to remove saponin, a natural compound produced by the plant apparently for protection - it is supposed to be washed away via a thorough rinsing of the quinoa before cooking.)

 

Anyone else have bad reactions to quinoa?

 

What other non-grains or safe grains do you use as you would quinoa, couscous, barley, etc.?

 

(For those who don't have any reactions, it's great! Do be aware that it has become a little controversial, though, not for its healthiness but for the impact it rapidly growing popularity has had on the places and communities that grow it.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Buckwheat groats?

SensitiveMe Rookie

Organic roasted buckwheat groats (also known as Kasha). My box here is by a company called Pocono. There are instructions on the back of the box with basic directions and a recipe for Kasha Pilaf. And it also says Kasha can be added to soups, casseroles, stuffings, and other recipes.

 

I also love quinoa but mostly for now I just eat the quinoa flakes as a hot cereal. They are supposed to be easily digestible and don't need to be rinsed. I add maple syrup to it and usually have it once a day. And I will just be heartbroken if I ever react to it as it is one of the few things I can tolerate not being able to have wheat, oats, corn, soy and lactose. My daughter tried to tell me a few times about some people having reactions to it because I mentioned to her that it is my superfood. Then she said there is no such thing as a superfood and I said I pity the fool who tries to take my quinoa away. So she doesn't mention anything to me about quinoa anymore. :)

 

I did try quinoa flour making the recipe on the box for banana quinoa muffins but I didn't care for them as they seemed to have a dry and almost burnt quality to them. And then I did try adding quinoa flour to my glutenfree bread recipe and I found the same almost burnt quality about it. So as far as that goes I am not that impressed by using the flour.

archaeo in FL Apprentice

SensitiveMe and JNBunnie1, thanks for the response! I have a taste issue with buckwheat - it tastes like plastic to me. I've heard other people say some people think it tastes soapy, but I think maybe my palate is funny (I also don't like cilantro, which some people think tastes like soap, but just triggers my gag reflex - yuck!). I've hard the untoasted buckwheat groats have a less strong taste, but I've only tried them once and that recipe wasn't a winner.

 

I'm so glad you can continue to eat quinoa - it certainly seems well known as a "superfood" and I don't think there's any harm in using the term, especially when it describes a food that is delicious, easy, and nutritious!

 

Apparently I may do ok if I cut it out of my diet and slowly reintroduce it again (but I'll be sure to rinse it, in case that's what got me before), and I do periodically have some gluten-free cereal with quinoa and lots of other grain alternatives in it.

 

Also, I don't have the recipe, but a friend mentioned that she'd made gluten-free cupcakes with cooked quinoa that turned out really really well - might be worth a search!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,664
    • Most Online (within 30 mins)
      7,748

    Lkscot0uky
    Newest Member
    Lkscot0uky
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.