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Quercetin Has Helped Me A Great Deal


Carybear

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Carybear Rookie

hi. I am Dx Celiac and of course am/was allergic to the Big five.
I was reacting to everything and the worst symptom was the DH. I hate it so much! It is so painful, so gross looking as it makes me feel grubby and dirty.

 

I stumbled across an article on Cromyln (which most here already know about, and Mast cell disorders) I know my stupid Doctor would never RX that for me, he would tell me my disease is "not bad enough" No, it just means he wouldn't make any money writing me that RX. Canadian medicine.

I digress...

With deeper searching I found out about quercetin. I've tried 100's of supplements and thought there was really no harm in trying. So I ordered some and I have been taking it for about 3 weeks.

The first couple of weeks I got a DH flare up that was pretty bad. My DH affects my fingernails as well...more accurately my left pinkie. The nail will literally come off. I thought it was nail psoriasis  but my dermatologist told me it was DH blisters in the nail bed.

With this last flare my nail split and nearly all came off.

Then something amazing happened.
The nail has started growing back normally!  
I have NO DH blisters and I have been eating egg whites, tomatoes and feta cheese!!! 
THIS could be it! I know I am truly allergic to wheat but my insides were so messed up I couldn't digest anything. Quercetin, along with Bone Broth and L-Glutamine may finally  be repairing my small intestine.
I will keep youse posted if you're interested!


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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