Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidentally Eating Gluten For Over 3 Months


BeccaMeadows

Recommended Posts

BeccaMeadows Newbie

I unfortunately found out that one of the products I was using everyday for about 3 months had gluten in it.  I do not know if the recipee changed, or if I hadn't noticed it before, but it wasn't until 3 days ago I figured out the culprit to a slew of symptoms. 

 

I was wondering if anyone has gotten contaminated for this long of a period and how long it took for them to recover. 

 

For about the same amount of time I have been feeling all the usual symptoms of eating gluten:

-headaches

-unbearable exhaustion

-dizziness

-hard time focusing

-"head fogginess"

-stomach issues (constipation)

 

About a week ago I think my system just had enough and I couldn't get through a 10 hour day, and all my symptoms got worse.  I thought it was due to me being in college and being stressed, not to mention I've been too stressed to even really pay attention to my body. 

 

If anyone could offer me any advice, it would be much appreciated.  I have exams coming this week and honestly have no idea how I'm going to get through it feeling this ill. 

 

Thank you so much. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I unfortunately found out that one of the products I was using everyday for about 3 months had gluten in it. I do not know if the recipee changed, or if I hadn't noticed it before, but it wasn't until 3 days ago I figured out the culprit to a slew of symptoms.

I was wondering if anyone has gotten contaminated for this long of a period and how long it took for them to recover.

For about the same amount of time I have been feeling all the usual symptoms of eating gluten:

-headaches

-unbearable exhaustion

-dizziness

-hard time focusing

-"head fogginess"

-stomach issues (constipation)

About a week ago I think my system just had enough and I couldn't get through a 10 hour day, and all my symptoms got worse. I thought it was due to me being in college and being stressed, not to mention I've been too stressed to even really pay attention to my body.

If anyone could offer me any advice, it would be much appreciated. I have exams coming this week and honestly have no idea how I'm going to get through it feeling this ill.

Thank you so much.

Oh my goodness.

I'd say do whatever has traditionally made you feel better. Try to sleep on whatever schedule works - plus a power nap each day?

Eat unprocessed food (cook a chicken and pick off if it all week) and take digestive enzymes with each meal. They help me.

Drink lots of water and whatever else makes you feel better.

Just play it smart, conservative, and safe this week and sleep as much as you can.

Good luck!

alliesees Newbie

I unfortunately found out that one of the products I was using everyday for about 3 months had gluten in it.  I do not know if the recipee changed, or if I hadn't noticed it before, but it wasn't until 3 days ago I figured out the culprit to a slew of symptoms. 

 

I was wondering if anyone has gotten contaminated for this long of a period and how long it took for them to recover. 

 

For about the same amount of time I have been feeling all the usual symptoms of eating gluten:

-headaches

-unbearable exhaustion

-dizziness

-hard time focusing

-"head fogginess"

-stomach issues (constipation)

 

About a week ago I think my system just had enough and I couldn't get through a 10 hour day, and all my symptoms got worse.  I thought it was due to me being in college and being stressed, not to mention I've been too stressed to even really pay attention to my body. 

 

If anyone could offer me any advice, it would be much appreciated.  I have exams coming this week and honestly have no idea how I'm going to get through it feeling this ill. 

 

Thank you so much. 

Yes, I too had this same situation.  The salad dressing I used added a gluten ingredient and I didn't notice it until one night when my husband commented.  I too had similar symptoms (which are always my gluten contamination symptoms).  I think I just stopped noticing them because after such a long time period they seemed almost normal again.

 

First, be grateful that you now know why you've been feeling poorly.  Then, as the previous response recommends, eat clean and ultra conscious for at least 72 hours.  Also, know that this happens, we are always trying our best but abstaining from gluten is an ongoing mine field.  In time, you'll recognize those symptoms quicker and quicker and "go to town" trying to uncover the culprit food.  

nvsmom Community Regular

I was eating McCains extra spicy extra crispy fries on and off for two months and gradually feeling worse and worse, and I couldn't figure out why.  I THOUGHT I had checked all labels but apparently not.  I wasn't getting severe stomach pain but it was enough to know I was doing something wrong - I was even looking into other food intolerances... I even gave up coffee (gasp) while trying to figure it out.  I don't know why they add wheat starch to fries... :rolleyes:

 

I figured it out almost a month ago, and I am getting back to normal. I am still having more migraine, fatigue and stomach pains than I was before Xmas but it is slowly improving. Hang in there, it could take a while.

  • 4 weeks later...
BeccaMeadows Newbie

Thank you so much for all your support!

 

As an update I realized that I was feeling so horrid because of my suppressed immune system and I got recurrent mono, which I am still battling. 

 

I sure am happy to have at least found the culprit and have been using your suggestions with great success. 

 

May this never happen again to any of us. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    VanessaC
    Newest Member
    VanessaC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.