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Dh Or Whatever It Is Driving Me Crazy...so Is My Mother!

SeekingSarah

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SeekingSarah Apprentice
SeekingSarah
Posted

A few places are healing and bam 2 new blisters appear around my mouth, I have 4 areas total on my scalp and each have new painful bumps, back of neck and forehead so my entire head is pounding. I called the derm office today to get an appointment and I get voicemail, and they actually never called back from the last time I called, when I had a persistent external yeast infection in January...hmmm gluten issue too? Idk a mega dose of diflucan resolved it and I removed possible other irritant.

 

Anyway my mother is like...well you know Androgel (which BF is on) can cause this...um yeah he just went back on it beginning of March, I've had skin issue for YEARS...so then she starts with the maybe try this, what about that, did they ever give you an antibiotic for it? ARE YOU USING DIAL SOAP? YOU NEED TO USE GOLD DIAL!!! Ugh...no Mom not currently using Dial, but did for the months I lived with her...last May-Oct and guess what I still had this stuff going on...again I had just brushed it off to something I had to live with...just "bad skin"...but not so bad that I ever considered going to a dermatologist before... next appt with GI is April 29th. Will see what he says about the blood results...still don't have actual readable copy of results because I'd have to go in person and show ID to get the results they scanned in and I can't read or print..and it's 45 min away.

 

Also two months now with no period, neg blood preg test, didn't think so but while I was at NP I had her check just to make sure...missed December too... I feel like several symptoms have hit harder since the Fall and I never had the thought of Celiac until March so it's not all in my head or stress making it worse....my friend says just screw the docs and go Gluten free and see if it helps...but I want to get a dx if possible and do not want to go off then back on.

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nvsmom Community Regular
nvsmom
Posted

(hugs) Hope you feel better soon.

Takala Enthusiast
Takala
Posted

I'm allergic to those antibacterial soaps, I hate when I have to use them in public restrooms and have to try to rinse all the residue off,  and was a horrible mess in my job with skin breaking out decades ago when I had to use that Dial soap at work, constantly.  :angry:  That and people treating antibacterial gel as if it would remove actual dirt or gluten.... :wacko:  

SeekingSarah Apprentice
SeekingSarah
Posted
  • Author

She's a nurse...while she doesn't dismiss my gluten theory I think she's just trying to be helpful with the rash but I try to explain its a reaction not a fungus or infection.

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    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
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