Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Has Done The "gluten Challenge" Before Being Tested?

taynichaf

Recommended Posts

taynichaf Contributor
taynichaf
Posted

I did one, but only for a week before my blood tests. I was in such pain the day I went to the doctors, but my tests were negative. Since he only tested like two things im going to a different doctor, but this time I want to make sure to gluten myself right, for accurate test results.

 

So who has done the challenge?? How long were you gluten free before the challenge? How long did you do the challenge? And what were your test results? (blood,endoscopy, anything else)

 

**I know I am gluten intolerant, but I want to make sure I can totally rule out celiac before I go gluten free for the rest of my life. And I like to know exactly what would be going on inside my body if I got glutened... if that makes sense...

 

 

Thank you everyone!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


taynichaf Contributor
taynichaf
Posted
  • Author

BTW, I'm seeing a doctor on monday, but I plan on just talking about my symptoms. I want to do the challenge for at least 6 weeks before any testing.. Im an 18 year old female.. If that mmakes a difference.

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Hi taynichaf

 

I went gluten free in October 2010 to relieve my fibromyalgia pain.

The doctor back then didn't want me to do a Celiac panel test which was bad advice.

 

The pain came back during 2011.

I thought it was gluten but I later realised it was other foods

and in January 2013 I did an IgG food intolerance test to confirm this.

 

I needed to do a Celiac blood panel because when I see specialists for medical problems and surgery they didn’t take my word for it.

And regular people thought I made it all up.

 

 

This was my Gluten challenge:

 

October 2010 to November 2012            gluten free

 

November 6 to December 6 - 2012         about 4 slices of bread / daily

December and January                          2 slices daily

February                                                

2 to 6 slices daily

March                                                    4 to 6 slices daily

up to April 18                                         10 slices daily         

 

 

 

I'm in lots of fibro pain now.

 

 

 

December 6 - 2012 I did the tTG-IgA test and it was negative.

 

April 18 - 2013 I did the Celiac panel and it was negative… darn!

 

…………………………………………………………………………………

 

The Celiac Disease Center says you should be eating gluten for 12 weeks prior to the Celiac blood panel.

Open Original Shared Link

 

…………………………………………………………………………………….

 

Keep a written log of how much bread and gluten foods you are eating so that at the end of this gluten challenge you can be sure you did your best.

 

Be sure to eat a variety of gluten: white bread, brown bread, pasta.

 

 

 

You are very wise to be testing yourself now while you are young.

 

If when you are 30 or 40 and some medical problem comes along it will be important for you to know if you have Celiac or Gluten Intolerance as these are auto-immune diseases and auto-immune diseases come in groups.

 

If you test positive now, no one will be able to tell you it's all in your head.

You will be dedicated to your gluten free diet for life after this.

And you won't be wondering at 30, 40, or 50, is it the gluten?  like the rest of us who are trying to figure this out.

 

I know it's painful but you are young and if you can get a diagnosis now, positive or negative,

it will be done and over with and then you to move on with the rest of your life.

 

You are definitely doing the right thing.

I wish I had been as enlightened as you at 18 and had been tested.

 

(going off line now)

 

Marcus

taynichaf Contributor
taynichaf
Posted
  • Author

That's such a long time!! And the test was negative?! Ugh, sorryyy:(

I know this will be hard, but if I don't give myself the best possible glutening, I'll be wondering for the rest of my life. And I was scared to do the challenge before, but I understand that it's the best thing I can do right now..

thank you so much:)

ravenwoodglass Mentor
ravenwoodglass
Posted

Make sure your doctor does the newer DGP tests once you are finished with your challenge.

When you see your new doctor on Monday be sure to detail

 

 The symptoms you had before you went gluten free,

 How severe they were,

 How long you were gluten free and how strict you were.

 What symptoms resolved on the diet and did they resolve completely or just partially

 What happened when you challenged.

 

It might help to write things down.

Talk to the doctor about wanting to challenge again and retest. Do not hesitate to call the office and talk to a nurse if your symptoms get severe. Some can tough out the symptoms for the weeks they need to. Others become too severely ill to complete the challenge. Some doctors will advise you to stop the challenge if symptoms become too severe.

If you reacted to your first challenge you really know whether your body can tolerate gluten or not. I do hope you don't have too bad of a reaction, some just get milder symptoms so you may be lucky and be in that group.

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

I agree with ravenwoodglass, get the up to date DGP tests like in this panel that I did:

 

 

Total IgA       (a control test to make sure you have enough immunoglobulin IgA)   

Transglutaminase    IgA               (tTG-IgA)

Deaminated Gliadin  IgA              (DGP-IgA)

Deaminated Gliadin  IgG              (DGP- IgG)

 

This test should cover all the bases to detect Celiac's intestinal damage.

 

Do you have to tell the new doctor that you already did the Celiac blood test and were negative?

He might not understand about your short gluten challenge affecting the first test.

 

 

AGA - IgG and AGA - IgA are the older tests no longer used for Celiac but some people do it to detect gluten sensitivity.

You might want to include the AGA  but be sure the 4 tests in the Celiac panel listed above are on your requisition including that

total IgA test.

taynichaf Contributor
taynichaf
Posted
  • Author

I agree with ravenwoodglass, get the up to date DGP tests like in this panel that I did:

 

 

Total IgA       (a control test to make sure you have enough immunoglobulin IgA)   

Transglutaminase    IgA               (tTG-IgA)

Deaminated Gliadin  IgA              (DGP-IgA)

Deaminated Gliadin  IgG              (DGP- IgG)

 

This test should cover all the bases to detect Celiac's intestinal damage.

 

Do you have to tell the new doctor that you already did the Celiac blood test and were negative?

He might not understand about your short gluten challenge affecting the first test.

 

 

AGA - IgG and AGA - IgA are the older tests no longer used for Celiac but some people do it to detect gluten sensitivity.

You might want to include the AGA  but be sure the 4 tests in the Celiac panel listed above are on your requisition including that

total IgA test.

My doctor did an IgA test thing... and no, i don't suppose I have to tell my new doc! :)

 

Thanks guys!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,882
    • Most Online (within 30 mins)
      7,748
    Nicole King
    Newest Member
    Nicole King
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.