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Help! Recently Diagnosed...

casharp

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casharp Newbie
casharp
Posted

Please help!!

 

I have been recently diagnosed with a possible gluten intolerance, and was advised by my doctor to try a gluten-free diet.  It seems that there are thousands of websites on tips and tools of this problem, but where do I start? 

 

 

Any and all help would be greatly appreciated!!

 

Thanks so much!!

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jmryan83 Rookie
jmryan83
Posted

Please help!!

 

I have been recently diagnosed with a possible gluten intolerance, and was advised by my doctor to try a gluten-free diet.  It seems that there are thousands of websites on tips and tools of this problem, but where do I start? 

 

 

Any and all help would be greatly appreciated!!

 

Thanks so much!!

 

First thing I did when I decided to try gluten free was sort the kitchen. I live with people who do not cook/eat gluten free. So separating everything was a big help. I have my own corner of the kitchen cabinets where I've looked over all the labels and I know anytime I go there the food is "safe". Start with the obvious foods, but using the websites and tools you have - identify what ingredients in your food labels may contain "hidden" gluten and take it from there.

 

I haven't gotten so far as separate toaster, pots, pans, although I do have separate cooking utensils. I will most likely finish the job once I'm completely off my gluten challenge. 

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

Hi casharp,

 

Before you take gluten out of your diet, have you been blood tested for celiac or undergone an endoscopy?  You must be consuming gluten for both of these tests, and do NOT let the doctors tell you otherwise :)   If not, it would probably be a good idea to at least get the blood test done for it.  Your PCP can order this test.  A full celiac panel is:

 

DGP igA

DGP igG

ttg igA

ttg igG

EMA

Total igA serum- this test is a control to make sure you produce enough igA for the other igA results to be valid

 

Welcome to the forum!  

 

Please help!!

 

I have been recently diagnosed with a possible gluten intolerance, and was advised by my doctor to try a gluten-free diet.  It seems that there are thousands of websites on tips and tools of this problem, but where do I start? 

 

 

Any and all help would be greatly appreciated!!

 

Thanks so much!!

IrishHeart Veteran
IrishHeart
Posted

Hi and welcome!

 

Stay on gluten until your testing is done for the most accurate results.

 

Once you are finished with all that, may I suggest you start here:

 

 

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

To echo the others above...  

 

My previous doctor gave me the same bad advice as you got. :angry:

 

That was a big mistake for me to not be tested back when I was at my worst.

 

It's worth the money to do a Celiac panel    total IgA,   tTG-IgA,  DGP-IgA,  DGP-IgG  as you will get answers.

 

It's worse to be in a state of uncertainty. :wacko:  

 

Eat lots of bread and gluten and get tested to know once and for all. -_-

  • 2 months later...
Kelly777 Newbie
Kelly777
Posted

Trust me you need to be tested prior to going gluten free. I have a long story about that. I was gluten free for a year and a half and then thought I wasn't Celiac. I never had a test one way or the other. I broke out in DH last month and tested highly positive for Celiac when they did the lab work. Make sure you get it right the first time. You don't ever want to have this rash.  

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      By trents · Posted

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      Small Bowel Resection 12 inches

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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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      Small Bowel Resection 12 inches

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