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Whole Body Stiffness

tigerlily6200

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tigerlily6200 Rookie
tigerlily6200
Posted

I recently had a positive celiac panel test and have been gluten free for 45 days.  I also have hypothyroid disease and had a positive ANA 1:320 speckled.  The Rheum. at Wake Forest was unimpressed with that number and me not having any joint pain but rather inflammation and tendonitis which is believed to be caused by celiac.  My recovery process has been slow but is improving, however I wanted to know if anyone else has experienced or is experiencing whole body stiffness.  I am stiff the entire day.  I know thyroid issues can cause stiffness and I also know I am deficient in Vit D, Magnesium, Vit B and maybe more. 

 

Sometimes I think I'm crazy, I am doing therapeutic massage and she said my entire body was tight and I had muscle knots everywhere.  She used trigger points and it helped but here I am again this morning stiff.

 

Ugh.  I have three small children and it kills me to not be the way I used to be. 

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Dozey Apprentice
Dozey
Posted

I recently had a positive celiac panel test and have been gluten free for 45 days.  I also have hypothyroid disease and had a positive ANA 1:320 speckled.  The Rheum. at Wake Forest was unimpressed with that number and me not having any joint pain but rather inflammation and tendonitis which is believed to be caused by celiac.  My recovery process has been slow but is improving, however I wanted to know if anyone else has experienced or is experiencing whole body stiffness.  I am stiff the entire day.  I know thyroid issues can cause stiffness and I also know I am deficient in Vit D, Magnesium, Vit B and maybe more. 

 

Sometimes I think I'm crazy, I am doing therapeutic massage and she said my entire body was tight and I had muscle knots everywhere.  She used trigger points and it helped but here I am again this morning stiff.

 

Ugh.  I have three small children and it kills me to not be the way I used to be.

Hi Tigerlilley

I have a lot of stiffness especially after sitting for any time, I am also quite tense and often have my shoulders up around my ears, and my teeth clenched. I am not diagnosed with Celiac but have had the bloods done this morning. I have hypothyroidism and b12 deficiency. Also getting tested for vit D def. hope things improve for you soon.

Jo

GFreeMO Proficient
GFreeMO
Posted

I have this too.  It helps to get out and walk.  I thought that I had Lupus or RA is was/is so bad sometimes.  It's all just part of celiac. You will be ok.....it takes so much time to heal from this.

pricklypear1971 Community Regular
pricklypear1971
Posted

Celiac and nutritional deficiencies do play a big role, in my experience. However, don't underestimate hypothyroidism's role.

In short, despite being on t3/t4 meds for years and receiving some relief in symptoms - I was not getting adequate absorption. This leads to suboptimal levels if t3/t4, too much rt3, stressed adrenals (I also have steroid damage), and hormone imbalances.

So, I'd look into adrenal and thyroid, and probably hormones more to help relieve those symptoms faster. It's very hard to separate celiac and thyroid. Time helps. I'd advise assuming they're causing as much trouble as Celiac and just start working on them.

  • 2 years later...
etm567 Newbie
etm567
Posted

Mineral and vitamin deficiencies can definitely cause muscle rigidity. But it's so complicated to figure out what specifically is the cause! Vitamin D, calcium, potassium and magnesium all contribute to that, I think. I mean, the lack of those things.

Have you been checked for SIBO (small intestine bacterial overgrowth)?

Almost forgot about your hypothyroidism. That also definitely plays a part, and is by itself can cause low blood calcium, I think.

 

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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