Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else Doubt That They'd Be Diagnosed?


taynichaf

Recommended Posts

taynichaf Contributor

I'm just waiting for my test results and I really hope they cone out positive..mainly because it would be proof to the people that called me a hypochondriac! So how did you all feel while waiting for a diagnoses???

And please...PLEASE pray that my test will be positive!..it would change EVERYTHING..

Thank you so much :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Deaminated Marcus Apprentice

Ackkk .... you said you would be eating gluten for 6 weeks first! 

How long has been your gluten challenge? How much bread did you eat?

 

 

I did a single tTG test after a month of going back on gluten: negative.

 

Then it was 5 months of eating from 2 up to 10 slices as I got closer to the planned test date in April.

 

And I was exactly in your shoes, waiting and hoping to have a positive test result on my panel that would explain my fibromyalgia and childhood-teen heath problems.

Then I got the negative results and I was quite disappointed.

 

Monday I went and did the old style AGA blood test in case it can help detect gluten sensitivity.

 

I'm starting to accept that maybe I don't have Celiac eventhough I was better when I first went gluten free.

Another test I did in January said I was wheat intolerant.

There are several proteins in the wheat so maybe another is affecting me.

 

I don't know if I should pray for you to have Celiac.

I too wanted that diagnosis as I don't want to be taking pills for whatever I have as I believe the answer is in nutrition.

I will pray that you have the correct diagnosis to your medical issues.

What ever it is,  I think eating the right foods for you is the right way to go.

 

 

I'm seeing the gastroenterologist tomorrow morning.

I've been waiting months to see him.

I have alot of notes and questions so I hope he's the patient type.

I hope he will agree to do an endoscopy at a future time.

 

So pray for me please. Tell God the prayer is from taynichaf, and I'll tell Him it's for me so it goes to the right place.

And I'll pray for your correct diagnosis.

 

 

PS: it's better to be a hypochondriac now to find out what's wrong  then all your life wondering what is wrong.

taynichaf Contributor

I'm still doing the challenge! It's just, when I went to the doc she asked if I wanted to be tested now or if I wanted to wait..and I couldn't resist ha,I want to know ASAP! Ha.

Ah! I feel so bad that you've been eating gluten for so long :( I reaally hope that you can get an endoscopy to see what's going on!

I'll pray that all goes well for you! And I hope I have celiac..it sounds bad but I just want a diagnosis...

<3

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

    2. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Seeking advice on potential gluten challenge

    4. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Seeking advice on potential gluten challenge

    5. - Mark Conway replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,149
    • Most Online (within 30 mins)
      7,748

    gingerc
    Newest Member
    gingerc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
    • Mark Conway
      I did'nt know that, I will check what specifically the blood tests were for. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.