Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free But No Improvements

charmed02

Recommended Posts

charmed02 Newbie
charmed02
Posted

Dear all,

I was diagnosed with celiac disease two months ago (Marsh IIIa) and I immediately started a gluten free diet, but so far I haven't seen any improvements, still copying with diarrhea and abdominal pain. My GI told me that diarrhea is supposed to be the first symptom to improve/disappear but I am still experiencing frequent BM especially in the morning. My other major issue is the abdominal pain especially after meals. I was wondering how long will it take to see any improvements and if there's something I can do to soothe the pain sometimes it is excruciating.

Thanx

 

Maurizio

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/page-2#entry851855

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Remove all dairy to test.     ;)

kareng Grand Master
kareng
Posted

Remove all dairy to test.     ;)

 

 

That's a good idea.  But first, we need to find out if he even has a good understanding of eating gluten-free.  Many people who are new to Celiac don't realize, or haven't thought about, the odd places they might be getting gluten.  Like the shared toaster or PB jar.  If he has all of these down, then eliminating dairy would be a good next step.  I'm waiting for him to answer before throwing out a lot of "maybe causes".

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

notme Experienced
notme
Posted

Maurizio,   there's wheat and gluten in deli meats and hot dogs.

not all of them!  :)  

charmed02 Newbie
charmed02
Posted
  • Author

2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/page-2#entry851855

Yes I have been very carefull I cook my own meal at home ...mostly I am eating boiled rise, lots of meat and fish and fruits and vegetables and yes I definitely need ti check my meds

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

Not many, at all, in the US. But still read labels

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,168
    • Most Online (within 30 mins)
      7,748
    watsonjennifer12
    Newest Member
    watsonjennifer12
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...