Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free But No Improvements

charmed02

Recommended Posts

charmed02 Newbie
charmed02
Posted

Dear all,

I was diagnosed with celiac disease two months ago (Marsh IIIa) and I immediately started a gluten free diet, but so far I haven't seen any improvements, still copying with diarrhea and abdominal pain. My GI told me that diarrhea is supposed to be the first symptom to improve/disappear but I am still experiencing frequent BM especially in the morning. My other major issue is the abdominal pain especially after meals. I was wondering how long will it take to see any improvements and if there's something I can do to soothe the pain sometimes it is excruciating.

Thanx

 

Maurizio

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/page-2#entry851855

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Remove all dairy to test.     ;)

kareng Grand Master
kareng
Posted

Remove all dairy to test.     ;)

 

 

That's a good idea.  But first, we need to find out if he even has a good understanding of eating gluten-free.  Many people who are new to Celiac don't realize, or haven't thought about, the odd places they might be getting gluten.  Like the shared toaster or PB jar.  If he has all of these down, then eliminating dairy would be a good next step.  I'm waiting for him to answer before throwing out a lot of "maybe causes".

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

notme Experienced
notme
Posted

Maurizio,   there's wheat and gluten in deli meats and hot dogs.

not all of them!  :)  

charmed02 Newbie
charmed02
Posted
  • Author

2 months isn't really that long.  It can take 2 months just to figure out how to eat gluten-free.  Are you eating out or food other people prepare?  Do you have your own fresh Peanut butter, mayo, butter tub, etc that isn't full of gluten crumbs?  Your own gluten-free toaster?  A colander that has not been used for gluten pasta?  Are your medications gluten-free?  I think you are a guy so you probably don't wear lipstick - but are you kissing anyone with gluten in thier lipstick or who has eaten gluten (unless they wash thier mouth well)?  Checked the ingredients on food you just assume doesn't contain gluten (Rice Krispies and corn flakes get a lot of people)?

 

Here is some info that might help

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/page-2#entry851855

Yes I have been very carefull I cook my own meal at home ...mostly I am eating boiled rise, lots of meat and fish and fruits and vegetables and yes I definitely need ti check my meds

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Maurizio,   there's wheat and gluten in deli meats, sausages and hot dogs.

 

Read the labels.  :)

Not many, at all, in the US. But still read labels

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,995
    • Most Online (within 30 mins)
      7,748
    Jojolina14
    Newest Member
    Jojolina14
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Gluten Sensitivity

      By AnnaNZ · Posted

      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      Gluten Sensitivity

      By trents · Posted

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
×
×
  • Create New...