Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughters Dr. Appt.


Lisa

Recommended Posts

Lisa Mentor

Hey Guys:

Went to the Osteopathic New Dr....love him. with my daughter.

She has had major Constipation, doubled over in pain after eating at times, headaches every morning, nausia, no sleeping and typical symptions of IBS. I do think that at this point in her life, it is IBS although she is genetically disposed for Celiac as I have been dig.

He has taken her off the Donnatal that was previously prescribed by our GP and started Zelnorm. If this does not help her symptoms, we will do the endoscopy exam and keep her on gluten. She is 21 and it would be a sad time for her to give the pizza up.

We will keep an eye out for her symptoms to "morf" into Celiac symptoms, but for now we are trying to settle the IBS. She is getting married in June and future stress is a "duh". AS WELL FOR THE MOTHER OF THE BRIDE

I would appreciate any imput from those who have been there. I was IBS for 27 years, me is one thing, my daughter is another.....ya know what I mean?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skoki-mom Explorer

I would appreciate any imput from those who have been there. I was IBS for 27 years, me is one thing, my daughter is another.....ya know what I mean?

<{POST_SNAPBACK}>

Lisa Mentor

We will take it a day at a time. And, we will be watchfull for celiac disease to show its ugly head. We'll be watching closely.......

Thanks for your reply.

heatherh Rookie

what a nice mom to go to the doctors with your adult daughter. I think the last time my mom went with me to the doctor i was 16. Its just nice to have another person beside you when the doc gives you the news good or bad. It makes sure that everything is interpreteted right and is a god send when things are less than healthy. My husband is deployed (and when home he works long hours and is gone often) so I end up alone for all my appointments, well thats no totaly true I normally have my kids in tow (3 and2) but they are more trouble than help.Tell your daughter she is a lucky girl and congrats on her upcoming nuptuals.

Matilda Enthusiast

..

Rachel--24 Collaborator
what a nice mom to go to the doctors with your adult daughter. I think the last time my mom went with me to the doctor i was 16.

<{POST_SNAPBACK}>

My Mom went with me to a few of my doctor appointments and she was there last week for my biopsy. I guess we will always be our mother's babies cuz I'm 34 now! She's really helped me through this whole ordeal. She reads the posts on here daily and she's all "caught up" on how to not contaminate me when I'm at her house. Guess I'm pretty lucky to have such a great mom. :D

Guest nini

just a couple of comments.

first, IBS is not a diagnosis, it is a bunch of symptoms

second, she wouldn't have to give up pizza, there are some great alternatives for a gluten-free pizza, my fave being Chebe bread mix without the cheese added to the mix and add a tbs. of baking powder.

third, there are caterers that will make a delicious gluten-free wedding cake and meal that no one else would be able to tell... you just have to ask. The caterers don't usual advertise that, but most trained chefs are used to being able to accommodate special diets and come up with great menus...

I wouldn't want her to suffer from "IBS" one more day or take a bunch of medications that cause other side effects when there is the possibility that just changing her diet could solve her problems.

I was on a good 20 prescriptions prior to dx and now 2 1/2 years later I am off all but 2 of them... Wouldn't that be preferable?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hi Lisa,

Have you noticed how many people posting here are about to get married or recently have? It's all very stressful, for the mother as well, I'm sure! I wonder whether it's stressful enough to trigger celiac disease in those genetically disposed.

I hope you won't mind me asking. How are you distinguishing IBS symptoms from celiac disease?

Best wishes,

Matilda

<{POST_SNAPBACK}>

Our Doctor reviewed her history, requested records from past tests, took her off the Donnatol and she is trying Zelnorm for a while to see if she gets any relief from that. He suspects that the Donnatol is giving her the morning headaches. To my knowledge there is not much difference in the symptoms between IBS and celiac disease. He has suggested that we try this first, allow him time to review her records and give this some time. If this is unsuccessful, then we will do an endoscopy to check for celiac disease. My gut feeling is that being 21, she often misses breakfast due to sleeping until lunch and does not always eat healthy for dinner... her schedule is crazy with college and working.........so at this point in time I do suspect IBS although she is genetically disposed for celiac disease as well. We will watch that closely.

Thanks all, for all the mom compliments....we don't always get that from those around us. It's nice to hear.

Lisa B.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.