Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dapsone ~ Members Taking Dapsone Please Respond.

sisterlynr

Recommended Posts

Victoria1234 Experienced
Victoria1234
Posted

How long have you been gluten-free? Took my dh many months to go away after I mastered the diet.

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tim (DH Poster Boy) Newbie
Tim (DH Poster Boy)
Posted

Still eating gluten with DH ... can't fathom it.

It takes two things to create DH - celiac disease, ie. your own body producing gluten antibodies when gluten is consumed, and iodine.  Eliminate the iodine in your diet the rash will subside...unfortunately you will probably cook off your thyroid.  I'd rather eliminate the gluten.  Any doctor that tells you that you can have DH and still eat gluten should get booted from the medical field.  As far as dapsone is concerned it doesn't cure anything it just suppresses you immune system's response to gluten - I was on it for 45 days saw some changes in the rash but not a lot of improvement - but it was allergy season and I think I also get rashes from hay fever which is an allergic response (histamines not anitobodies) so who knows - but the dapsone came with some pain in my kidneys or liver area every day and my blood work was moving out of the normal range...again I'd rather remove the gluten from my diet - especially when I read that aplastic-anemia (sp?) is a possible side effect.  I accidentally glutened myself with some rice that was packaged in a facility that also packaged wheat products (dumb dumb dumb...) it's taken about 4 months for the resulting rash to subside to the point where it was before I shot myself in the foot.  So for me at least that's probably about how long it takes to clear newly created antibodies - and that's why I can't fathom anyone with DH even considering eating gluten.  Even if the dapsone works and you tolerate it well, ie. blood work stays within normal ranges - the gluten is still causing your body to create the antibodies and is still storing them up in the top layer of your skin so that it will take that much longer to clear once going gluten free which is the only option for people with celiac disease which EVERYONE WITH DH HAS or you wouldn't have DH.  Eating gluten with DH is like eating sugar with diabetes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748
    BJ OConnor
    Newest Member
    BJ OConnor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.