Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Confused! Milk, Dairy, Casein?


Auntie-Manda

Recommended Posts

Auntie-Manda Apprentice

I definitely have some kind of problem with dairy... Usually after I eat cheese (pizza is the worst), I get a pretty bad stomachache along with some cramping, bloating, and constipation. Some products with milk in them are fine and don't cause problems (like chips with cheese flavor). I just never know until I try it. After a particularily bad experience with pizza, I decided to trial dairy free for a few weeks and see if I felt better. Well, this is day 6, and things are going ok, I guess. I haven't seen any of the symptoms that I see from dairy. But... gluten free + dairy free is no fun at all! I don't really understand the differences between all the milk/dairy/casein problems that people have... Also, since it's likely that I have celiac disease, I hear that my body is maybe just still healing (gluten-free for 3 months only) & having trouble with dairy for now.

 

I take a probiotic daily, and I recently found out that they make a "lactose defense" formula. I'm wondering if this will work for me. But not really knowing exactly what my problem is, and if my body can't handle dairy because it's still healing, I don't know if it's a good idea. I just want to be able to eat food and not blow up like a balloon! Dairy free is for sure a ton more difficult than gluten free for me. So if there's a way to still be able to have cheese & ice cream, I want to know!

 

WWYD?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Brandiwine Contributor

Only thing I know to suggest is to go two weeks with out dairy, and try a cup of milk but nothing else with dairy for a few days see how you feel. If no symptoms after those few days try cheese but nothing else dairy and see what happens. Some ppl have a dairy intolerance other a casein intolerance which can be found in non dairy items. That's all I know about the casein sorry I'm not more savvy on that, I'm sure some one else on here will know more.

Brandiwine Contributor

And also it could be something else in the pizza besides the cheese, some on here can't have tomatoes, Im seemingly having a problem with yeast :-/

Ksee Rookie

Milk has sugars and proteins. Lactose is a milk sugar. Casein is a milk protein. People can react to either or both. The cheese flavor you don't react to might be made of artificial stuff with no actual cow type anything in it. I think it would be much easier to avoid dairy because of the wide variety of products made for people with cow type allergy.

Start with milk, there is soy, rice and almond. None taste exactly like cow but trust me, after you have avoided cow for awhile, it doesn't taste good at all. There are yogurts made from soy and coconut milk and cheeses made from all sorts of things. Many people with allergies to cow can tolerate goat just fine. Goat cheese and milk is easy to find but a bit more expensive. 

There is a wide variety of frozen deserts without any cow in them as well. 

Something I would do is take another look at the pizza. Pizza is mostly other stuff with some cheese on top yes? How does that compare with the amount of cheese you eat in other ways? It seems suspicious to me the pizza causes so much more trouble than anything else.

Auntie-Manda Apprentice

Hmmm, well I eat tons of tomatoes with no issue, and the crust is just gluten free bead-type stuff, and I have other gluten-free bread, crackers, cookies, etc without issues. As far as toppings, I usually have chicken and/or sausage, which are both fine. I guess I figured that pizza was more problematic because there is more cheese than I would otherwise consume in one sitting- like maybe limited dairy is OK, but too much causes problems? I've had problems with other dairy things, too- like frostys from Wendy's and cheese (not on pizza). It seems really sporradic- like the same thing will cause issues one day and not the next. And if I can have dairy sometimes without issue, I want to!

Brandiwine Contributor

That's understandable. Dairy did the same thing to me before I went vegan. Some times a bowl of ice cream was fine and some times it wasn't, same with cheese. I'm not sure why unless it has something to do with damage done from gluten I read on another thread earlier today that went into depth about why dairy can be an issue for us I will try to find it and post it here.

Ksee Rookie

Your probably right, I only thought it was worth looking at again because I've heard people say to look at ingredients every so often to make sure there was no change.

I'm not sure what grocers are near you but I've had good luck doing searches online to find what was available at the local grocer. I went to their website and typed in "gluten free" to find out what products they carried. I already know about milk substitutes because at one point I thought that was my problem. Fortunately for me I found out the real problem was gluten but it would of been easier for me to adapt if it had been cows milk. There is so much more available for that problem. 

I hope you have a happy shopping experience.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Auntie-Manda Apprentice

That's understandable. Dairy did the same thing to me before I went vegan. Some times a bowl of ice cream was fine and some times it wasn't, same with cheese. I'm not sure why unless it has something to do with damage done from gluten I read on another thread earlier today that went into depth about why dairy can be an issue for us I will try to find it and post it here.

And now you can handle dairy? Yay, there's hope for me!

Juliebove Rising Star

I have to avoid all forms of dairy.  Seems I can be okay with it for a while but then it starts making me sick.  If I lay off for a really long time, like 3 years, I can eat it again but it's not worth it.  Before long it will sicken me again and I don't like being sick.

foam Apprentice

Pizza is the ultimate killer food for leaky gut people. Not only is it full of grains in the gluten free base. You have tomatoes, probably sun dried with sugar too. Onions, Cheese, yeast. It's the who's who of disaster foods. I started eating cheese again a couple of weeks ago but as of a couple of days ago it's started to mess me up again. Wasn't ready for it it seems. Don't underestimate yeast, it can mess you up hugely if you have antibodies to candida.

gfreejz Rookie

After I went gluten free, I had to avoid dairy for about a year. Even lactose free milk gave me problems.  Now I can have some dairy like real chedder cheese because it is very low on lactose and gluten free ranch dressing. Also I have found that it takes my body a week to rid itself of dairy, meaning that if I eat a little cheese everyday, by the end of the week, I start to have problems. Also, I can not eat butter in any amount and things with whey ( lots of lactose) like sour cream, ice cream, velveta, and dips. I also avoid greasy foods and spicy foods.

If I had a small cross contamination, I cannot have any dairy for a few weeks after. When I first went gluten free, things that had alot of sugar also did not agree. I have a local ice cream shop that has lactose free soft serve ice cream which is ok for me and I even can eat quite a bit of it. I personally think that until your body settles down, a wide variety of things can irritate your guts and if you can tolerate something iffy, don't eat it everyday.

Also, gluten-free homeade pizza can be troublesome for me if I really pig out. I think it is because of the combo of cheese and grease from pepperoni.

seraphim Contributor

I tried butter a little while back and had cramping within two hours and my stools looked abnormal for a couple days.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.