Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Appointment Today


wmramsel

Recommended Posts

wmramsel Explorer

My daughter's first GI appointment is today....I'm so nervous!  I don't know why, I'm not sure what else he could tell us that I don't already know or suspect.  But I'm so, so nervous.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I recommend bringing a paper and pen - I find it helps me to write it down. Request lab copies too.

 

Good luck!  :)

mommy2krj Explorer

Hugs mama! I think specialized Drs make me nervous. I've never dealt with a doctor outside of our regular doc and an allergist/ENT (my husband and both my boys had their tonsils/adenoids out kind of back to back and the youngest and the hubby have nasty seasonal and cat allergies) but not really anything beyond that.

 

 

I wasn't super nervous about my son's appointment....but then I didn't think there was anything really seriously wrong with him either. :( I mean...I know a constant stomach ache isn't normal...but for the most part, he'd complain once or twice and then he'd be fine. His energy levels were the same he was just eating less. Now his energy levels have gone down a bit and he complains less but I'm not sure why. We haven't changed anything with his diet yet. They (thankfully) didn't tell me everything they were testing him for until after the testing and they called with the results. That was when I panicked a little....because the DOCTOR called me. The doctor never calls....it's always the nurse. Always. Unless it's something bad. So, yeah, I panicked because I missed her phone call because my phone was not working properly that day but I got to listen to her leave a message. Which, of course, they can't leave any details so my brain panicked....I almost went into a full blown panic attack (which I have NEVER in my life done!) and am thankful that there were some neighbors home that were able to talk me down. :)

When I finally was able to use my stupid phone and talk to them and they told me Celiac's....I was actually kind of relieved. I'd heard of it and while I was rather mistaken in what it actually is....what my brain had come up with in the short amount of time between phone calls was MUCH MUCH worse. Now, we're waiting for his biopsy and I'm getting my whole family tested. It explains some issues for both my husband and my older son and could explain some things for myself and my daughter (migraines) so we are all getting tested. Not sure we're going to get biopsies for everyone or not....I'll have to discuss that with their doctors. But we're all going gluten free anyway.

Good luck with her GI appointment. I find them kind of scary but not too much as the only GI I've ever met (my son's) has been a lovely lady and actually listened to the things I told her. Which, I have to say, was quite nice! Sorry for the rambling. I'm rather new to all this as well...just wanted to let you know you're not alone in being nervous.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,115
    • Most Online (within 30 mins)
      7,748

    Catherine Driscoll
    Newest Member
    Catherine Driscoll
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.