Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Causes Neurological Symptoms


djs89

Recommended Posts

djs89 Rookie

I have been on a gluten free diet for about a month now, and my health was beginning to improve. But I was still skeptical about whether I am gluten intolerant or not, so yesterday I did a "test". I consumed 2 pieces of gluten pizza and a gluten muffin. The pizza did cause any symptoms right away. But later I ate a muffin and shortly afterwards felt like I had been drugged or poisoned. Brain scrambled and odd thoughts/behavior. Very unclear thought pattern and mental confusion. Often times, this goes along with poor coordination, slurred speech, headache. Maybe these symptoms are tied partially to fatigue, however it does not seem like the usual "food coma" type of symptoms that people experience simply from eating too much. The neurological sort of symptoms are the usual ones I have always dealt with after consuming a food with wheat/gluten, but I had been in denial that it was actually gluten causing it, without definitive proof that I am gluten intolerant. However a few people on this forum with celiac/gluten intolerance seem to report the same/similar symptoms. So are these common gluten intolerance symptoms, and how do they manifest?

 

It's been nearly 24 hours since I consumed gluten and the headache/brain fog feeling persists, only worse. I hope it goes away soon, because right now I can't think clearly/concentrate or accomplish any work that needs to be done. Just writing this forum post has been a challenge, I've had to revise it several times just to make sure I am making sense. I find it odd that my brain is effectively stunted after consuming gluten. I wonder if it's just fatigue - blood to the stomach/intestines and away from the brain, or some sort of inflammatory response, and can actual brain damage occur over time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Myself Newbie

I have been on a gluten free diet for about a month now, and my health was beginning to improve. But I was still skeptical about whether I am gluten intolerant or not, so yesterday I did a "test". I consumed 2 pieces of gluten pizza and a gluten muffin. The pizza did cause any symptoms right away. But later I ate a muffin and shortly afterwards felt like I had been drugged or poisoned. Brain scrambled and odd thoughts/behavior. Very unclear thought pattern and mental confusion. Often times, this goes along with poor coordination, slurred speech, headache. Maybe these symptoms are tied partially to fatigue, however it does not seem like the usual "food coma" type of symptoms that people experience simply from eating too much. The neurological sort of symptoms are the usual ones I have always dealt with after consuming a food with wheat/gluten, but I had been in denial that it was actually gluten causing it, without definitive proof that I am gluten intolerant. However a few people on this forum with celiac/gluten intolerance seem to report the same/similar symptoms. So are these common gluten intolerance symptoms, and how do they manifest?

 

It's been nearly 24 hours since I consumed gluten and the headache/brain fog feeling persists, only worse. I hope it goes away soon, because right now I can't think clearly/concentrate or accomplish any work that needs to be done. Just writing this forum post has been a challenge, I've had to revise it several times just to make sure I am making sense. I find it odd that my brain is effectively stunted after consuming gluten. I wonder if it's just fatigue - blood to the stomach/intestines and away from the brain, or some sort of inflammatory response, and can actual brain damage occur over time?

 

I'm kind of in the same boat as you.  I have severe brain fog and memory problems and I too have not been diagnosed.  In my experience the symptoms can often have a delayed reaction after you eat something with gluten. 

 

When I read this I got really depressed.

 

 

 

 

The University of Chicago has one of the leading treatment and research centers for Celiac Disease in the U.S., so my jaw dropped when they posted this:

“While healing may take up to 2 years for many older adults, new research shows that the small intestines of up to 60% of adults never completely heal, especially when adherence to the diet is less than optimal.”Open Original Shared LinkOpen Original Shared Link

Tbolt47 Newbie

I have been on a gluten free diet for about a month now, and my health was beginning to improve. But I was still skeptical about whether I am gluten intolerant or not, so yesterday I did a "test". I consumed 2 pieces of gluten pizza and a gluten muffin. The pizza did cause any symptoms right away. But later I ate a muffin and shortly afterwards felt like I had been drugged or poisoned. Brain scrambled and odd thoughts/behavior. Very unclear thought pattern and mental confusion. Often times, this goes along with poor coordination, slurred speech, headache. Maybe these symptoms are tied partially to fatigue, however it does not seem like the usual "food coma" type of symptoms that people experience simply from eating too much. The neurological sort of symptoms are the usual ones I have always dealt with after consuming a food with wheat/gluten, but I had been in denial that it was actually gluten causing it, without definitive proof that I am gluten intolerant. However a few people on this forum with celiac/gluten intolerance seem to report the same/similar symptoms. So are these common gluten intolerance symptoms, and how do they manifest?

 

It's been nearly 24 hours since I consumed gluten and the headache/brain fog feeling persists, only worse. I hope it goes away soon, because right now I can't think clearly/concentrate or accomplish any work that needs to be done. Just writing this forum post has been a challenge, I've had to revise it several times just to make sure I am making sense. I find it odd that my brain is effectively stunted after consuming gluten. I wonder if it's just fatigue - blood to the stomach/intestines and away from the brain, or some sort of inflammatory response, and can actual brain damage occur over time?

Hello djs89,

I was diagnosed with Celiacs a little over 6 months ago. I do not believe there is much of a distinction between "intolerance " and " Celiacs "  as they relate to symptoms . Unfortunately what you describe is my typical neurological symptomatic response to consuming gluten. Concurrently I experience some painful GI symptoms.

 

Have you been tested for Celiacs ?

txgal748 Apprentice

DJS89,

 

I was diagnosed with Celiac Disease 5/21/2012.  I have to say I was on the verge of being seriously ill.  All my symptoms were neurological.  I could not stand in one spot for very long and I could not do without water for more that 30 minutes.  My legs hurt, I kept getting dizzy, and I had a headache everyday although not very painful.  I still don't understand the water thing. My PCP had me go se a neurologist that ordered $3,000 worth of blood test.  Of course she put her money on hypoglycemia.  The results were positive celiac panel and very low B12(184).  The Dr. gave me a B12 shot that afternoon and I quit eating gluten that day.  The next morning I felt fantastic.  No headache, no leg pain, and no dizziness.  I now take 1,000mcg of B12 everyday.  I had blood work at the beginning of May which showed my B12 at 896 (normal range).

 

I have never had any gastrointestinal problems.  The only time I know for sure that I have been glutened my feet hurt for a couple of days. 

 

You should look up the symptoms of low B12, they are pretty scary.  You should also have your Dr. do a Celiac Panel to see if you have celiac disease.  I was fortunate that my celiac disease showed up in my blood work because the GI Dr. I went to decided the only other test I needed was the celiac disease DNA test, which of course showed that I have the celiac disease gene.  Keep reading the discussions in this forum there is a lot of helpful information.

 

Good Luck

Myself Newbie

DJS89,

 

I was diagnosed with Celiac Disease 5/21/2012.  I have to say I was on the verge of being seriously ill.  All my symptoms were neurological.  I could not stand in one spot for very long and I could not do without water for more that 30 minutes.  My legs hurt, I kept getting dizzy, and I had a headache everyday although not very painful.  I still don't understand the water thing. My PCP had me go se a neurologist that ordered $3,000 worth of blood test.  Of course she put her money on hypoglycemia.  The results were positive celiac panel and very low B12(184).  The Dr. gave me a B12 shot that afternoon and I quit eating gluten that day.  The next morning I felt fantastic.  No headache, no leg pain, and no dizziness.  I now take 1,000mcg of B12 everyday.  I had blood work at the beginning of May which showed my B12 at 896 (normal range).

 

I have never had any gastrointestinal problems.  The only time I know for sure that I have been glutened my feet hurt for a couple of days. 

 

You should look up the symptoms of low B12, they are pretty scary.  You should also have your Dr. do a Celiac Panel to see if you have celiac disease.  I was fortunate that my celiac disease showed up in my blood work because the GI Dr. I went to decided the only other test I needed was the celiac disease DNA test, which of course showed that I have the celiac disease gene.  Keep reading the discussions in this forum there is a lot of helpful information.

 

Good Luck

 

 

I've read so much that I often forget which symptoms are associated with any particular condition.  Can low B12 cause sporadic electro-shock type sensations?  I used to get that a lot.  It was as if someone jolted my body with low voltage.  If I remember correctly B12 can sometimes help with that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • islaPorty
    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.