Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Causes Neurological Symptoms


djs89

Recommended Posts

djs89 Rookie

I have been on a gluten free diet for about a month now, and my health was beginning to improve. But I was still skeptical about whether I am gluten intolerant or not, so yesterday I did a "test". I consumed 2 pieces of gluten pizza and a gluten muffin. The pizza did cause any symptoms right away. But later I ate a muffin and shortly afterwards felt like I had been drugged or poisoned. Brain scrambled and odd thoughts/behavior. Very unclear thought pattern and mental confusion. Often times, this goes along with poor coordination, slurred speech, headache. Maybe these symptoms are tied partially to fatigue, however it does not seem like the usual "food coma" type of symptoms that people experience simply from eating too much. The neurological sort of symptoms are the usual ones I have always dealt with after consuming a food with wheat/gluten, but I had been in denial that it was actually gluten causing it, without definitive proof that I am gluten intolerant. However a few people on this forum with celiac/gluten intolerance seem to report the same/similar symptoms. So are these common gluten intolerance symptoms, and how do they manifest?

 

It's been nearly 24 hours since I consumed gluten and the headache/brain fog feeling persists, only worse. I hope it goes away soon, because right now I can't think clearly/concentrate or accomplish any work that needs to be done. Just writing this forum post has been a challenge, I've had to revise it several times just to make sure I am making sense. I find it odd that my brain is effectively stunted after consuming gluten. I wonder if it's just fatigue - blood to the stomach/intestines and away from the brain, or some sort of inflammatory response, and can actual brain damage occur over time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Myself Newbie

I have been on a gluten free diet for about a month now, and my health was beginning to improve. But I was still skeptical about whether I am gluten intolerant or not, so yesterday I did a "test". I consumed 2 pieces of gluten pizza and a gluten muffin. The pizza did cause any symptoms right away. But later I ate a muffin and shortly afterwards felt like I had been drugged or poisoned. Brain scrambled and odd thoughts/behavior. Very unclear thought pattern and mental confusion. Often times, this goes along with poor coordination, slurred speech, headache. Maybe these symptoms are tied partially to fatigue, however it does not seem like the usual "food coma" type of symptoms that people experience simply from eating too much. The neurological sort of symptoms are the usual ones I have always dealt with after consuming a food with wheat/gluten, but I had been in denial that it was actually gluten causing it, without definitive proof that I am gluten intolerant. However a few people on this forum with celiac/gluten intolerance seem to report the same/similar symptoms. So are these common gluten intolerance symptoms, and how do they manifest?

 

It's been nearly 24 hours since I consumed gluten and the headache/brain fog feeling persists, only worse. I hope it goes away soon, because right now I can't think clearly/concentrate or accomplish any work that needs to be done. Just writing this forum post has been a challenge, I've had to revise it several times just to make sure I am making sense. I find it odd that my brain is effectively stunted after consuming gluten. I wonder if it's just fatigue - blood to the stomach/intestines and away from the brain, or some sort of inflammatory response, and can actual brain damage occur over time?

 

I'm kind of in the same boat as you.  I have severe brain fog and memory problems and I too have not been diagnosed.  In my experience the symptoms can often have a delayed reaction after you eat something with gluten. 

 

When I read this I got really depressed.

 

 

 

 

The University of Chicago has one of the leading treatment and research centers for Celiac Disease in the U.S., so my jaw dropped when they posted this:

“While healing may take up to 2 years for many older adults, new research shows that the small intestines of up to 60% of adults never completely heal, especially when adherence to the diet is less than optimal.”Open Original Shared LinkOpen Original Shared Link

Tbolt47 Newbie

I have been on a gluten free diet for about a month now, and my health was beginning to improve. But I was still skeptical about whether I am gluten intolerant or not, so yesterday I did a "test". I consumed 2 pieces of gluten pizza and a gluten muffin. The pizza did cause any symptoms right away. But later I ate a muffin and shortly afterwards felt like I had been drugged or poisoned. Brain scrambled and odd thoughts/behavior. Very unclear thought pattern and mental confusion. Often times, this goes along with poor coordination, slurred speech, headache. Maybe these symptoms are tied partially to fatigue, however it does not seem like the usual "food coma" type of symptoms that people experience simply from eating too much. The neurological sort of symptoms are the usual ones I have always dealt with after consuming a food with wheat/gluten, but I had been in denial that it was actually gluten causing it, without definitive proof that I am gluten intolerant. However a few people on this forum with celiac/gluten intolerance seem to report the same/similar symptoms. So are these common gluten intolerance symptoms, and how do they manifest?

 

It's been nearly 24 hours since I consumed gluten and the headache/brain fog feeling persists, only worse. I hope it goes away soon, because right now I can't think clearly/concentrate or accomplish any work that needs to be done. Just writing this forum post has been a challenge, I've had to revise it several times just to make sure I am making sense. I find it odd that my brain is effectively stunted after consuming gluten. I wonder if it's just fatigue - blood to the stomach/intestines and away from the brain, or some sort of inflammatory response, and can actual brain damage occur over time?

Hello djs89,

I was diagnosed with Celiacs a little over 6 months ago. I do not believe there is much of a distinction between "intolerance " and " Celiacs "  as they relate to symptoms . Unfortunately what you describe is my typical neurological symptomatic response to consuming gluten. Concurrently I experience some painful GI symptoms.

 

Have you been tested for Celiacs ?

txgal748 Apprentice

DJS89,

 

I was diagnosed with Celiac Disease 5/21/2012.  I have to say I was on the verge of being seriously ill.  All my symptoms were neurological.  I could not stand in one spot for very long and I could not do without water for more that 30 minutes.  My legs hurt, I kept getting dizzy, and I had a headache everyday although not very painful.  I still don't understand the water thing. My PCP had me go se a neurologist that ordered $3,000 worth of blood test.  Of course she put her money on hypoglycemia.  The results were positive celiac panel and very low B12(184).  The Dr. gave me a B12 shot that afternoon and I quit eating gluten that day.  The next morning I felt fantastic.  No headache, no leg pain, and no dizziness.  I now take 1,000mcg of B12 everyday.  I had blood work at the beginning of May which showed my B12 at 896 (normal range).

 

I have never had any gastrointestinal problems.  The only time I know for sure that I have been glutened my feet hurt for a couple of days. 

 

You should look up the symptoms of low B12, they are pretty scary.  You should also have your Dr. do a Celiac Panel to see if you have celiac disease.  I was fortunate that my celiac disease showed up in my blood work because the GI Dr. I went to decided the only other test I needed was the celiac disease DNA test, which of course showed that I have the celiac disease gene.  Keep reading the discussions in this forum there is a lot of helpful information.

 

Good Luck

Myself Newbie

DJS89,

 

I was diagnosed with Celiac Disease 5/21/2012.  I have to say I was on the verge of being seriously ill.  All my symptoms were neurological.  I could not stand in one spot for very long and I could not do without water for more that 30 minutes.  My legs hurt, I kept getting dizzy, and I had a headache everyday although not very painful.  I still don't understand the water thing. My PCP had me go se a neurologist that ordered $3,000 worth of blood test.  Of course she put her money on hypoglycemia.  The results were positive celiac panel and very low B12(184).  The Dr. gave me a B12 shot that afternoon and I quit eating gluten that day.  The next morning I felt fantastic.  No headache, no leg pain, and no dizziness.  I now take 1,000mcg of B12 everyday.  I had blood work at the beginning of May which showed my B12 at 896 (normal range).

 

I have never had any gastrointestinal problems.  The only time I know for sure that I have been glutened my feet hurt for a couple of days. 

 

You should look up the symptoms of low B12, they are pretty scary.  You should also have your Dr. do a Celiac Panel to see if you have celiac disease.  I was fortunate that my celiac disease showed up in my blood work because the GI Dr. I went to decided the only other test I needed was the celiac disease DNA test, which of course showed that I have the celiac disease gene.  Keep reading the discussions in this forum there is a lot of helpful information.

 

Good Luck

 

 

I've read so much that I often forget which symptoms are associated with any particular condition.  Can low B12 cause sporadic electro-shock type sensations?  I used to get that a lot.  It was as if someone jolted my body with low voltage.  If I remember correctly B12 can sometimes help with that.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.