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Diarrhea For 2 Weeks - Can't Figure Out Why?


aimless75

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aimless75 Rookie

Hi,

I have only been on this site asking about my daughter, but I have been having a lot of problems lately so I was hoping someone would have some advice!

 

Two months ago I did an elimination diet - no wheat, dairy, corn, soy, sugar, eggs - and then did a reintroduction. My energy was way up during this time ( I have always felt tired and have had on and off stomach problems. )  Eggs and dairy didn't seem to bother me at the time.  When I added a little bit of gluten, I got the "foggy brain" and my fatigue came back so I knew I was gluten sensitive.  So, I took it back out and felt better.  But, then I decided I wanted to be tested for celiac so I added gluten back in for only 3 days before I was tested.  The first night I had a burger with bun my stomach hurt so bad and I looked like I was 6 months pregnant.  The next day it went away and the rest of the time I didn't have any other symptoms.  I tested negative tTg IgG and IgA both .22  (<.90 negative).  I went on vacation for a week and had gluten a few times but no symptoms.  When  I returned I decided to take gluten back out of my diet and I have had terrible problems.  At first I was really bloated, gassy, abdominal pain, and diarrhea at least once a day.  No matter what I ate it didn't seem to matter  It's been almost two weeks now, and the bloating has gotten better and so has the pain, but the diarrhea is worse - 2-3 times per day now.  I usually still have one normal BM but it floats each day.  I have started making a food journal and noticed I ate gluten a few times in the past week (teriyaki sauce and I was hoping to be tested for AGA (Gp said no), so I had a brownie).  I have also lost a few pounds in the past week.  My GP tested my stool for bacterial and parasite infections which were negative.

 

So, I guess my question is could I have not reacted to gluten for the week I was on vacation and then just started reacting?  And then reacting pretty bad when I am exposed to it accidentally over the past week?  I'm also wondering if maybe I'm sensitive to dairy and corn now.  I've been eating a little bit of cheese and corn chips.  The diarrhea can hit at anytime of the day, and most days I feel better by the evening time for some reason.  My doctor justs says I have IBS and seems pretty done with me.  I am not just going to accept IBS - obviously if my bowel is irritated, something is making it that way, right???  I just don't know what to do and can't just accept I'm going to have diarrhea everyday forever.  I was thinking of either doing a juice fast for a few days to clean things out and then add things in slowly again.  I have history of thyroid disease (both Grave's and Hashimoto), infertility, multiple miscarriages, anxiety issues, allergies, hair loss, and off and on GI issues.

 

Thanks for any advice!

 

 


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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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