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Diarrhea For 2 Weeks - Can't Figure Out Why?


aimless75

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aimless75 Rookie

Hi,

I have only been on this site asking about my daughter, but I have been having a lot of problems lately so I was hoping someone would have some advice!

 

Two months ago I did an elimination diet - no wheat, dairy, corn, soy, sugar, eggs - and then did a reintroduction. My energy was way up during this time ( I have always felt tired and have had on and off stomach problems. )  Eggs and dairy didn't seem to bother me at the time.  When I added a little bit of gluten, I got the "foggy brain" and my fatigue came back so I knew I was gluten sensitive.  So, I took it back out and felt better.  But, then I decided I wanted to be tested for celiac so I added gluten back in for only 3 days before I was tested.  The first night I had a burger with bun my stomach hurt so bad and I looked like I was 6 months pregnant.  The next day it went away and the rest of the time I didn't have any other symptoms.  I tested negative tTg IgG and IgA both .22  (<.90 negative).  I went on vacation for a week and had gluten a few times but no symptoms.  When  I returned I decided to take gluten back out of my diet and I have had terrible problems.  At first I was really bloated, gassy, abdominal pain, and diarrhea at least once a day.  No matter what I ate it didn't seem to matter  It's been almost two weeks now, and the bloating has gotten better and so has the pain, but the diarrhea is worse - 2-3 times per day now.  I usually still have one normal BM but it floats each day.  I have started making a food journal and noticed I ate gluten a few times in the past week (teriyaki sauce and I was hoping to be tested for AGA (Gp said no), so I had a brownie).  I have also lost a few pounds in the past week.  My GP tested my stool for bacterial and parasite infections which were negative.

 

So, I guess my question is could I have not reacted to gluten for the week I was on vacation and then just started reacting?  And then reacting pretty bad when I am exposed to it accidentally over the past week?  I'm also wondering if maybe I'm sensitive to dairy and corn now.  I've been eating a little bit of cheese and corn chips.  The diarrhea can hit at anytime of the day, and most days I feel better by the evening time for some reason.  My doctor justs says I have IBS and seems pretty done with me.  I am not just going to accept IBS - obviously if my bowel is irritated, something is making it that way, right???  I just don't know what to do and can't just accept I'm going to have diarrhea everyday forever.  I was thinking of either doing a juice fast for a few days to clean things out and then add things in slowly again.  I have history of thyroid disease (both Grave's and Hashimoto), infertility, multiple miscarriages, anxiety issues, allergies, hair loss, and off and on GI issues.

 

Thanks for any advice!

 

 


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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