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Need Help, Just Keep Getting Sicker It Seems


fatjacksonthecat

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fatjacksonthecat Rookie

Hi everyone, Im new here but I know my story is one that has been heard many times over so Ill try to make this as short as possible.For quite some time I have known something was off with me until one time I bought a protein blend that was basically made out of gluten and  ended up in the ER and docs  a couple of times being checked for ulcers etc.After this protein blend so intensified my symptoms I was finally 99 percent sure what making me sick as I had suspected gluten before.

 

 I didnt have health insurance and didnt know to keep eating gluten for the test and so I cut out gluten and did really well for a while. The burning skin,knawing stomache and back pain, fatigue and acid reflux I thought was gone, however, every now and then some gluten would sneak in and to make a long story short it seemed that with every accidental glutening I have gotten more and more sensitive- to the freaking extreme to where I think I even started getting cross reactivity to anything that looks like gluten.

 

In desperation I have went on the gaps diet as I am almost certain I have leaky gut but to no avail. I now feel toxic and seem to be getting sicker and sicker. I keep this awful burning acid in the center of my chest, depression, anxiety, brain fog and this terrible pain between my shoulder blades.. and for the life of me I have been making all of my food in advance and know I have not been eating gluten.I do have a doc appointment in a week and a half but dont know how much thats going to help because Ive been gluten-free for about a year at least and cant imagine going back to eating gluten for any sort of a test.

 

I am hoping getting tested for leaky gut will be enough to give me  a solid connection. I have had blood tests for gluten that came back negative but then again I wasnt eating gluten at the time so that didnt surprise me or the doctor. I am just desperate because this feeling of depression and fatigue is just almost more that I can bear on a day in day out basis. Can anyone relate to this?It seems that nothing I am doing is helping for any length of time. Am I possibly missing something?Thanks all, any help would so be so appreciated.


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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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