Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another One? Come On!


Rowena

Recommended Posts

Rowena Rising Star

So now, I'm trying to eat VERY 'cleanly' with my esophagitis, gluten intolerance, and lactose intolerance (with likely casein allergy).  But stupidly, it would appear now that I've got something ELSE I'm not responding to, and I can't figure out what it is.  I itch, and if I had white skin it'd be flaming red.  (I'm a brownie so red doesn't show up on my skin)  And then there is the fact the corners of my mouth are very cracked, and my throat feels swollen.  Faceplant.  NOW what?

 

I am SOOOOOOO frustrated now!  I want to feel good!  Is it too much to ask to figure out EVERYTHING all at once?

 

Also, I'm considering seeing an allergist, but those tests where they see if you flare, I'm afraid nothing will show up because I've got brown skin and don't turn red so they will say I don't have any, when obviously I do...  Are there other alternatives to it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Food diary would help some here. Keep track of everything you eat. You might be able to find a pattern.

 

As for the allergist, it might be good to go see one anyway.

mommy2krj Explorer

I think with the skin scratch tests, it's not so much if you turn red as it is with the amount of swelling. At least that is what I got from it when we did my sons'. If they based it on the redness...my oldest would be allergic to everything while my little guy, not so much.

 

But since they looked more at the swelling, my oldest son has a slight (they were hesitant to even say that) allergy to cats and nothing else. My little guy? His cat reaction took over half his back. There was a good amount of swelling....though the redness wasn't as pronounced. It was there but definitely secondary to the swelling. I'm tempted actually to go back and have them do it again...but without the cat. I think the cat kind of ruined the test for those things around it....it was that bad. :(

GFinDC Veteran

An elimination diet is good way to go.  There are lots of threads about them here.  the advantage of an elimination diet is it will find food intolerances as well as allergies.  But allergy tests won't find food intolerances.

Juliebove Rising Star

Cracking at the corners of the mouth can be a vitamin B defiency.  I have to take a B Complex vitamin or I get that.

 

Not sure what to tell you about the hives.  I get them sometimes and never know the cause.  It's not always from what I eat.  But recently I accidentally ate oats and got hives.  I have an oat intolerance.

 

I also have intolerances to various herbs and spices, including mint.  You might try switching toothpastes.  I currently use one from Greece called Korres.  It's eucalyptus and that took some getting used to.  They also make a spearmint/lime which I can not use.  I did try an unflavored that was recommended here.  I had no problems with it but the lack of flavor was odd.  I got it online at dentist.net, I think.  Might have been .com.  You can also try Closeup which is cinnamon.  If your are currently using a mint toothpaste that is.  Or you can simply try baking soda.

 

You might try eliminating seasonings except perhaps for salt.  See if that helps.  Or it could even be something wacky like lettuce.  I have read several stories recently of people having reactions to lettuce!

Rowena Rising Star

I think with the skin scratch tests, it's not so much if you turn red as it is with the amount of swelling. At least that is what I got from it when we did my sons'. If they based it on the redness...my oldest would be allergic to everything while my little guy, not so much.

 

But since they looked more at the swelling, my oldest son has a slight (they were hesitant to even say that) allergy to cats and nothing else. My little guy? His cat reaction took over half his back. There was a good amount of swelling....though the redness wasn't as pronounced. It was there but definitely secondary to the swelling. I'm tempted actually to go back and have them do it again...but without the cat. I think the cat kind of ruined the test for those things around it....it was that bad. :(

 

Ah its swelling?  Didn't know that!  Thanks that makes me feel SOOO much more relaxed about seeing an allergenist.

 

An elimination diet is good way to go.  There are lots of threads about them here.  the advantage of an elimination diet is it will find food intolerances as well as allergies.  But allergy tests won't find food intolerances.

 

Yeah, I'm thinkin I might do that since eating clean doesn't seem to resolve the issue.  Though since I am eating pretty clean (which includes common allergens, I'm not sure what else to eliminate.)

 

Cracking at the corners of the mouth can be a vitamin B defiency.  I have to take a B Complex vitamin or I get that.

 

Not sure what to tell you about the hives.  I get them sometimes and never know the cause.  It's not always from what I eat.  But recently I accidentally ate oats and got hives.  I have an oat intolerance.

 

I also have intolerances to various herbs and spices, including mint.  You might try switching toothpastes.  I currently use one from Greece called Korres.  It's eucalyptus and that took some getting used to.  They also make a spearmint/lime which I can not use.  I did try an unflavored that was recommended here.  I had no problems with it but the lack of flavor was odd.  I got it online at dentist.net, I think.  Might have been .com.  You can also try Closeup which is cinnamon.  If your are currently using a mint toothpaste that is.  Or you can simply try baking soda.

 

You might try eliminating seasonings except perhaps for salt.  See if that helps.  Or it could even be something wacky like lettuce.  I have read several stories recently of people having reactions to lettuce!

 

 

Yeah the corners of the mouth isn't a B deficiency, I take a vegan B complex (I had NO clue they put lactose in medicines too!  Crazy right?) so I am pretty sure I am good there.  (My GI associates the corners of the mouth cracking with allergies/intolerances too which is why I think there is STILL something else!)

Hahaha intolerances to spices eh... I already know one I can't have... Throat swells up, lips crack and everything for rosemary.  Worst thing EVER!   But yeah, I switched recently my toothpaste to a non mint toothpaste because that is what was recommended for esophagitis since mint can make that flare apparently.  So now I use an antiplaque and whitening toothpaste from tom's made with fennel.  Tastes weird like black licorice (which I hate mind you!) but I'm getting used to it.  But yeah, I had never really heard of allergies/intolerances to spices, but apparently I have one!  (I don't even remember how I discovered it was rosemary actually!)  I know I'm okay with your basic herbs like basil for example, and cinnamon.  But not sure what else.

As for something wacky, I think it really is something wacky since I'm currently eating as clean as I can.  Don't think its lettuce, since I haven't had any rec-- actually scratch that... I did have lettuce a couple times the past week.  Wonder if it could be spinach too... That would SUCK if it was spinach frankly.... I LOVE spinach

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,864
    • Most Online (within 30 mins)
      7,748

    Jojo3
    Newest Member
    Jojo3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.