Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Twin Cities (Mn) Recommendations?


Eclara

Recommended Posts

Eclara Explorer

Anyone have any recommendations for gluten intolerance and celiac-educated doctors, particularly gastros, in the Twin Cities and the southern surrounding areas? Basically anywhere between-ish Lakeville to Minneapolis. I've been to three doctors in the MN Gastro chain so far, and I don't know if I just happened to pick the worst ones but they were enormously unhelpful. But if you have a specific doctor from that chain, I'd be willing to try going there again! I also know the Mayo is nearby but I don't think I would get in because my symptoms are not as severe as other people on their list, and I've already had an endoscopy which came back negative.

 

I just need someone who won't immediately dismiss me when I tell them I have lasting symptoms from my gluten trial 9 months ago. So far they've all taken one look at my IGA and biopsy results and told me there was no correlation between gluten and my symptoms before wildly attempting to push drugs at me.

 

Any recommendations would be a big help! Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I go to Between the Bridges In Mankato, Mn.  Dr. Kotulski came highly recommended as one knowledgeable of how to use supplements.  He was recommended to me by my chiropractor who called around and found He is trained in Osteopathic medicine and Functional Medicine  Dr. kotulski was associated with the Mayo Clinic for 32 years before opening Between the Bridges.  Functional medicine looks for roots of illness rather than just treating symptoms.  A couple of years back Dr. Kotulski helped to solve my son's problems with parasites and damaged villi.  This seemed shockingly similar to the damage I had sustained from celiac.

 

I didn't want to use a male doctor myself, so when I heard there was a nurse practitioner using Functional Medicine techniques practicing there, I went.  I knew that Dr. Kotulski would help her if she needed it.

 

I first went to the clinic myself five months back.  I have been there 3 times.  I had a nutrient test  done elsewhere in November which I could not grasp the meaning of.  Lisa, the nurse explained to me the significance of these test results.  They backed the nutrition program I was on, with a couple of key supplements added.  In spite of a great diet and supplements, my vitamin A and B levels were seriously low and many other nutrients were borderline.  I tripped markers for mal-absorption.  Dr. Kotulski told the nurse that  on the November day of my test that I had nothing to make cortisol with. 

 

I just had a repeat nutrient test in order to discover that my all my nutrient levels (but one) had come up to normal or better.  Vitamin B levels came way up to slightly high levels!

 

I am happy with Lisa, the nurse.  She carefully, answers each of my questions.  The treatment seems to really help.  I highly recommend this clinic.

 

Just to be clear this is not a "GI" doctor.  I thought you may be willing to consider it.  Whatever, you decide, best wishes for your total well being.  If you have any questions about Between the Bridges or the practitioners there, feel free to ask.

 

D

 

 

 

 

 

.Open Original Shared Link

Eclara Explorer

I go to Between the Bridges In Mankato, Mn.

...

Thank you so much for your response! Unfortunately, that is outside of my driving range as I don't have a license and the only person available to drive me can generally only take a couple hours of out his day. I will definitely make note of it for future reference though!

1desperateladysaved Proficient

Thank you so much for your response! Unfortunately, that is outside of my driving range as I don't have a license and the only person available to drive me can generally only take a couple hours of out his day. I will definitely make note of it for future reference though!

Too bad.  I have asked the only other member I know from MN to tell us who her GI doctor is. 

 

The same person that recommended Dr. Kotulski to me also told me of the Bruley Clinic.  The doctor is an MD with Functional Medicine training.  Since I went to Dr. Kotulski, I didn't get an opportunity to go to this clinic.  At the time, their appointments were 2 + months out. Open Original Shared Link

 

Hey, there must be more MN's out there???

 

D

maggiesimpson Apprentice

Eclara,

 

It is further north than what you were hoping for, but I see Dr. O'Reilly at MN Gastro in Maplewood. I have to admit that I was frustrated early on, but overall it has been a good experience. He was more than willing to work with me and had an open mind. He is the one who suggested we don't just focus on celiac, but look at other possibilities. I usually see others in his office who report to him, and most of them are pretty good. Only one of them did not impress me because she didn't explain things well and constantly had to go talk to the doctor before answering my questions.

 

Best of luck to you, and I hope you are able to find a GI doc that fits your needs.

 

Maggie

  • 3 months later...
Cindy Anderson Newbie

I am in MN and looking for a good one to. I am in the twin cities on the Eden Prairie side. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

    2. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

    3. - Scott Adams replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

    4. - Scott Adams replied to Stegosaurus's topic in Super Sensitive People
      2

      trehalose intolerance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,995
    • Most Online (within 30 mins)
      10,442

    Jody Booker
    Newest Member
    Jody Booker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test won't tell you if he has celiac, it can only tell you whether or not he is susceptible to getting celiac.)
    • JennMitchell79
    • Scott Adams
      That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable.
    • Scott Adams
      @Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with tummy pain, nausea, constipation, and diarrhea still going on. Anxiety can certainly add to gastrointestinal symptoms, but I can see why you would not want to assume that explains everything. It sounds like keeping an eye on things and being cautious with diet changes makes sense, especially if symptoms continue. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Scott Adams
      @Stegosaurus, that is really interesting, and it sounds like you have done a lot of careful digging into what might be driving your symptoms. The connection between dysbiosis, food reactions, and specific additives or sugars is clearly complicated, but your point about hidden ingredients and individual tolerance makes a lot of sense. It is also encouraging that you found something, like the fermented Florastor approach, that seems to help you tolerate certain foods better. Posts like this are helpful because they remind people that sometimes the reaction is not just about the obvious ingredient on the label.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.