Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Just Sucks!

Diggraphics

By Diggraphics
in Coping with Celiac Disease

Recommended Posts

Diggraphics Newbie
Diggraphics
Posted

So newly into this. A month. Got glutened terrible this weekend. Wedding. Ugggg. And now I'm just afraid to eat if I'm not home. I'm slowly starving to death

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


niese Explorer
niese
Posted

I know the feeling when I went gluten-free 4 months ago I was scared to death to eat out.  I have only eaten at 2 restaurants Wendys and only had a baked potato and Red Robin had a hamburger on gluten-free bun and steamed broccoli.  I had no issues with either place.  Hon, no need to starve yourself to death all fresh fruit and veggies, and meat not pre seasoned are all gluten free.  When I first went gluten-free I started with what I already had on hand, I was surprised with the items I found I already had that were gluten-free.  Have you checked out the safe ingredient list?  https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

 

Here is another one to read:

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

Hang in there, it honestly does get easier.  If you have any questions ask there are alot of people here that are willing to help and answer your questions.  Wonderful support here! 

kareng Grand Master
kareng
Posted

So newly into this. A month. Got glutened terrible this weekend. Wedding. Ugggg. And now I'm just afraid to eat if I'm not home. I'm slowly starving to death

You won't starve. You may have to fix your own food and bring it along but that's why coolers and lunch boxes were invented. :)

There are some threads on here about what foods people eat for snacks, breakfast, lunch, dinner, when traveling by plane, by car, ship and even a bike and a train thread. Maybe those will give you some ideas?

Diggraphics Newbie
Diggraphics
Posted
  • Author

You won't starve. You may have to fix your own food and bring it along but that's why coolers and lunch boxes were invented. :)

There are some threads on here about what foods people eat for snacks, breakfast, lunch, dinner, when traveling by plane, by car, ship and even a bike and a train thread. Maybe those will give you some ideas?

Thanks for the links. It just frustrating when I'm on the go. I am back in school with 3 kids 10 and under and it's so hard to pack stuff for me and have their stuff done too. I know it will get better. It's just so overwhelming right now and I am just having a very blue day. Thanks for your support

notme Experienced
notme
Posted

one day at a time - if you look too hard at the big picture you will go bonkers!  do some reading on here, hit the cooking forum (they have some handy lunch-to-go ideas on there just search it) and take care of you.  it's a big change, treat it as such :)   you'll be ok - you're in a good place to get advice, hugs, and just vent.  this is the place where baby steps are ok and small victories are huge.  

Chrisz1000 Newbie
Chrisz1000
Posted

Blue days... yes, we've all had so many of those.

 

If you need something to fill you with calories I recommend peanut butter on a gluten-free cracker or bread. Literally 20seconds preperation time, a tasty snack which is calories dense. These kept me going. Then I discovered enzymes which allowed me to digest these calories!

 

The first months are the hardest, but things will get better in terms of symptoms and getting into a rhythm of this new lifestyle.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    3. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    5. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,847
    • Most Online (within 30 mins)
      7,748
    L.Garcia24
    Newest Member
    L.Garcia24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.