Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Be?


Danijela

Recommended Posts

Danijela Contributor

Hey there!!!

I had the barium enema today....I was actually feeling quite good yesterday and this morning because I wasn't allowed to eat for over 24 hours... I had to take klean prep to get my system cleared out... it was tough to drink that garb especially 4 litres but I think i definitly needed that after the lack of bowel movements i've been having for the last year....

anyways this morning at about 930 after my appointment i ate a sandwitch then at 2:00pm half a sandwitch and its starting all over again i'm nervous and having really bad hunger pains, my stomach is rumbling and crampy, I feel a little out of it and shakey....

I'm becoming convinced more and more that i do have celiac or an intolerance... i was completly fine all day yesterday and for the early part of today...

i booked an appointment with my Gi on the 27th... and i'm going to run this by him... he's convinced i don't have celiac disease and is not interested in investigating an intolerance at all..... he says i already had the screening and it was negative.... i only had 2 of the antibodies run .... so with any luck he'll put me out of my misery and order a full panel... i don't know him well at all so i don't know how is going to react to this whole conversation.. cause we all know drs don't like people telling them anything or second guessing them... so wish me luck..

any advice is more than welcome

this website and the people i've met here has been a god send!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Danijela Contributor
Hey there!!!

I had the barium enema today....I was actually feeling quite good yesterday and this morning because I wasn't allowed to eat for over 24 hours... I had to take klean prep to get my system cleared out... it was tough to drink that garb especially 4 litres but I think i definitly needed that after the lack of bowel movements i've been having for the last year....

anyways this morning at about 930 after my appointment i ate a sandwitch then at 2:00pm half a sandwitch and its starting all over again i'm nervous and having really bad hunger pains, my stomach is rumbling and crampy, I feel a little out of it and shakey....

I'm becoming convinced more and more that i do have celiac or an intolerance... i was completly fine all day yesterday and for the early part of today...

i booked an appointment with my Gi on the 27th... and i'm going to run this by him... he's convinced i don't have celiac disease and is not interested in investigating an intolerance at all..... he says i already had the screening and it was negative.... i only had 2 of the antibodies run .... so with any luck he'll put me out of my misery and order a full panel... i don't know him well at all so i don't know how is going to react to this whole conversation.. cause we all know drs don't like people telling them anything or second guessing them... so wish me luck..

any advice is more than welcome

this website and the people i've met here has been a god send!!!

<{POST_SNAPBACK}>

hey

if any of the canadians have had the full panel run could you msg me

thanks alot

danijela

melisadki Explorer

I never understood why doctors just cant run the full tests. I mean you or your insurance is paying for it.......whats it to them. I swear sometimes doc's want you to stay sick so they can keep up a good business...maybe I am a lil bit paranoid but gosh.

I asked my to run a blood panel my reg. doc I was pretty surprised when they called back and said it is ready to pick up...now I am just hoping he did the full 5 panel test. :rolleyes:

Danijela Contributor
I never understood why doctors just cant run the full tests.  I mean you or your insurance is paying for it.......whats it to them.  I swear sometimes doc's want you to stay sick so they can keep up a good business...maybe I am a lil bit paranoid but gosh.

I asked my to run a blood panel my reg. doc I was pretty surprised when they called back and said it is ready to pick up...now I am just hoping he did the full 5 panel test. :rolleyes:

<{POST_SNAPBACK}>

Hey Melisadki:

well thank god i don't have to pay for much living in canada we are lucky to have ohip....

I was in touch with the canadian celiac association today... i asked them for solid information about which antibodies should be run to complete the full panel and they suprisingly had no idea what i was talking about... i went on to explain that i was told on this site that there was 5 antibodies and i was only screened for 2 of them... she told me i couldn't use information off this site cause its american and their screening differs from ours....... she said i had to have a biopsy of my bowel???

i really don't think she knew what she was talking about....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,662
    • Most Online (within 30 mins)
      7,748

    Vickie F
    Newest Member
    Vickie F
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.