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Celiac?

JeffCT31

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JeffCT31 Newbie
JeffCT31
Posted

Hi,  I'm brand new to this site and was just looking for some advice.  For the past few years I have had symptoms of extreme fatigue and severe headaches.  More recently (the past 4-5 months) I have had some bad stomach issues.  I went to a bunch of doctors who tested me for everything (except Celiac) and of course, said I was fine.  One of my doctors recommended that I try removing gluten from my diet.  I've done it and have felt somewhat better but to be honest I have cheated from time to time for the simple reason that it is hard to completely remove something from my diet when I don't even know for sure if it is the cause of my symptoms.  Now, I'm dealing some pretty bad chest pains (heartburn is a symptom of celiac?) and I feel stuck.  Every doctor keeps telling me I'm fine but I think the symptoms are actually getting worse.  I'm just wondering if anyone thinks that Celiac is a possibility for me or I should stick to a strict gluten free diet, or am I completely on the wrong track?  Any advice would be greatly appreciated. 

 

Thanks!

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mamaw Community Regular
mamaw
Posted

Eat  gluten   & do the  proper celiac  testing.. You may not  be  celiac  with  villi  damage   or  you may  be. or  you  could  be  gluten  sensitive..... Have  you  had  other  routine  blood work  done?  And  if  it  turns  out  you  have  celiac  , you must  be  gluten free 100%  --- 100%  of the  time  or  you may  never feel  better...You  need  testing...

JeffCT31 Newbie
JeffCT31
Posted
  • Author

Eat  gluten   & do the  proper celiac  testing.. You may not  be  celiac  with  villi  damage   or  you may  be. or  you  could  be  gluten  sensitive..... Have  you  had  other  routine  blood work  done?  And  if  it  turns  out  you  have  celiac  , you must  be  gluten free 100%  --- 100%  of the  time  or  you may  never feel  better...You  need  testing...

Thanks for your response.  I've had my blood work done numerous times and the only red flag the doctors found was that my bilirubin was high.  They sent me to have an ultrasound done and said that they found nothing wrong.  It got to the point where I'm pretty sure the doctors thought I was full of it.  Every time I went in and or had something tested, they found nothing.  Like I had said previously, one doctor did tell me to try removing gluten from my diet but no one has ever said anything to me about Celiac so I wasn't even sure if I really did have the proper symptoms for it.  The fact that I've had bad stomach problems for the past few months has really alarmed me, and combine that with recent chest pains and I'm extremely frustrated.

kareng Grand Master
kareng
Posted

Thanks for your response.  I've had my blood work done numerous times and the only red flag the doctors found was that my bilirubin was high.  They sent me to have an ultrasound done and said that they found nothing wrong.  It got to the point where I'm pretty sure the doctors thought I was full of it.  Every time I went in and or had something tested, they found nothing.  Like I had said previously, one doctor did tell me to try removing gluten from my diet but no one has ever said anything to me about Celiac so I wasn't even sure if I really did have the proper symptoms for it.  The fact that I've had bad stomach problems for the past few months has really alarmed me, and combine that with recent chest pains and I'm extremely frustrated.

But....did they do the Celiac blood panel? Do that before you delete gluten.

mamaw Community Regular
mamaw
Posted

yes, to what Kareng stated! there can be as many as 300 symptoms that could be an issue for people. Meaning celiac is like a chameleon not everyone has the same issues, the same amount of illness, same healing time, some doctors just haven't learned the full spectrum of celiac or being sensitive....

AS an adult you can make your own choice by reading your own self. If you can go gluten-free 100% of the time with no cheating & you stick with that for at least 3-4 months that should tell you if you feel better or just the same...

Again I suggest a total blood work-up. thyroid panel t-3 t-4 tsh, FT4 FT3 reverse T-3.. glucose, A1C, Iron, ferritin, B-12 Vit D, CBC, lipid panel....gallbladder scan...

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