Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting For Tests To Come Back


Dria

Recommended Posts

Dria Newbie

About a month ago I thought I kept spraining my left wrist pulling the garage door down at work.  when it happened on my right wrist far worse then the left i couldn't open my fingers without horrible pain.  i finally decided to go to the dr.  they did some blood work to test for gout, lyme diseas and rheumatoid.  they called me a few days later and said it was rheumatoid and told me to call a specialist.  i have never really liked my primary care because she wouldn't run the extensive tests for hypothyroid.  i had seen an endocrynologist a few yrs ago and she said i was borderline hypo, ultrasound showed enlarged right thyroid anyway she told me to have my primary run 5 different tests if the symptoms got worse well they have gotten worse but this year during my physical my primary dr would only run the standard tsh even after i told her what the endo dr said etc.  so i don't really like this dr to begin with so when they said i had rheumatoid i decided to change primary drs and get a second opinion.  i found an awesome dr that was willing to run any and all tests i just met with him two days ago.  He doesn't think i have rheumatoid he thinks it's celiac.  it's been three weeks now since the first dr told me I had rheumatoid, once i heard that I immediatly changed my diet, gave up gluten, dairy and anything processed. i'm only eating fresh veggies, fruit, meat and nuts.  since the pain started in my writsts it's also in my feet now, while my wrists no longer hurt my feet are still killing me really bad.  i have also notice i no longer have bathroom issues since changing my diet and i no longer have acid reflux since the diet change, i used to eat the ultra tumbs antacid upwards of 6 per day, since the diet change i haven't used one.

 

Some days i wake up with pain in other places such as my knees or the tendons in my neck or forearms but those pains are gone with in a day or two however my feet aren't getting any better.  i am sort of nervous and hoping in time my feet will get  better, i guess i'm just wondering if others had pain that stayed in one spot for a long time after changing their diet and if they would have pain in their tendons and joints in other areas that would come and go?  I also have one toe and one finger that are always swollen. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

You had celiac antibody tests, I believe you said in another post.  That is good you don't have RA.  I believe that celiac is more manageable and perhaps you have already seen that the diet makes a difference!

 

Wishing you all the best as you recover,

 

D

deb-rn Contributor

Hmmm  I have terrible left wrist pain too... I was sent to a Rheumatologist years ago too... no RA.  Amazing how this is all starting to come together!  I'm expecting to feel better than I have in  YEARS!!  I've had back injections, knee and plantar injections!  I've had restless leg syndrome... the list goes on.  I used to tell people, "someday, they'll name a syndrome after me".... because I had so many weird, seemingly disconnected issues!!  TA  DA!!  It had a name all along!

 

Debbie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,000
    • Most Online (within 30 mins)
      7,748

    Kim Martin
    Newest Member
    Kim Martin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • The Logician
      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
×
×
  • Create New...