Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting For Tests To Come Back


Dria

Recommended Posts

Dria Newbie

About a month ago I thought I kept spraining my left wrist pulling the garage door down at work.  when it happened on my right wrist far worse then the left i couldn't open my fingers without horrible pain.  i finally decided to go to the dr.  they did some blood work to test for gout, lyme diseas and rheumatoid.  they called me a few days later and said it was rheumatoid and told me to call a specialist.  i have never really liked my primary care because she wouldn't run the extensive tests for hypothyroid.  i had seen an endocrynologist a few yrs ago and she said i was borderline hypo, ultrasound showed enlarged right thyroid anyway she told me to have my primary run 5 different tests if the symptoms got worse well they have gotten worse but this year during my physical my primary dr would only run the standard tsh even after i told her what the endo dr said etc.  so i don't really like this dr to begin with so when they said i had rheumatoid i decided to change primary drs and get a second opinion.  i found an awesome dr that was willing to run any and all tests i just met with him two days ago.  He doesn't think i have rheumatoid he thinks it's celiac.  it's been three weeks now since the first dr told me I had rheumatoid, once i heard that I immediatly changed my diet, gave up gluten, dairy and anything processed. i'm only eating fresh veggies, fruit, meat and nuts.  since the pain started in my writsts it's also in my feet now, while my wrists no longer hurt my feet are still killing me really bad.  i have also notice i no longer have bathroom issues since changing my diet and i no longer have acid reflux since the diet change, i used to eat the ultra tumbs antacid upwards of 6 per day, since the diet change i haven't used one.

 

Some days i wake up with pain in other places such as my knees or the tendons in my neck or forearms but those pains are gone with in a day or two however my feet aren't getting any better.  i am sort of nervous and hoping in time my feet will get  better, i guess i'm just wondering if others had pain that stayed in one spot for a long time after changing their diet and if they would have pain in their tendons and joints in other areas that would come and go?  I also have one toe and one finger that are always swollen. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

You had celiac antibody tests, I believe you said in another post.  That is good you don't have RA.  I believe that celiac is more manageable and perhaps you have already seen that the diet makes a difference!

 

Wishing you all the best as you recover,

 

D

deb-rn Contributor

Hmmm  I have terrible left wrist pain too... I was sent to a Rheumatologist years ago too... no RA.  Amazing how this is all starting to come together!  I'm expecting to feel better than I have in  YEARS!!  I've had back injections, knee and plantar injections!  I've had restless leg syndrome... the list goes on.  I used to tell people, "someday, they'll name a syndrome after me".... because I had so many weird, seemingly disconnected issues!!  TA  DA!!  It had a name all along!

 

Debbie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,485
    • Most Online (within 30 mins)
      7,748

    HazelMay
    Newest Member
    HazelMay
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.