Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Typical Symptoms?


try2bgfree

Recommended Posts

try2bgfree Rookie

Ok, so I am experiencing insomnia and decided to post.  Hi everyone.

 

I am not diagnosed celiac, is this forum also for gluten sensitive people?  I know I am sensitive, by elimination diet.  I haven't had tests bc I do not want to eat gluten.  Problem is, I keep eating it accidently.  2 weeks ago, my sister offered me mac and cheese, and I didn't want to be rude/be annoying so I just had one bite, I didn't think it would be a big deal.  Wrong.  Carpal tunnel symptoms, joint and muscle pain/swelling, head ache, gained 3 lbs, not to mention depression, anxiety, paranoia, unstable moods.  It had been a few months since having any gluten, and I guess I forgot how bad it sucks.

 

So on saturday I was finally feeling better, and got some soft serve ice cream with my boyfriend.  Insomnia started again, etc etc.  I didn't know that it has gluten!  If you accidently consume gluten, does eating anything not really healthy/simple make you feel ill?  Like the thought of eggs makes me sick when I feel like this, and I love candy, its my vice, but I just had some and now I feel like I could throw up.  So I mean if you get glutened, does it make you feel sick for a few days when eating non gluten food?

 

Also my daughter has moderate eczema and recurrent cradle cap even though she is 4 now.  She is also strangely addicted to food, like she will be playing and come in multiple times to ask for a treat, where other kids can focus on playing, she just can't.  I have read that it is best to let kids try to self regulate with food, which I have tried, but she will eat until she is sick every time.   She does have a really big belly with thin arms and legs, but it isn't awful like a lot of the pics on the internet.  Should I get her tested or am I just thinking things are wrong bc I know I experienced a lot of symptoms for years before I realized they were food related and WISH THERE WAS MORE INFORMATION out there.  Seriously, why don't doctors look for this stuff? 

 

Ok, sorry for the rant, but I have never talked about this with anyone who understands.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

This site is also for those with NCGI.  Welcome.

 

Sorry you are experiencing insomnia, happens to the best of us.  You may wish to reconsider getting blood tests for Celiac if you are having such reactions to gluten.  You and your daughter could both do a challenge and get tested at the same time if you are concerned she may have Celiac.  Non flavored soft serve does not have gluten in it.  Some flavors and topping may.  Cross contamination is also a risk if it is being dipped out by many spoons. 

 

Colleen

w8in4dave Community Regular

Unless your food is cross contaminated you should not have a problem with Gluten free food. Unless Gluten is not your problem. I would re consider getting checked. As for your daughter I would just make sure you give her good choices not letting her eat cookies and candies and such. Give her choices that are healthy. Maby not alot of processed stuff. I also agree maby you and your daughter do a challenge. 

bartfull Rising Star

Soft-serve ice cream is most likely CC'ed because cones often touch the nozzle. Scooped ice cream is most likely CC'ed because cone crumbs fall into the tubs. I only eat my ice cream at home. (Except when I have it at a good friend's ice cream shop. She got in a corn-free (I am intolerant to corn too) butter pecan that she keeps separate from the other flavors, and ONLY serves it in dishes or on the gluten-free waffle cones she started making JUST FOR ME!! :wub: )

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.