Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skin Help - May Be Dh, May Not, Not Sure


Syracusegirl1999

Recommended Posts

Syracusegirl1999 Newbie

I know that others have posted pictures in here, and I'm just looking for some help.

 

I've had these intensely itchy spots on my hands for about 18 years (I'm 36 now). Whenever I get them, I can wash my hands, use hand cream, cortisone ointment, hand sanitizer - nothing will stop the itch. The itch is stopped only by scratching, and it's a conscious thing - to scratch so much that the topmost layer of skin comes off. Once that happens, the spot goes numb. Day 2 is the most painful. Day 3 on, the wound is scabbed and healing.

 

The bad part (you know, other than tearing my skin off) is that it looks like a burn.

 

Here's a pic of my hand 3 days after the itchiness started: Open Original Shared Link

 

My "doctor" today told me it was "eczema" and "ringworm" and prescribed me a steroid cream from looking at my hand from 5 feet away. 

 

Has anyone else ever had something like this? I know it doesn't look like the typical DH and I realize it might not be DH (if not, mods feel free to delete). I'm just looking for some help because I've also had these spots on my ankles, wrists, arms and legs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I don't know a lot about Dh but I think the question would be - what do they look like before you scratch them?

Also, I do know about ringworm and that is nothing like ringworm!

Syracusegirl1999 Newbie

I don't know a lot about Dh but I think the question would be - what do they look like before you scratch them?

Also, I do know about ringworm and that is nothing like ringworm!

Before I scratch, they get really red and inflamed. As I scratch the skin acts like it's blistering - it seems to get "loose" and I can pull the top layer away. Once the "blister pop" there is clear fluid, the skin turn whitish and red around it.

 

I also have 2 little spots on my left palm, here's a small example of what they look like before it get scratched:

Open Original Shared Link

Syracusegirl1999 Newbie

Additional spots on my left inside wrist and left index . . . so frustrating

ItchyAbby Enthusiast

I cannot say for sure if it is Dh, but I will say this: don't get too hung up on what "typical" Dh looks like. If you look at the photo bank here you will see a fair amount of variation in rashes and locations. Mine is considered "atypical" according to common medical knowledge and that was enough to make multiple derms and docs decide it wasn't Dh. (Common medical knowledge says that Dh occurs mostly in males and on the elbows, knees and back of the neck. I am female and have it all over the front and sides of my torso and across my lower back.)

 

You may need to be "pushy" with you docs and ask to see a dermatologist. Then you may need to be pushy with them to get them to test for Dh (and then you need to make sure that they know how to properly take a biopsy for Dh) It's frustrating, I know.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
×
×
  • Create New...