Skin Biopsy For Dh

[squirmingitch]

I agree with the others. She HAS to keep eating gluten until the biopsy & Prickly said it right. 

 

Some info. on the dh biopsy & you should print it out & take it to the derm especially if you insist on seeing the derm you just saw who gave you bad information.

 

http://www.celiac.ni...Dermatitis.aspx  forget what they say about it's location on the body --- that's bunk --- we who have it can tell you it appears anywhere it darn well pleases & while it does appear where they say that's not the ONLY places it appears & not necessarily the first or most frequent places. You might want to print a copy & take it to the derm.

 

http://www.curecelia...gluten-exposure

 

http://www.curecelia...ve-the-blisters

 

http://www.curecelia...is-dh-diagnosed

 

http://www.curecelia...py-still-needed

 

http://www.curecelia...erpetiformis-dh

 

http://www.curecelia...testinal-biopsy

 

And the rash does not ALWAYS present as water filled blisters --- that happens when you've got it BAD. 

Open Original Shared Link

 

The use of either topical or oral steroids within 2 months prior to the biopsy will make the biopsy negative whether it truly is negative or not.

 

Also, one MUST be have been & continue to be eating a full gluten diet or outhe biopsy will turn up negative. If one is "gluten light" the biopsy will turn up negative. You can't just eat a few crackers the day or for a few days before the biopsy --- that will not work. YOU MUST BE EATING A FULL GLUTEN DIET.

 

Open Original Shared Link

 

These types of skin samples are collected by performing a biopsy, which involves incising tiny portions of unaffected skin positioned immediately next to reddened or blistered areas.

 

 

Open Original Shared Link

 

Dermatitis herpetiformis is only

diagnosed and confirmed by a

dermatologist obtaining a slight

skin biopsy from uninvolved

skin adjacent to blisters or

erosions (1, 3). Other forms of

dermatitis can mimic dermatitis

herpetiformis necessitating

skin biopsy for correct

diagnosis (4).

 

 

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A skin sample is taken from the area next to a lesion and a fluorescent dye is used to look for the presence of Immunoglobulin A (IgA) deposits that appear in a granular pattern. or  Skin biopsies of people with DH are almost always positive for this granular IgA pattern.

 

 

Open Original Shared Link

 

DH is diagnosed by a skin biopsy, which involves removing a tiny piece of skin near the rash and testing it for the IgA antibody

 

Labs & biopsy for dh:

Open Original Shared Link

 

DH confusion with linear IgA bullous dermatosis

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Symptoms of celiac disease

Open Original Shared Link

 

Be sure to read all 3 of these links & print them out to take to the derm:

Open Original Shared Link

 

Open Original Shared Link

 

Open Original Shared Link

 

http://www.curecelia...gluten-exposure

 

http://www.curecelia...ve-the-blisters

 

http://www.curecelia...is-dh-diagnosed

 

http://www.curecelia...py-still-needed

 

http://www.curecelia...erpetiformis-dh

 

http://www.curecelia...testinal-biopsy

 

[DHLady]

Hi there!

I was diagnosed with DH in the fall of 2010.

I just woke up with it one day.

I have been on 100 mg of Dapsone daily, since that time.  It controlled the painful rashes beautifully.

As of 1/1/14; I have stopped taking Dapsone (cold turkey) and began a gluten-free diet.

I do not suffer any of the GI symptoms associated with Celiac.

My dermatologist & primary care physician told me I had to make the change, as my red blood cells were damaged resuling in a low oxygen level as a result of taking the medication.

I know I have a long painful road ahead of me; which is why I prolonged changing my diet and getting off the Rx.

Any suggestions like the above would be greatly appreciated!  Eating on the go, meal ideas, safe costmetics, soaps and lotions, etc.

I am a very busy homemaker, wife and mother of three very active children.

I am not taking any other Rx medications and do not have any other known allergies.

I do take a daily low dose aspirin.

Looking for support in tackling this lifestyle change. 

[kareng]

Hi there!

I was diagnosed with DH in the fall of 2010.

I just woke up with it one day.

I have been on 100 mg of Dapsone daily, since that time. It controlled the painful rashes beautifully.

As of 1/1/14; I have stopped taking Dapsone (cold turkey) and began a gluten-free diet.

I do not suffer any of the GI symptoms associated with Celiac.

My dermatologist & primary care physician told me I had to make the change, as my red blood cells were damaged resuling in a low oxygen level as a result of taking the medication.

I know I have a long painful road ahead of me; which is why I prolonged changing my diet and getting off the Rx.

Any suggestions like the above would be greatly appreciated! Eating on the go, meal ideas, safe costmetics, soaps and lotions, etc.

I am a very busy homemaker, wife and mother of three very active children.

I am not taking any other Rx medications and do not have any other known allergies.

I do take a daily low dose aspirin.

Looking for support in tackling this lifestyle change.

That's horrible! You were diagnosed with Celiac Disease in 2010 but no one told you the only cure is to go gluten-free until now? Sounds like malpractice to me.

Anyway, read around the forum . In the coping section is a Newbie thread that could be helpful.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

[DHLady]

That's horrible! You were diagnosed with Celiac Disease in 2010 but no one told you the only cure is to go gluten-free until now? Sounds like malpractice to me.

Anyway, read around the forum . In the coping section is a Newbie thread that could be helpful.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

My apologies!

From day 1, I knew that the only cure for DH was to go gluten free.

I simply did not want to make the change and took the Dapsone, using it as a band-aid.

It worked like a dream for me!

I have just been prompted to pursue the gluten free diet due to side effects of the Dapsone.

Thanks for you thoughts.

[squirmingitch]

This link might help you

https://www.celiac.com/forums/topic/96552-help-for-the-itching-stinging-burning-pain-of-dh/