Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep


joshy

Recommended Posts

joshy Newbie

Has anyone else started having trouble sleeping?  month free of gluten and still havnt had a decent sleep yet since it started   eyes always feel heavy, if i look at something for to long i just started to day dream and have trouble concentrating   does anyone else have these problems and found any way to make it better? 

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NayRPM Newbie

I use to always be tired. My boyfirend called it "being horizontal" because as soon as I sat down I fell asleep, especially if I needed to be visually focused on something that had minimal mental engagement. Movies were a joke. This was particularly difficult when I needed to meet deadlines for papers, my MA degree was obtained by me standing to read articles and write. Once going gluten free I was amazed by how much better I felt, and that I did not have to fight to stay awake while driving. However, even the smallest amount of gluten and I am right back to exhaustion, to the point that my eyes cross when trying to focus on driving. I also realized that soy lecithin and fructose caused this same reaction without the nausea. From what I have gathered, until the gut heals, we may be sensitive to certain foods that can cause gluten-like symptoms. This depends on how they are digested, one in particular being lactose because it is digested by the end of the villi which are damaged from gluten. I figured out my other allergies or triggers by taking data on when I felt the symptoms and cross comparing ingredients. I have found that I am only sensitive to these when I have been glutened. After a week or so, depending on how bad the glutening was, I will no longer have symptoms to soy lecithin and fructose. You may just need to cut back to a very simple diet until you have healed and then hopefully you will not have the symptoms. 

NayRPM Newbie

In fact, here is an article that i found extremely helpful to explain why I was getting sick despite being what I thought was gluten free. Reading posts by people who had been gluten free for a while made me super depressed because I thought I was doomed to be super sensitive forever, but reading some of these articles helped me understand. 

 

Open Original Shared Link

Open Original Shared Link

 

I hope this helps. It may also be something else driving the sleep issues, particularly anxiety. My sleep issues were always worse when I was anxious and I could actually predict when I would sleep walk instead of just sleep talk. If a diet change does not help I would try to see what other factors it may be. I am a researcher so I love keeping data and it really helped me to find patterns that I otherwise may not have realized, but find what works for you. A food journal including symptoms and other important factors (stress, exercise, etc.) may work wonders. 

GottaSki Mentor

This member hasn't been back since they started their account in November.  While Joshy may not repond - others may be interested in the information you have added.

 

When I flare we say I'm horizontal and when I improve I am vertical again -- presents a very clear visual description to family and friends.

 

Certified Gluten Free foods are safe for most people with celiac -- I can't eat them, it is not because of the microscopic amount of gluten they may contain - I have multiple other food intolerances which makes it extremely difficult to eat any processed foods.  I strongly suggest anyone newly diagnosed keep the processed foods - labeled gluten-free or not to a minimum and if possible only eat those with a few ingredients as it can be very tough to know what is bothering you on a ingredient list filled with artificial and chemical ingredients.

 

Welcome to the forum Nay :)

CaliSparrow Collaborator

I could actually predict when I would sleep walk instead of just sleep talk.

Thank you for the post. I just realized my lifelong issue with sleep talking/walking disappeared. *woot*! It makes me wonder if my college roomie has gluten issues. She's 4'10". Our dorm room neighbors told us we'd regularly talk all night long! Sleep gossip ;)

In Biology, I remember my head bobbing and on one occasion, holding my eyelids open. That was not pleasant.

Anyway, I definitely go "horizontal" when my body is reacting and my anxiety increases. My adrenals were put through the ringer so sleep is impacted doubly when my body is in fight mode.

I keep processed foods to just once in a while. In the beginning, I ate a lot of gluten-free food. After going gluten-free, I was completely unprepared for what came next. Being underweight, exhausted, confused, out of my mind and hungry, I ate processed gluten-free food as a transition to get calories in. My aunt told me not to eat that stuff but I was hungry! After figuring out to eat whole foods, it became clear I was on a better track. I am also intolerant of a lot of other foods and don't have the gut for chemicals probably because it all just went on too long.

In '06, we took a trip to a health resort to recover me from an unexplained 2-month stomach illness (hmmm). The place grew their food organically on their land and bought fish from the local fishermen. The before and after pictures are unbelievable. I went from looking ill to the prime of my life (in a week!). I'm guessing I was temporarily gluten-free as the only tortillas they had were corn. I ended up falling ill again after returning home and the saga continued for six more years. I think the sooner this is caught, the better.

Anxiety can give me symptoms and gluten gives me anxiety. It goes both ways for me. The longer I can sleep at night, the stronger I feel the next day.

Welcome Nay :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748

    kyle68j
    Newest Member
    kyle68j
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...