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Maybe Gluten Ataxia?

joshy

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joshy Newbie
joshy
Posted

Ill start the story from the start  maybe someone here might know more then some "doctors"  

 

 Im 23 male  start of the year i started doing alot of gym,  Id start at 7pm till 8 30pm  id end up sleeping around 3am - 5am an sleep thru till lunch time   anyways  one day i woke up and was constipated and my vision was weird  it felt like i wasnt here kinda like thru someone elses eyes   week being constipated then started having bad stomach pains an headaches then couple times after acouple pieces of toast my left arm started feeling really numb and weird  started going to the doctors on an off an none could work it out  had ct scans top an bottom, anti acid tablets  nothing worked,  after about 5 months of problems  finally looked up gluten symtoms  and most of mine was there,  so i started a gluten free diet within a week the headaches, stomach pains all went now still hanging out is the vision problems, concertation problems,  if i look at something for too long ill just start day dreaming.....

i have had the anti body test but already went gluten free before that,  then recently had the gene test which came back negative also,  Have been gluten free 7 weeks now

 

 

question is  could i have gluten ataxia? 

Is this something that should repair over time? 

Could any of this be because of the sleep habits ? 

 

 

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nvsmom Community Regular
nvsmom
Posted

question is  could i have gluten ataxia? 

 

You could. Gluten ataxia may occur (as far I understand it) in those that have celiac disease or non-celiac gluten intolerance (NCGI). You were tested for celiac disease, although possibly not accurately due to the short length of your gluten challenge, because many symptoms improved on the gluten-free diet, I would guess that you have celiac disease or NCGI. 

 

You mentioned the genetic tests. Not all celiacs have the DQ2 or DQ8 genes. Most celiacs do have them but not all. The last numbers I saw, in the book Dangerous Grains, said 90 and 94% of celiacs have the DQ2 and DQ8 genes respectively. There are a minority of people around here who had negative gene tests yet still have the disease. There are even more who had negative blood tests and a positive biopsy  or negative biopsy and a positive blood test... And then there are a BUNCH who have NCGI who have suffered terrible symptoms (same as a celiac's except the villi damage isn't there).

 

Is this something that should repair over time? 

 

Probably. Symptoms associated with the nervous system tend to take the longest to heal but not all damage is repairable. Think of gluten induced dementia, the patient can often stop the progression of the problem on a gluten-free diet but they usually won't get better.  :(  I think your age and how new these symptoms are will work in your favour and you will improve; it just may take another few months or a year to get there. One and a half month gluten-free really isn't very long. 

 

In the mean time, be on the look out for other problems. Could you have another food sensitivity? Milk intolerance or something else? A food and symptom journal can help you to see trends.... But I'm betting you just need more time gluten-free.

 

Could any of this be because of the sleep habits ? 

 

 

I would guess yes.  Though are some crazy hours you are keeping! LOL Are you a student? I'm trying to imagine what sort of work you would do with those hours... If you are very consistent with your sleep schedule it probably won't bother you as much but if you vary it a lot (go to bed at midnight one night and then 5am the next) it's going to mess you up.  Could you try for a less nocturnal schedule, and one that is very consistent? Those hours would have me day dreaming too. Heck, being a student had be daydreaming more than I do now... ready boring texts is a killer, especially if tired and not feeling your best because you are still healing.

 

Good luck and welcome to the boards.

joshy Newbie
joshy
Posted
  • Author

I will try to adjust my sleeping pattern wasnt really for any reason just was when id fall asleep, i did gym alot so took afew pre workouts which was a big energy buzz so itd keep you awake

JustCricket Newbie
JustCricket
Posted

I have had some similar symptoms. It was like migraine aura or something. I would turn my head, but the vision wouldn't really match what I was supposed to be looking at. Like the signal from the eyes took longer to get to the brain, than normal. 

 

I did have a headache at the time, as well. 

 

I get dizziness a lot. Less than I used to, but I think I'm still in the repair stages, too. Taking a multivitamin seems to have helped some. I also will eat grits to assist with iron, and I cook in cast iron. I get dizzy when I run, too. I hate that. I never go out without downing some water first, and I eat a light something or other before, too, so I know there has been something going on. 

 

I seem to have a low level of neuropathy in my toes, was dx'd with carpal tunnel, and have a wicked pain in my driving finger. lol. Oh, and I run into things. lol. 

 

Sleep has been important, but sometimes, I seem to sleep too much. As others have stated, I have slept for 14 hours, 2 days in a row. Then, there are times I can't sleep at all. Even when I've slept a lot, I'll get the dizziness, lack of coordination, etc, that is usually associated with fatigue. Right now, I have this weird tingle in my leg that seems different from the sciatica I've experienced since my oldest was born.

  • 1 month later...
Jonvon Newbie
Jonvon
Posted

Ill start the story from the start  maybe someone here might know more then some "doctors"  

 

 Im 23 male  start of the year i started doing alot of gym,  Id start at 7pm till 8 30pm  id end up sleeping around 3am - 5am an sleep thru till lunch time   anyways  one day i woke up and was constipated and my vision was weird  it felt like i wasnt here kinda like thru someone elses eyes   week being constipated then started having bad stomach pains an headaches then couple times after acouple pieces of toast my left arm started feeling really numb and weird  started going to the doctors on an off an none could work it out  had ct scans top an bottom, anti acid tablets  nothing worked,  after about 5 months of problems  finally looked up gluten symtoms  and most of mine was there,  so i started a gluten free diet within a week the headaches, stomach pains all went now still hanging out is the vision problems, concertation problems,  if i look at something for too long ill just start day dreaming.....

i have had the anti body test but already went gluten free before that,  then recently had the gene test which came back negative also,  Have been gluten free 7 weeks now

 

 

question is  could i have gluten ataxia? 

Is this something that should repair over time? 

Could any of this be because of the sleep habits ?

How are the vision problems now?

Thanks and happy new year

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