Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh While Pregnant, None (Maybe) After?


JustCricket

Recommended Posts

JustCricket Newbie

When I was pregnant with my son, I acquired a rash that left my shocked OB scratching her head. It stuck around for far longer than I would have wished. But once it went away, it never came back...I think. I also would get hives, but I'm not sure that was related.

It was AMAZING in its itchiness, redness, rawness, and the shear surface area of my body that it covered.

 

During my pregnancy, I also had a "sun burn" on my face. Now, this was not a true sunburn. It just came up, stuck around a few days, and left, even though I hadn't been in the sun.

I get urticaria, easily, but I doubt this would have anything to do with DH. It could just be a little overactivity in my immune system, but the hives usually go away rather quickly.

 

I have not been diagnosed, yet, but have had a favorable response to the gluten-free diet. 

 

I was wondering if anyone else has heard of this, or read of it. Since I was pregnant, I've had minor rashes, but I've not been able to connect them to food yet. I will keep investigating. I have noticed that I itch a lot, if I've had gluten. I also noticed that a fat bruise on my knee got SUPER itchy after a glutening. This seemed to be beyond the "healing itch."

 

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I had undiagnosed celiac for 30 years.  I do remember a mysterious rash, which appeared on my arms, in at least 2 pregnancies.  Hmm makes me wonder.

JustCricket Newbie

I had undiagnosed celiac for 30 years.  I do remember a mysterious rash, which appeared on my arms, in at least 2 pregnancies.  Hmm makes me wonder.

 

Thanks, Lady.

 

I thought it was interesting that I never had it before or since, that males get it more frequently and I was carrying a boy. lol. Sometimes, a cigar is just a cigar, though. ;)

squirmingitch Veteran

I don't know how accurate that info. is that males get it more often. Maybe it's just that females are more apt to come onto a site like this but since I've been on here; I'd have to say the females outnumber the males 100 to 1. I know the "medical" texts say that about males. The medical texts also say it occurs on the elbows & knees & so forth but ask anyone here with dh & we can tell you it occurs any old where it wants to; in fact my elbows & knees were the last place it showed up on. Same goes for my hubs.

I can't really answer your question as I have never been pregnant but it is known that dh seems to be spurred by pregnancy ~~~ the hormones bouncing around I suppose.

JustCricket Newbie

I don't know how accurate that info. is that males get it more often. Maybe it's just that females are more apt to come onto a site like this but since I've been on here; I'd have to say the females outnumber the males 100 to 1. I know the "medical" texts say that about males. The medical texts also say it occurs on the elbows & knees & so forth but ask anyone here with dh & we can tell you it occurs any old where it wants to; in fact my elbows & knees were the last place it showed up on. Same goes for my hubs.

I can't really answer your question as I have never been pregnant but it is known that dh seems to be spurred by pregnancy ~~~ the hormones bouncing around I suppose.

 

Maybe it's a close call, so that the general population experiences one thing, while the reports are showing something else. Maybe I should have used the word "slightly," as one of the articles I read did say that it was only a little more prevalent in men. It also said that it can occur anywhere on the body, but that those are the most common locations.

Both my daughter and my son have complained of stomach problems, and it could be that my son has celiac. Funny enough, he doesn't seem to have had any rashes like that, but my daughter had a rash in her armpits that hung around for a while and nothing helped. Finally, it just went away. I only hope that neither of them experiences what I did, and that I never do again. I would totally lose my mind. I tried everything I could think to protect it and get it to heal. It hurt to touch to put anything on it. At the behest of my ex's grandmother, I tried Gold Bond Medicated powder and that was the worst idea, ever!

squirmingitch Veteran

I'm not knocking what you said at all. It's just that so many docs take it as gospel that the rash is on knees & elbows & if you don't have it there then it's not dh. So many docs, both derms & GI docs, get it wrong or like the GI I went to, get it but don't get it. He was 95% sure I have dh but simply could NOT understand how I was presenting with horrid lesions after being gluten-free for 14 months. And he believes I have celiac disease from the GI symptoms I had so he gets it but then he didn't get it when he wanted to run the blood panel on me (after I'd been gluten-free for 14 months). And then I knew he really didn't get it when the blood panel wasn't a complete celiac panel. It was like batting a ping pong ball back & forth. I kept saying to myself, he gets it, he doesn't get it, he gets it , he doesn't get it like a darn see saw.

 

I sincerely hope the rash never appears on you again for I know the hell that it is. As to your son, not all celiacs get the rash.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...