Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh On Face?


Porcelina

Recommended Posts

Porcelina Contributor

Is that possible? I'm getting this crazy itchy, red and blotchy rash on my jawline and cheek area. Its starting to peel and just looks disgusting.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WestCoastGirl Apprentice

Yup.

 

I haven't officially been DXd with DH, but I'm 99% positive that's what it is. I've had it since childhood. It's maddening - both itchy and painful.

 

I often get it on my neck right up near the hairline in the back (that's where I always got it when I was a child and teen) but now I also get it on my face at times. Sometimes I get it on my back and once in a very blue moon, my upper arms.

nora-n Rookie

Hairline behind ears and in the back here.

 

By the way, Hidradenitis suppurativa is gluten-related too. But there probably has been no reseach verifying this.

MGR Apprentice

Hi again, I think DH mainly appears around the neck and scull area in the upper body, but I have seen photos of a lady in the celiac.com photo bank who had it in the face I think.... Especially during the second part of the challenge ( w 5- 9) I also constantly had herpes-like ulcers in and around my mouth.. Charming!! But I get something like DH on my upper back legs ... For years I though I was getting chicken pocks constantly...

nora-n Rookie

There are also some posting on DH forums who have i inside the mouth. Ouch.

mendylou Rookie

Yup.

 

I haven't officially been DXd with DH, but I'm 99% positive that's what it is. I've had it since childhood. It's maddening - both itchy and painful.

 

I often get it on my neck right up near the hairline in the back (that's where I always got it when I was a child and teen) but now I also get it on my face at times. Sometimes I get it on my back and once in a very blue moon, my upper arms.

It seems to me that my DH usually affects the same area over and over and everyone is different as to their most sensitive areas.  Mine does affect the hairline, around my lips, on chin; but my worst breakout areas are from elbows thru upper arms across my upper back and my buttocks and the backs of my upper legs. I recently visited my son and of course we ate out which I rarely do due to CC. Of course I was assured it was gluten free but you know that is never 100% true.  I am going thru a terrible breakout right now.  By the way I have been gluten free for 3 years and as time goes on the littlest bit of gluten causes a DH outbreak. For me It takes a long time to clear up.

WestCoastGirl Apprentice

It seems to me that my DH usually affects the same area over and over and everyone is different as to their most sensitive areas.  Mine does affect the hairline, around my lips, on chin; but my worst breakout areas are from elbows thru upper arms across my upper back and my buttocks and the backs of my upper legs. I recently visited my son and of course we ate out which I rarely do due to CC. Of course I was assured it was gluten free but you know that is never 100% true.  I am going thru a terrible breakout right now.  By the way I have been gluten free for 3 years and as time goes on the littlest bit of gluten causes a DH outbreak. For me It takes a long time to clear up.

 

For me, too. I've actually had DH lesions last a couple of months on occasion. Typically, though, they last about a week.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MGR Apprentice

There are also some posting on DH forums who have i inside the mouth. Ouch.

Thanks so much for pointing this out to me, I actually get them inside my mouth too, especially all over my front and middle palate... Extremely painful when eating...

squirmingitch Veteran

DH can present anywhere on the body. Just ask me. I've had it everywhere except mucus membranes. Bottom of my feet, hands, fingers, upper legs, lower legs, knees, elbows, neck, scalp, in my ears, in my belly button, on my nipples, collar bone, chest, breasts, stomach & pubic area, shoulders, any area of the back, any area of the arms, armpits, ankles, toes, upper feet & some on my face.

  • 4 years later...
EChip Newbie

I get DH on my face, always on my top lip- which makes it look like cold sores. I adhere to a very strict gluten free diet, but on the odd occasion I still get “glutened “ there are a few things I have found that help. Stomach enzymes DPP-IV help hugely if I think I may have eaten some gluten (at the time of eating, I take the enzymes). I’m currently having quite a bad outbreak that was actually triggered by some medication I took- I find sudacrem helps to dry out the blisters, I also try a cold compress to reduce swelling, then once healing I use hydrocortisone cream. Green concealer can help cover the redness & then dermablend concealer. 

Hope it helps!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

    3. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    4. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    5. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,958
    • Most Online (within 30 mins)
      7,748

    DLA
    Newest Member
    DLA
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
    • cristiana
      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.