Casein Antibodies

[FaithInScienceToo]

Gina - just don't forget that even if you can get casein under control there is still the issue of mimicry that i have mentioned - probably to the point of boredom.  The two proteins gluten and casein are virtually identical. The implication for celiac disease patients that the immune system would read these two as being the same the way it reads food protein and similarly structured body protein - i.e. cells - as being the same.  Read up on mimicry.  I will stay away from dairy. I don't have brain cells to spare.  Claire

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Hi, All -

Thanks, Claire for continuing to push these concerns -

I now plan to retest for antibodies to casein after about 6 months of both gluten-free/CF...

If they come back positive, I'm off casein forever...

If they are 'negative' at that point, though, I will then do a 4-day rotational intro of dairy WITH enzyme usage...If symptoms return, it's good-bye casein...

If symptoms do NOT return at that point, I will AGAIN retest for casein antibodies (via Enterolab's stool test) to make sure the antibodies didn't come back (even if I am symptomless)... If the antibodies are positive, 'good-bye casein'...

If they come back negative, I plan to continue to re-test a few times per year, to make sure of it. Plus, I still would keep to the 4-day rotational plan religiously 'forver.'

Obviously, I very much want to find out if those enzymes can allow me to have dairy occasionally...As far as I can tell....the enzymes are supposed to break it down so that it no longer mimics gluten...... that's my understanding of why 'enzyme therapy' can help people re-introduce foods (EXCEPT GLUTEN)...

If it works for me, I'll be happy to not have to worry about accidental casein-poisoning, too...Plus, it would make it easier to eat out if I don't need to eliminate 100%.

It'll be 'some time' before I have my answers...in the meantime...I have joined the ranks of the gluten-free/CF ...and am learning more inventive ways to cook ;-)

Gina

[Claire]

Hi, All -

If it works for me, I'll be happy to not have to worry about accidental casein-poisoning, too...Plus, it would make it easier to eat out if I don't need to eliminate 100%.

It'll be 'some time' before I have my answers...in the meantime...I have joined the ranks of the gluten-free/CF ...and am learning more inventive ways to cook ;-)

Gina

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Hi Gina,

Well you wait for your thing and I'll wait for mine. All the way to January for the NIH results. I suppose it will go quickly but it looks a long way out there right now. I don't see any way out of Gluten-free Casein-free for me regardless of diagnosis. I actually eat very healthy but I am fighting weight loss because all my healthy food is low calories.

I don't need to tell you to ' hang in there' - this woman is llike a dog with a bone! Claire

[FaithInScienceToo]

I don't need to tell you to ' hang in there'  -  this woman is llike a dog with a bone!    Claire

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LOL....Yep...that decribes us both to a t...a t-bone, that is ;-)

Love, Gina

[lindalee]

Gina,

Since you have a GI appt shortly, you might want to read up a bit on Leaky Gut Syndrone in case that might raise some questions you could ask. There are many LGS sites; this one is pretty typical in terms of viewpoint: Open Original Shared Link

The interesting thing re LGS for me is that it is a slightly different view of the causes of a lot of our symptoms and their treatment. If you have good insurance there is a rather simple test for LGS that only involves drinking a few oz's of a sweet tasting liquid and then providing a urine sample for analysis a few hours later. Supposedly it works pretty well. The test is sometimes referred to as the lactulose/mannitol test. I've never had it done, but it sounds like it could provide some interesting info.

George

Thank you for this info.

[Nancym]

Casein is very glue-y! I ordered some pure casein from a company that sells various protein powders and it was nasty stuff to work with.

I wonder if anyone gets intolerance to whey? That's the other protein in milk.

Gina, I would advise not trying to replace the dairy with something else, like soy. Soy is pretty tough for a lot of us too and it'd be yucky if all your hard work came to naught because of soy.