Still Trying To Find Out Why Wheat Is Making Me So Sick

[Mum in Norway]

I did a gluten callange this summer/fall in order to try and find out if I have celiac. All tests came back inconclusive, but I have been glutenfree since, and feeling like a new person.

It has been sugested to me that I might be allergic to wheat, as quite a few of my reactions are 'allergic reactions', and also I can not have wheat starch, that is glutenfree but made from wheat. My allergibloodtests are all clare, but I know for a fact that I have pollen allergy, so I don't have alot of fathe in that. My doc said he would set up an appointment with an allergy specialist, but I have not heard from him after that, so I will call him tomorrow.

 

But today somthing happend. I hade a chocolatbar that i was sure was glutenfree, but when i startet getting my typical gluten symptoms, I had a look and it was NOT glutenfree. Someone said to try zantac and zyrtec (together), and it seems it helped! That's i good thing, as my gluten symptoms usually last three days, but does this make it more likely that i have an allergy to wheat? I'm thinking maybe it does, but i know very little about this allergy stuff...

[shadowicewolf]

  On 12/5/2013 at 8:50 PM, Mum in Norway said:

I did a gluten callange this summer/fall in order to try and find out if I have celiac. All tests came back inconclusive, but I have been glutenfree since, and feeling like a new person.

It has been sugested to me that I might be allergic to wheat, as quite a few of my reactions are 'allergic reactions', and also I can not have wheat starch, that is glutenfree but made from wheat. My allergibloodtests are all clare, but I know for a fact that I have pollen allergy, so I don't have alot of fathe in that. My doc said he would set up an appointment with an allergy specialist, but I have not heard from him after that, so I will call him tomorrow.

 

But today somthing happend. I hade a chocolatbar that i was sure was glutenfree, but when i startet getting my typical gluten symptoms, I had a look and it was NOT glutenfree. Someone said to try zantac and zyrtec (together), and it seems it helped! That's i good thing, as my gluten symptoms usually last three days, but does this make it more likely that i have an allergy to wheat? I'm thinking maybe it does, but i know very little about this allergy stuff...

Have you considered NCGI?

[Mum in Norway]

I have, and that is absolutly a posibility. But the whole allergy thing scares me a little, as I know you can get severe reactions... So I would really want to know if I have an allergy or not, to know if this is something i need to worry about. I do offcours know that nobody here can tell me if I am allergic, but it would be nice to know what people think

[blueshift]

I have had two bowel obstruction surgeries - get off of wheat and treat it as poison.

[Mum in Norway]

I am absolutly gluten- and wheat free, and intend to stay that way even if I never get a diagnosis. Obviously it is poison for my body, I just would love to know WHY...!

[GFinDC]

Hi Mum,

 

If your symptoms went away when you took an anti-histamine (which you did), then it may mean your reaction was an allergy.  An allergy test should show that.  But, you can have both an allergy to wheat and have celiac disease, they are not mutually exclusive.

 

For some people (like me) my allergy type symptoms (hayfever) went away after going on the  gluten-free diet.  So personally I believe there can be an interaction between allergies and celiac disease reactions.  I think you really need the allergy testing to know if you have an allergy though.  Just be aware you can have both allergy and celiac.  Either way you would need to avoid wheat.  But with an allergy you may need to carry an epi-pen also.