Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can't Tell You What Is In This, But It Is Safe For You!


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

This is about Super sensitivity and not just to gluten;

 

The hygienist used this line on me once.  She felt she could use her regular tooth polish on me as she uses it on everyone else.  No need to read ingredients, she doesn't know what is in it, but it was safe.  I reacted. Next time, I used pomace powder only and had no reaction.

 

I have skin reactivity too, so I went over ingredients in ultra-sound gel.  They did know what was in it, but not where everything was derived.  I still need to look up FDA Blue #1.  Also the ingredient listed was tea.  I have a problem with black tea, but no indication what kind of tea it was!?

 

I asked about the adhesives in strips to hold EKG wires in place.  They were clueless to what they had in there.  A celiac told me that I should be okay, because she didn't react.  But when I asked if she reacted to contact she said "no".  They assured me that I would be okay since they have had no complaints.  Hmm

 

In the end, I think I am having screening tests regardless- hoping that a little more bloating and reaction won't be a big deal.  I am hoping that skin contact won't be too much of a problem for a one time deal

 

For all who have a problem with corn:  I saw information on the internet about all of the names for corn and its products.  They included Dextrose and Glucose which are in IV solutions.  I heard there is IV fluid without it, but am unsure of its name.

 

I can't understand the" it is safe for you attitude."  I especially wonder about me, when I jump on board thinking that it can't be too bad.

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

This is about Super sensitivity and not just to gluten;

 

The hygienist used this line on me once.  She felt she could use her regular tooth polish on me as she uses it on everyone else.  No need to read ingredients, she doesn't know what is in it, but it was safe.  I reacted. Next time, I used pomace powder only and had no reaction.

 

I have skin reactivity too, so I went over ingredients in ultra-sound gel.  They did know what was in it, but not where everything was derived.  I still need to look up FDA Blue #1.  Also the ingredient listed was tea.  I have a problem with black tea, but no indication what kind of tea it was!?

 

I asked about the adhesives in strips to hold EKG wires in place.  They were clueless to what they had in there.  A celiac told me that I should be okay, because she didn't react.  But when I asked if she reacted to contact she said "no".  They assured me that I would be okay since they have had no complaints.  Hmm

 

In the end, I think I am having screening tests regardless- hoping that a little more bloating and reaction won't be a big deal.  I am hoping that skin contact won't be too much of a problem for a one time deal

 

For all who have a problem with corn:  I saw information on the internet about all of the names for corn and its products.  They included Dextrose and Glucose which are in IV solutions.  I heard there is IV fluid without it, but am unsure of its name.

 

I can't understand the" it is safe for you attitude."  I especially wonder about me, when I jump on board thinking that it can't be too bad.

 

D

I can't help but wonder if these are minor allergies rather than intolerences or celiac due to the skin reactivity.

 

To be fair, not everyone knows what is in the items that are used, especially things like the adhesive strips. 

1desperateladysaved Proficient

Yes, it may be allergies, however, my IgE level is minimal which the MD says means that I am not an allergenic person.

dilettantesteph Collaborator

Life is difficult when you react to more things than the typical celiac.  You have to stick to what you know works for you.  You have to research ingredients before trying things.  You have to minimize risk as much as you can.  You have to not live in fear despite all that.  You have to try not to feel like you are crazy and overreacting.  When you get sick, you have to be patient until you feel better again.  You need to learn from the experience so that you don't repeat it.  It's not easy.  It is well worth the effort.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    3. - knitty kitty replied to pilber309's topic in Related Issues & Disorders
      11

      Burning Sensation in the small intestine

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,884
    • Most Online (within 30 mins)
      7,748

    Dexterlaundyatgmail.com
    Newest Member
    Dexterlaundyatgmail.com
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      You should be fine.  You may start feeling better within a few days.  Someone who is very low in thiamine may notice improvement within hours.   Did you get the NeuroMag  or another magnesium supplement?
    • xxnonamexx
      Yes Bobs redmill cgf oatmeal I started when I became gluten-free. So taking all 3 with breakfast should work? Will I notice any reactions getting used to these or should I be fine. Thanks
    • knitty kitty
      Hello, @pilber309, welcome to the forum! Are you currently consuming dairy?   You mentioned something about lots of yogurt and cheese, but did you cut it out or are you eating lots of it?   Could you clarify please? Some people with Celiac react to casein, the protein in dairy the same as to gluten with antibodies and villi damage. 
    • knitty kitty
      You may want to skip the oatmeal.  I believe you're trialing a gluten free diet while waiting for an appointment with your doctor in the new year and doing a gluten challenge then.  Some people with Celiac disease react to the protein in oats called avenin the same as to gluten.  Cross contamination between oats and gluten containing grains is possible.  Are you consuming certified gluten free oats?   I would hate for you to have a reaction to the oats and blame it on the vitamins. Yes, it will be fine to take them all together.  I take mine all together, B Complex, Benfotiamine and TTFD Thiamine with breakfast. If you're really anxious about it, just take the B Complex and Benfotiamine at breakfast and the Thiamax at lunch.  You won't have to take a second B Complex with the Thiamax.  
    • xxnonamexx
      So I purchased the Life Extension Benfotiamine with Thiamine along with the Thiamax. I will take along with my Super B Complexes. I stopped taking the multi vitamins. Should I take all 3 vitamins/supplements together with my morning oatmeal breakfast? Do you think I will experience any bad symptoms when taking them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.