Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seasoning Mixes - Learning It The Hard Way


Thickleg

Recommended Posts

Thickleg Rookie

Hi  Folks

 

I've been living gluten-free for 3 1/2 months now - so I thought. But for about five weeks now I felt very tired and I suffered from brainfog. Ok, I was ill with the flue and lay in bed for a week; that could be an explanation; but there was another symptom: My legs felt heavy and I had problems walking right after standing up from a chair. After walking some meters it gets better. This is not a symptom of the flue. I know that from gluten. And I had some small lesions in the skin that reminded me of DH.

 

I started thinking and examined everything I had eaten. Here is my result:

 

- I have bought a salad sauce that following the label contains no wheat. But it contains a "seasoning mix". I found the exact declaration of the ingredients of another salad sauce from the same house in the internet. The seasoning mix contains wheat. I have sent an e-mail to the producer to know the exact details of my favorite; but I guess I already know the answer.

 

- At an aperitiv three weeks ago I ate the only thing I could eat: roasted chicken. Yesterday I was at another aperitiv and before starting to eat the only thing I could eat (chicken) I asked the caterer if the seasoning mix on the chicken contains gluten. It does.

 

- I phoned my brother to be sure that the ice-cream I had at his house on christmas eve really was gluten-free. It was. But my brother investigated further. The seasoning mix he uses for the rice contains wheat.

 

I realise that even food I never-ever would think there's wheat in, contains wheat. I was at a restaurant and discussed my possibilities for a desert with the waitress. She recomended sorbet. I asked her to verify that it was really gluten-free as during the last few weeks I had become skeptical. Guess what the answer was. The sorbet contained gluten. I got a wonderful house-made cream. At the table we discussed why in the world sorbet should contain gluten. We found no answer, but I have to live with the fact! Of course there are brands of sorbet, that don't contain gluten and there are seasoning mixes, that contain no gluten, too. But one has to verify everything.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The good news is, they have to list wheat as an ingredient. It can't hide as " seasoning" or "spice". The bad news is, you have to read everything because they seem to use wheat as a cheap filler to make the taco seasoning, or whatever seasoning, seem fuller.

This is for the US, Canada and some other countries.

I would either not eat at these gathering or being my own snack.

Thickleg Rookie

Hi Kareng

In Switzerland they have to write the declaration too - at least the big companies. With the small local producers, who produce a limited amount, the law is not that strict. The salad sauce comes from a little family-owned creamery 15km away and is only sold in some nearby villages. That's the reason, why I bought it. Industrial salad-sauces have a terrible taste. But this family-made sauce ist just wonderful in taste! Like homemade... But as tasty as it is, I think it contains gluten. But let's see what they answer.

:-))))

gilligan Enthusiast

I feel exactly the same way as you do!  I thought I was being so careful, and I felt great about being gluten free for a few months.  Today I realized that Swanson Vegetable Broth is not gluten free like the chicken and beef broth.  I was making yet another healthy pot of soup and decided to scan the bar code while I was waiting for the soup to simmer.  BAM!  It's not gluten free!  That would explain why I've been so gassy lately.  It also means that the soups and stews I put in the freezer are not safe for me to eat.  I don't remember which ones had chicken vs. vegetable broth.  So disappointing in so many ways….   Lesson learned!  

NoGlutenCooties Contributor

Just a word of caution... not all Swanson chicken broth is gluten free either.

kareng Grand Master

I feel exactly the same way as you do!  I thought I was being so careful, and I felt great about being gluten free for a few months.  Today I realized that Swanson Vegetable Broth is not gluten free like the chicken and beef broth.  I was making yet another healthy pot of soup and decided to scan the bar code while I was waiting for the soup to simmer.  BAM!  It's not gluten free!  That would explain why I've been so gassy lately.  It also means that the soups and stews I put in the freezer are not safe for me to eat.  I don't remember which ones had chicken vs. vegetable broth.  So disappointing in so many ways….   Lesson learned!  

 

 

Just a word of caution... not all Swanson chicken broth is gluten free either.

 

 

The wheat will be labelled in the ingredients.  Stupid to put wheat in it..... but at least you can read the ingredients.  I like Kitchen Basics

 

Open Original Shared Link

Thickleg Rookie

Hi Kareng and Gilligan

 

Thank you for all your replies!

 

Gilligan and I are surely not the only ones who make the same beginner-mistakes... Gilligan: Looking forward to your post, that you fell better after not eating the contaminated broth anymore!

 

I got the anwer from the creamery: No gluten in my favorite Salad-Sauce. The "wheat" in the other sauce is a different Seasoning-Mix, that my favorit doesn't contain. And in the other sauce the wheat is clearly declared. So my life get's easyer and happier again with my favorite salad-sauce (but stilll without roasted-chicken at aperitivs and with another mix at my brothers!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MChase Apprentice

New to gluten free also.  I am scared of most things.  I make my own salad dressings.  I also make my own seasoning mixes by using gluten free single spices.   I do not ingest anything that I do not know is gluten free.  I've only been out to restaurants a couple of times since going gluten free and I question the servers like crazy.  Better safe than sorry.  

Thickleg Rookie

You are so right!

 

:-))))))))))

  • 4 months later...
rwilson65 Newbie

I sell spices and get lots of inquiries about gluten in our products. The answer is always no but in casual conversation with a lot of these people, they are not gluten intolerant, they just think it's trendy not to consume gluten. I wonder how many fit into this category? Actually they may unconsciously be helping those who truly have an intolerance or have Celiac by driving up demand for gluten free products. Interesting.......

NatureChick Rookie

I see that some people commenting about buying foods based on the ingredients lists and I'm half jealous that their reactions are so minor that they can't tell when there are minute amounts of gluten, but at the same time, concerned that they are telling people that foods are safe when they are not.

In my experience, the only processed items that are 100% safe are those that say gluten free on the label. That means that the manufacturer is not only paying attention to the ingredients but also to hidden sources that may come from premade ingredients bought from third-party suppliers, and cross contamination from equipment used to produce items that do contain gluten, or even items simply made in shared facilities. 

I have a jar of powdered garlic on my shelf right now that I'm certain contains gluten despite making no mention of any sort of anti-flaking ingredients on the label. No doubt, it was processed in a facility that was not dedicated gluten-free, powdered ingredients being almost impossible to control, even coming down from the air.

Nuts sometimes get me. Buying unsalted seems to help as does buying bulk, so again, powdered ingredients in shared facilities with shared machinery seems to be the problem.

For the first month that I was gluten free, I continued to eat my favorite spaghetti sauce, hoping it was safe. It wasn't. I even called the manufacturer, hoping, but all they could confirm was that it likely DID contain gluten.

It probably took me 4-5 containers of ice cream over 7-8 months before I gave up trying. One time everything would seem to be fine, another time not, so I'm guessing whether or not it was contaminated was related to what kind of ice cream was made on the machinery prior. I will eventually figure out how to make it from scratch at home, but until that happens, I'll just have to be satisfied with not feeling guilty about eating empty calories.

I'm not saying that there aren't plenty of foods out there that are safe, but just don't presume anything.

There are also plenty of products being sold as gluten free that I won't touch. Any baked product that didn't come out of a dedicated facility won't make it into my grocery cart and I have found that brands that make both gluten-free and gluten products are more likely to have issues with their gluten-free line. (I won't buy Amy's brand gluten-free pot pies or anything from the Whole Foods bakery.)

mzeppo3 Newbie

McCormick's brand spices are gluten free. I too had a bad reaction to spices and went through my cabinet and chucked anything questionable. It took a bit of money to replace everything, but now I can cook without having to think twice. 

 

Below is a link I read that got me to switch:

 

 

 

Open Original Shared Link

JodyM75 Apprentice

There were free samples of seasonings from Virtuous Living at our last Gluten Free group.  I haven't tried them yet but I'm looking forward to it.  They are certified:

 

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,874
    • Most Online (within 30 mins)
      7,748

    Jen J.
    Newest Member
    Jen J.
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.