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- Rebeccaj posted a topic in Dermatitis Herpetiformis0ointment .
Hey, has anyone got a really good brand name of hand ointment from hives eczema or just good relief of being gluttoned . -
- FayeBr replied to FayeBr's topic in Coping with Celiac Disease3Major Glutening
Thank you for your reassurance. It can sometimes feel very lonely with this disease and a constant battle. The product was Gaviscon Advance Aniseed which I was taking every day due to having gastritis from my gluten exposure. It states on the leaflet that it does not contain gluten. So I thought I was safe. But my symptoms were getting worse each day, causing... -
- Scott Adams replied to lehum's topic in Super Sensitive People14.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories
Thank you so much for sharing your story with such honesty and detail. Please know that you are not alone in this struggle, and your experience, while incredibly challenging, is more common than those "gluten-free miracle" stories on social media would have you believe. It's completely understandable to feel isolated, but your diligence in tracking your symptoms... -
- Scott Adams replied to MegRCxx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Diagnosed celiac for 1-2 months ago and everything makes me bloated.
When you are first diagnosed it is very normal to feel overwhelmed and depressed about the vast dietary changes that a 100% gluten-free diet entails. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need... -
- Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips1
bread
Thanks for sharing this! Bread machines are still the way to go if you want outstanding gluten-free breads.
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Hey, has anyone got a really good brand name of hand ointment from hives eczema or just good relief of being gluttoned . -
Thank you for your reassurance. It can sometimes feel very lonely with this disease and a constant battle. The product was Gaviscon Advance Aniseed which I was taking every day due to having gastritis from my gluten exposure. It states on the leaflet that it does not contain gluten. So I thought I was safe. But my symptoms were getting worse each day, causing me to take more gaviscon. I was in a spiral without knowing it. I knew that nothing else had changed for me other than the product. I emailed the company and was informed that although there were no gluten ingredients, they don’t test for gluten and can’t guarantee that it doesn’t contain gluten from the manufacturing process. I stopped it immediately, which was difficult as my gastritis was awful. My symptoms began to improve slightly as they do each day. Yesterday my reflux type symptoms were less too. But it is a slow road to recovery this time as I have said. I have been ill now for 2 months and 2 and a half weeks into recovery. I am in the UK and find it hard to understand how medication can hide ingredients nowadays, with all allergies and intolerances. I react to soy too like gluten and I ask my gp for meds that are soy and gluten free. They then say to ask the pharmacist. I ask the pharmacist who tells me that it is for me to read the ingredients on the information leaflet. Where do you go from there? Also I ask the gp for a prescription to pay and get compounded meds privately and they refuse. I don’t understand why the pharmaceutical industry are not made to list the top allergens and all ingredients simply and transparently. But thank you again for your advice. I feel like I have lost the last few months. Literally too with the brain fog and memory loss. You’re so right about the feeling of helplessness. Onwards and upwards!
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By Scott Adams · Posted
Thank you so much for sharing your story with such honesty and detail. Please know that you are not alone in this struggle, and your experience, while incredibly challenging, is more common than those "gluten-free miracle" stories on social media would have you believe. It's completely understandable to feel isolated, but your diligence in tracking your symptoms, following up with scopes, and working with professionals is truly commendable. It's encouraging that your villi have healed, which proves you are successfully avoiding the large-scale damage of gluten; however, it's clear your immune system remains in a heightened state of alert. Your intense reaction to the quinoa flakes is a classic sign of this hypersensitivity. Given the reputable brand, it's highly unlikely to be gluten cross-contact. It's much more probable that you are reacting to the quinoa itself—perhaps due to a separate intolerance, its saponin content (which can irritate some sensitive guts), or cross-reactivity, where your immune system mistakes similar protein structures for gluten. Your nutritionist's plan for a simplified, grain-free (except rice) baseline is an excellent strategy. The goal is to calm your nervous and immune systems down completely before slowly testing individual foods, like avocado or even quinoa in its whole form, to identify the true triggers. Remember, healing from years of damage takes time, and setbacks are part of the journey. Be kind to yourself; you are doing everything right by continuing to investigate and advocate for your health. Your path to feeling better may be more complex, but it is absolutely valid. -
By Scott Adams · Posted
When you are first diagnosed it is very normal to feel overwhelmed and depressed about the vast dietary changes that a 100% gluten-free diet entails. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. There are a couple of things that can help you feel like you have "regained control," and the two that I recommend are learning to read ingredient labels so that you can shop with confidence, and the other is learning to become a good cook (if you aren't already). If you can master these two, then you have regained control of your diet, and can eat safely and recover. To help this site has extensive recipes and cooking sections: https://www.celiac.com/celiac-disease/gluten-free-recipes/ https://www.celiac.com/celiac-disease/gluten-free-cooking/ The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat. -
By Scott Adams · Posted
Thanks for sharing this! Bread machines are still the way to go if you want outstanding gluten-free breads.
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