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Blood Blisters In Mouth?

melreis

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melreis Newbie
melreis
Posted

i "do not" have celiac according to doctors/(had endo/colonoscopy/ bw) so i assume i am ncgi.  i am currently gluten free again after taking a month off.  long story i didn't know what was going on with me and neither did my doctors after 4 months of gluten-free i finally got my period back that was mia for 3 years and stopped having D.  STUPIDLY thinking that i was cured i went back on gluten for about a month and ever so slowly things have gone to s$#& again.  literally.  during those 4 excruciating months i got blood blisters in my mouth.  sometimes they were fluid filled and sometimes just black spots on the insides of my cheeks like i'd bit them, even though i hadn't.  NONE of my drs could explain this to me and im wondering if anybody else has had this.  needless to say im gluten-free again.

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kareng Grand Master
kareng
Posted

Have you tried a sulfite free toothpaste? Helped my son with mouth sores.

cristiana Veteran
cristiana
Posted

Wondering if you have ulcers, too?  I had ulcers and what looked like blood blisters in my mouth prior to diagnosis with celiac and it felt like I was eating crushed glass at mealtimes.  Soooo painful.  I started drinking a fizzy vitamin drink which was v. rich in B12 and C vitamins and they went.   Do you know what your B12 levels are like... might be related?  Mind you, I also had low blood iron and I gather that can cause them too.  Just a thought. 

melreis Newbie
melreis
Posted
  • Author

Wondering if you have ulcers, too?  I had ulcers and what looked like blood blisters in my mouth prior to diagnosis with celiac and it felt like I was eating crushed glass at mealtimes.  Soooo painful.  I started drinking a fizzy vitamin drink which was v. rich in B12 and C vitamins and they went.   Do you know what your B12 levels are like... might be related?  Mind you, I also had low blood iron and I gather that can cause them too.  Just a thought. 

I had canker sore type things before the blisters.  They would go away after 3 days or so.  I couldn't eat even 2 cherry tomatoes without getting them.  Never had b12 checked but yes to low iron.  My feretin levels were still below normal despite a prescription iron supplement I'd been on for three months. 

MGR Apprentice
MGR
Posted

Usually, the first sign I have been glutened is that I get mouth sores, inside and outside.... The last time I got glutened my lip swelled up so much it looked like I had had Botox treatment!! Explosion of blisters afterwards- canker sores, blisters on my scull, forehead, legs, etc. not too many- Next day D which last for a few days... Nausea, Extremely painful joints, tired, SOO tired... Head spinning, can't make head nor tail out of what is going on...

TGK112 Contributor
TGK112
Posted

I was "asymptomatic" when diagnosed - but when reflecting back I realized that for about 6 months before diagnosis, I had blistering lips ( thought it was sun exposure) and frequent mouth sores. 

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    • AlwaysLearning
      Gluten related ??

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      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      Gluten related ??

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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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