Scientific Studies About Consequences Of Untreated Celiac

[ArPlasma]

Hello all,

I was wondering whether you might have some ref papers about the consequences of untreated Celiac( with data, description of samples, etc.).

My DH, awaiting for his biopsy results, is starting to doubt whether since he is 'asymptomatic'( according to him...), he should go on a strict gluten-free diet if he is diagnosed. His GI said, he would still recommend it, no matter outcome of biopsy, based on blood tests and family history( our DS, three of his aunts, uncle, 2 first cousins are officially diagnosed plus 2 siblings with IBS and other GI issues) but at the end of the day it will be DH's choice. If positive, obviously he( GI doctor) told DH that gluten-free is the only way to go.

Well, DH is not 'convinced' that strict gluten-free is the only option...if he was not my husband, I could let him figure it out for himself but I care.

So I am looking for a 'state of the art'/ review of studies kind of paper that he could go through. In particular the impact of going untreated on 'asymptomatic' Celiac sufferers, for which his hypothesis that having a minimal gluten intake( read a beer) every now and then is not going to significantly impact the outcomes( I.e. increase risk of other diseases).

Thanks for any help you can provide!

[kareng]

Hello all,

I was wondering whether you might have some ref papers about the consequences of untreated Celiac( with data, description of samples, etc.).

My DH, awaiting for his biopsy results, is starting to doubt whether since he is 'asymptomatic'( according to him...), he should go on a strict gluten-free diet if he is diagnosed. His GI said, he would still recommend it based on blood tests and family history( our DS, three of his aunts, uncle, 2 first cousins are officially diagnosed plus 2 siblings with IBS and other GI issues).

I am looking for a 'state of the art'/ review of studies kind of paper that he could go through. In particular the impact of going untreated on 'asymptomatic' Celiac sufferers, for which his hypothesis that having a minimal gluten intake( read a beer) every now and then is not going to significantly impact the outcomes( I.e. increase risk of other diseases).

Thanks for any help you can provide!

 

Can he understand those kind of papers?  Here is info from the doctors that do the research, summarized into an easy to understand format.  

 

 

 

Open Original Shared Link   under "lifetime commitment"

[ArPlasma]

Yes scientific papers are the way to this heart. Give him a sample description, control group, test duration, standard deviations, etc. and he will be happy( yes, evenings are fun in our household). I'm trying to find a summary of this, or may just end writing one myself if necessary.J/K( sort of?)

Thanks for the link, I have read it before but looking for some more detailed infos. I have read some other study papers on different subparts of untreated Celiac but a condensed paper with sources would work better. Thanks again!

[ArPlasma]

Something that might be of interest to others as well. A review of the different existing studies on complications of Celiac.

Open Original Shared Link

[GFinDC]

Hi Arplasma,

 

Here are a couple threads that might be interesting to you.  There are not scientific studies, but real life accounts of what happens to celiacs who cheat.  The 2nd link has  story from a woman who cheated on the diet and some pretty sever consequences.  Surgery to remove part of her intestines.

 

How bad is cheating?
https://www.celiac.com/forums/topic/94443-how-bad-is-cheating-on-the-gluten-free-diet-periodically/

Falling off the gluten-free wagon Post #37
https://www.celiac.com/forums/topic/67218-falling-off-the-gluten-free-wagon/?hl=%2Bfalling+%2Boff+%2Bthe+%2Bgluten-free+%2Bwagon
 

[ArPlasma]

Hi Arplasma,

 

Here are a couple threads that might be interesting to you.  There are not scientific studies, but real life accounts of what happens to celiacs who cheat.  The 2nd link has  story from a woman who cheated on the diet and some pretty sever consequences.  Surgery to remove part of her intestines.

 

How bad is cheating?

https://www.celiac.com/forums/topic/94443-how-bad-is-cheating-on-the-gluten-free-diet-periodically/

Falling off the gluten-free wagon Post #37

https://www.celiac.com/forums/topic/67218-falling-off-the-gluten-free-wagon/?hl=%2Bfalling+%2Boff+%2Bthe+%2Bgluten-free+%2Bwagon

Thanks GFinDC! Yikes! I have given my DH many anecdotical accounts as well as some studies. I passed him the links above, including the review paper I found yesterday, it is up to him at this point. His biopsy returned negative yesterday, again I think by now he knows the stats, talked to his GI( who thinks if not Celiac 'yet' it is highly probable to be soon)so I am hoping he comes to his own conclusions about the gluten-free diet. Our home is gluten-free at this point anyway.

Thanks again!

[nvsmom]

The complications listed in this paper are pretty basic but it's guidelines from the World Gastroenterology Organisation so it's pretty agreed upon. Open Original Shared Link

This has a bunch of info too. Open Original Shared Link. But some studies are showing tht celiac disease may protect us from some cancers, so don't give him this one if he is likely to only see the upside.