Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Gluten Free But Having Lots Of Allergic Reactions

T.H.

By T.H.
in Food Intolerance & Leaky Gut

Recommended Posts

T.H. Community Regular
T.H.
Posted

I just came across some information that I thought might be of interest in those who are gluten free but have a lot of symptoms and seem to react allergically to many OTHER foods.

 

There is a somewhat controversial condition known as Histamine Intolerance that is speculated to involve abnormally low levels of DAO, the enzyme that destroys histamine. If histamine levels rise due to this, then they can begin to cause allergic reactions like congestion, headaches, sneezing, itching, rashes, hives, even breathing issues, or stomach and gut problems.  

 

Some women can even experience a cessation of their allergy symptoms when pregnant, because the placenta releases high levels of DAO and so histamine breaks down faster. 

 

The reason this may be of interest to Celiacs or gluten intolerants is because one of the places DAO is found in the membranes of cells lining the small intestine, and in the upper portion of the colon. So people with damage in either of these areas may not be making as much DAO as they normally would. 

 

So if you are recently gluten free, haven't healed up yet, and are having many allergic reactions, it might be worth you while to check out histamine intolerance and a low histamine diet, too. :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Hi TH,

 

I posted a thread about this not too long ago and I linked to Jess' article as well, if you are interested!

 

 

https://www.celiac.com/forums/topic/105835-mast-cell-activation-syndrome-mcas/?hl=%2Bmast+%2Bcell

T.H. Community Regular
T.H.
Posted
  • Author

Oh, thank you for the link - I haven't seen that one before. :-)

IrishHeart Veteran
IrishHeart
Posted

Oh, thank you for the link - I haven't seen that one before. :-)

 

Looks like there are quite a few of us with this additional intolerance (and oh boy, right?!)  :rolleyes:

 

At least we know what it is, though--trying to figure out what else is at play is maddening, isn't it. 

 

Hope you are feeling better. If I stay away from the high histamines, I sure do. It's the overload that gets me every time.

T.H. Community Regular
T.H.
Posted
  • Author

Yeah, it does look like that - I wonder how common it will turn out to be whenever it is eventually researched, you know?

 

Very glad to hear that you are doing better. 

 

I'm hopeful for myself. I got a nasty virus and all my symptoms went a bit crazy, unfortunately. :-/  Even on a low histamine diet now, I'm getting things like allergic reactions to exercise, hives from the sunlight on my skin - seriously, what's up with that? 0.o But in some ways, that's kind of a good thing because my symptoms getting so weird and so much worse is what made me go back to my doctor one last time and finally get diagnosed by a new expert in town. And because of that, we got my daughter diagnosed, which makes it all totally worth it to find out something that's going on with her.

 

Do you find that you have histamine overload from normal histamine causing activities, like exercise or stress, or is it more the foods that mess with your histamine levels?

 

 

 

 

Looks like there are quite a few of us with this additional intolerance (and oh boy, right?!)  :rolleyes:

 

At least we know what it is, though--trying to figure out what else is at play is maddening, isn't it. 

 

Hope you are feeling better. If I stay away from the high histamines, I sure do. It's the overload that gets me every time.

IrishHeart Veteran
IrishHeart
Posted

Yeah, it does look like that - I wonder how common it will turn out to be whenever it is eventually researched, you know?

 

Very glad to hear that you are doing better. 

 

I'm hopeful for myself. I got a nasty virus and all my symptoms went a bit crazy, unfortunately. :-/  Even on a low histamine diet now, I'm getting things like allergic reactions to exercise, hives from the sunlight on my skin - seriously, what's up with that? 0.o But in some ways, that's kind of a good thing because my symptoms getting so weird and so much worse is what made me go back to my doctor one last time and finally get diagnosed by a new expert in town. And because of that, we got my daughter diagnosed, which makes it all totally worth it to find out something that's going on with her.

 

Do you find that you have histamine overload from normal histamine causing activities, like exercise or stress, or is it more the foods that mess with your histamine levels?

 

I do not get that reaction from exercise or sun (thank goodness as we have just moved to Florida and that would have been

a bummer )

but Gotta Ski Lisa does. Foods and food additives mess with me. My face and scalp become polka dotted with sores and 

my joints and bones hurts, heart palps, I get racy and suffer  insomnia. I  swell up and look and feel if I have been injected with helium

T.H. Community Regular
T.H.
Posted
  • Author

Ouch!  Sympathies. 

 

Although OMG - am I remembering right that you get headaches from perfume sometimes? Now it makes sense!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    2. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
    3. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    4. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    5. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.