Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Your Reaction To Being Glutened Always The Same?

bluewhitesky

Recommended Posts

bluewhitesky Rookie
bluewhitesky
Posted

My 6 year old son might have DH. I just wrote a novel about it here:

 

https://www.celiac.com/forums/topic/106990-possible-dh-6-year-old/

 

He has been gluten-free for 3 weeks and after about 10 days we noticed that his older lesions finally started healing and he even went a few days with no itching at all. We got a dermatologist appt much sooner than we expected (April 14 ) and we have decided to give him gluten again so the derm will see the rash as it truly is. We weren't sure how long it would take to flare up again. This is how it has gone so far:

 

Day one - out for dinner ate a hot dog with bun around 5:30pm, itching by 7:00, including itching on his irritated area that I iodined last week (see my original post...still feeling a little guilty for doing that to him). It hadn't itched at all since the initial day.

 

Day two - no gluten in am, afternoon extremely emotional crying at a birthday party because the game was "too hard", clingy and weepy for a good hour. Unlike him...but could have been the situation, who knows. Dinner, 2 pieces of bread, bedtime, itchy and scratching until his pj's were bloody :(

 

Day three (today) - 2 pieces of bread at brunch and no reaction. No itching, his body looks good, nothing angry looking. He says he forgot all about it today. Which is great of course, but I was surpised.

 

Could I be mistaken about the whole DH thing or is it normal for reaction times to vary?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Thankfully, I have not been glutened since going gluten-free so I can't tell you about reaction times.

I can tell you that dh can ebb & flow eating gluten or not eating gluten. The stuff has a mind of it's own! Before I went gluten free, in the "early" days of the rash, I didn't know I had dh & therefore was eating gluten every day. Some days I got what I now know to be dh, & some days I did not. I can say that if someone with dh continues to eat gluten, then one day the rash will present & go nuts, bonkers, insane! I can also tell  you that even if one is strict gluten-free, the rash can come & go at will. It will flare whenever it darn well feels like it & it ebbs whenever it darn well feels like it. And this is what is so vexing about dh. You're stuck between a rock & a hard spot & it will drive you mad. I will flat out bet though that before his appt. on the 15th, he will flare again.

dilettantesteph Collaborator
dilettantesteph
Posted

My reactions seem to be different depending of the amount of contamination I ingest.  With smaller amounts, it takes longer and the reactions are less severe.

bluewhitesky Rookie
bluewhitesky
Posted
  • Author

Well, the itch is definitely back in force tonight. And the stinky gas has made a return. And some wild mood swings and anger that we haven't really seen before. 

squirmingitch Veteran
squirmingitch
Posted

Sounds like you have your answer. Now you just have to get through it until the tests are done. Not an easy task for parents or your son.

 

(((((HUGS)))))

bluewhitesky Rookie
bluewhitesky
Posted
  • Author

Sounds like you have your answer. Now you just have to get through it until the tests are done. Not an easy task for parents or your son.

 

(((((HUGS)))))

Thanks for the hugs, squirmingitch. Yep, I'm feeling really crappy about glutening him but it's making it all quite clear now.

squirmingitch Veteran
squirmingitch
Posted

If it gets too, too bad then call the doc & ask to be seen right away. Perhaps the doc will dx on reaction as he's seen how your son is off gluten & now on gluten. Sometimes docs will dx that way when the gluten challenge makes the person so sick they deem it wise not to continue on the gluten. And there are quite a few people who never make it through the gluten challenge. Reactions to gluten being re-introduced after having been gluten-free even for a short time tend to be much worse than when the person had never stopped eating gluten. Once the body knows how things can be off gluten, the body then says Whoa!!!!! when given gluten again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748
    TDeb
    Newest Member
    TDeb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.