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hmporter5

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hmporter5 Newbie
I have hashimoto's and was confirmed celiac in January this year. Due to that I chose to  have my children tested as well. 
 
I just found out that 4 of my 5 children have celiac.
 
So now there are 5 of us with celiac. My 13 year old daughter and my husband are not. I think it is going to be easier to make it a gluten free kitchen and buy their food premade as that is cheaper. 
 
I would love tips and help on just about everything! LOL
 
Where do I go to take them to eat out that has kid friendly food? We don't eat out a lot, but once every few months we like to travel or go out. 
 
What about lunches that don't include gluten free bread? Any suggestions. 
 
Other issues:
17 dd - aspergers, celiac
15 dd - lupus, celliac
13 dd - nothing!
10 ds - adhd, celiac
6 ds - celliac
 
Thanks for any suggestions. I have been checking out the forums and have cereals figured out!
 

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mamaw Community Regular

Hello & welcome...

I guess  you can out   number  the gluten eaters in your  house  so  celiac  wins!!!!  You  don't  say  what  state  you are from   but  it  you would  mention  that it  would  help  in guiding  you to  friendly  restaurants & such....

There  is  a  learning  curve  when beginning  the  gluten-free  lifestyle.. I  don't  call  celiac a diet  because it is a  lifestyle  change.....

Have  you  read  about  getting  a new  toaster, changing  out  utensils, pots& pans  that  are  scratched  & have been used  for  wheat cooking? I  don't  want  to hash  it out  if  you are already  aware  of things like  that....

 

Plus  the  kids  who  are  school age  need to  eat  gluten-free  at  school too... Celiac  is  covered  under  a  section of  the  disability  act  which  means  the  school  has to provide  a  gluten-free  meal  for  a  celiac  student... We  never  trusted  cafeteria  workers  so  we  always  purchased  the gluten-free  food  ourselves  &  taught  them how to  prepare  it.. The  las  states  the  school  should  pay  but  we  never  cared  about  that  we just  want  the kids  to  eat  & be safe......

Clean out  your  kitchen  of  wheat  products   if  you are  going  gluten-free  100%......honestly once  you get  into  this  no one  will know the  difference.. gluten-free  foods  have  come  a long  way  &  many is  excellent...

For  your  elementary  kid , make  a  safe  box  of  gluten-free  goodies  for  his  /her  room. Make  cupcakes , cookies  & things  that  be  frozen  when  some one  has a  birthday party ... When  the  room has  parties   we  always  matched  what the other  wheat  kids  were  having so our  celiac  kid  never  felt  different  &  other kids  didn't  tease  or  bully them....

Some  good  snacks  are   gluten-free  pretzels,  gluten-free  trail  mix, popcorn,  snickers, corn  chips,  tootsie  rolls, M&M'S.... many more  choices

Find out  each  kids  favorite  food  items  & learn how  to make  them  or  purchase  so  they  will not  feel  like  they are  missing out  & decide  when  MOM  isn't  looking  cheat.....

Progesso  makes  many  varieties  of gluten-free  soup    become  a  label  reader........ with the new laws  in place  & more to come  many items  are  clearly  mark  as  gluten-free.......

All  meats,beef, chicken  , fish  are gluten-free  naturally just  don't  buy  any  with marinades, rubs,  coatings already  on  them....Same  with  fruits & veggies, in their  natural state they are gluten-free....

If  you know  of  foods  that  are  favorites  , list  them here  & we  can tell you how to prepare  them or  purchase....

Good BYE Gluten  , Udi's,  rudi"s  , canyon bakehouse,  whole  foods  are all  breads  that  are  good   just  to name  a few....

 

Dairy Queen, Red Robin, Chipotle 's, Five Guys,   Uno's Chicago Grill, Mitchell's  Fish House, PF Chang's , Wendy's,  Burger King, Chick-F-La , to name  a few   restaurants  but  there  are  hundreds  more....

hth  to get  you started.

Cara in Boston Enthusiast

In our house 2 have celiac and 2 do not.  I only cook gluten free (so my kitchen and all baking utensils are safe) but my older son and husband still eat gluten when they are out of the house.  The only "gluten" food we keep in the house is bread . . . in a separate bin and they have to make their sandwiches on a specific tray to catch all the crumbs.  Wait, they also have their own cereal too.  In specific plastic containers and they use red colored bowls when they eat it.  That way I know when I'm cleaning up or doing dishes that their bowl has gluten in it (so I use a different sponge)

 

We have 2 jars of peanut butter, 2 jars of jelly, etc. to keep ours crumb free.  I use colored sticky labels from Staples to mark which ones are gluten free.

 

Since I only cook gluten free, when we have pasta, we all have gluten free (we like Barilla).  

 

Other than that, our meals are usually naturally gluten free (grilled meat, roasted vegetables, rice, etc.)

 

We don't go out to eat much.  We have a few places local that are 100% gluten free.  We have tried a few chain-type places that claimed to have a gluten free menu but they didn't take enough precautions to prevent cross-contamination so it didn't really work out.  We have had great luck at California Pizza Kitchen.

 

Keep in mind that your non-celiac child should be tested every two years - even if you don't see any symptoms.

 

You might be surprised to find some of the Asperger's "habits" and even the ADHD are lessened after being gluten free.  That was our experience with my Asperger's child.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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