Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sound Like Gluten Sensitivity?


kshell

Recommended Posts

kshell Newbie

My curiosity continues to grow. I am a nurse, and we all know nurses have a tendency to over-research and self diagnose. However, from my early twenties until recently, I've noticed so many symptoms that point to gluten sensitivity. I always thought I was super sensitive to sodium, seeing as how I swell so easily after eating processed foods and how I swelled up so much during both of my pregnancies. I've also had a sensitive stomach for the majority of my life. I've noticed within the last few years that I am having more and more symptoms of gluten sensitivity (i.e. bloating, swelling of the body (thighs, face, hands, etc), increased anxiety after ingesting gluten, lethargy, irritability, depression, a very difficult time losing weight regardless of diet and moderate to intense exercise.) I had an EGD in January of this year, and my stomach biopsies were normal. Blood pressure is always 100/60ish, pulse in the 70s. Electrolytes within normal limits. I've attempted to eliminate gluten from my diet completely over the past month or so. Yesterday, I snuck a bite of my child's cheese quesadilla (on a flour tortilla), then quickly spit it out. I woke up this morning feeling extremely swollen, tired, lethargic, with general malaise. Do these symptoms sound like gluten sensitivity to you all? I would love to know for sure from folks who suffer from this and have the diagnosis. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Maybe you should continue to eat gluten and get tested for Celiac? I would think you would want to know if you have an autoimmune disease or not. Because Celiac is genetic, This would help your kids, too.

kshell Newbie

It is honestly to the point to where I am very cautious of ingesting any gluten at all. I am at work today and still feel terrible at 2:30pm, regardless of how much water I've been drinking to flush my body :(

Questore Rookie

Who will be hurt if you do not get tested?  Since auto immune is genetically linked, your family might need to know.  If my niece had not been formally diagnosed, I would not even be here, and already doing well...but there is no one I can hurt by not getting diagnosed, and no medical/insurance to be compromised by not having a diagnosis.  I value doctors, but they are not the God we should seek, regardless of how they might feel about themselves.  Doctors are not infalliable, and many here have suffered from their doctors not being willing to look at the whole picture.

 

You have to do the work anyways...it's all on you what you eat. It always has been.  The information wasn't public enough for many of us for too long. As a nurse, you know just how the system works.

 

If eating gluten makes you too ill to work, and you need to work to survive, you have already reached your decision, and do not need to blame yourself for not getting tested.  If you can get tested first, do!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.