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Road To Recovery, How To Heal?


user001

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user001 Contributor

I know the story is all too familiar for all of you, but I have to tell a little bit of my story here.

 

I am turning 30 in about a month, and i honestly feel like i have never lived.

I have been told Im crazy more times than I care to remember. I have come to terms with my upbringing, but still have gone to therapy, in an attempt to be less crazy.

I've taken medications that I swore I'd never take. All so I wouldn't be crazy anymore.

I have eaten mac n cheese to comfort me when im feeling sad and chicken noodle soup when I had a cold, but i still felt crappy and that cold always ended up lasting 2 months.

I have spent so much of my life being sick and fatigued, i feel like a new born kid these past 4 months gluten free.

I recently received my blood tests back, they were done after 3 1/2 months gluten free. Here are those results https://www.celiac.com/forums/topic/107942-help-me-de-code-these-results/

Many of my symptoms have decreased significantly in the past 4 months. I am still having some issues, but really working on perfecting this gluten free thing. I know i have to and it really feels much better.

 

What are the best foods to eat to heal ? I like to eat as many raw fruits and veggies as possible during the day. I feel like it makes me feel better, but is it hard to digest? I really just want to make sure I am doing things properly to heal as well as possible. I feel like little cuts and scrapes have been healing quicker than ever, im like super human! Does this go for my gut? How long does it take to heal?


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IrishHeart Veteran

I just posted on your other thread. Take a look :)

 

If you can tolerate raw fruits and veggies, eat them. There is no "prescription" or set diet except avoid gluten (and if you have a dairy problem, take that out for a few months and add it back in later. )

 

It takes anywhere from 6 months- years, depending on many factors: age, severity of the damage, how long you have been sick, how dietary compliant

someone is, etc. .

 

Don't think in terms of "when will I get there?"  because this is an exercise in patience. It is counter-productive to healing if you are stressing over things. 

 

Think this way : every day is a healing day.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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