Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Got My Diagnosis

Seeking2012

Recommended Posts

Seeking2012 Contributor
Seeking2012
Posted

Well, I got my bloodwork back about a week ago and yep, I'm celiac.

 

Immunoglobulin A: 137 mg/dL.
Reference: 91-414

Deamidated Gliadin Antibodies, IgA: 21 units
Reference:
0-19 = negative
20-30 = weak positive
>30 = Moderate to strong positive

t-Transglutaminase IgA: 28 U/mL
Reference:
0-3 = negative
4-10 = weak positive
>10 = positive

 

But I'm not new to the forums because my sister is Celiac and my parents are weak positives (the lab paperwork said tTG > 4 is weak positive). Mom and other sister are a 4 and dad is a 7 (and those numbers are from 2010; mom, dad and non-celiac sis are scheduled for another celiac test in 2015). So, here I am. I'm just now getting over the shock and denial...

 

I also got tested for thyroid function/antibodies...

TSH: 3.36 uIU/mL (some would say the reference range is outdated and that mine is a little high--what do you think?)
Reference: 0.45-4.5

Free T4: 1.49 ng/dL
Reference: 0.82-1.77

Free T3: 3.1 (this seems like a good number)
Reference: 2.0-4.4

Reverse T3: 33.7 ng/dL (what does this mean?)
Reference: 9.2-24.1

T4 (I'm guessing this is total): 10.7 ug/dL
Reference: 4.5-12.0

Thyroid Peroxidase TPO: 10 IU/mL
Reference: 0-34

Thyroglobulin Antibody: 177 IU/mL (yikes)
Reference: 0.0-0.9

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beth01 Enthusiast
beth01
Posted

Welcome to the Celiac club!

 

Are they doing other thyroid testing since it seems you have an underlying thyroid disorder? Thyroiditis seems to cause an elevated thyroglobulin test as can Grave's disease and Hashimoto's.

 

My doc usually wants me in the 1-2 range for my TSH but right now it's hovering around 5. Since I am not having symptoms of a hypo thyroid ( muscle cramps being the major one for me) we aren't going to adjust my meds right now since I can't keep weight on. I was diagnosed with Grave's in 2003.

 

Hope that helps. Thanks for posting your lab's reference ranges.  Sometimes trying to help without them is impossible lol, they vary so much from lab to lab based on their methodologies and instrumentation

Seeking2012 Contributor
Seeking2012
Posted
  • Author

Welcome to the Celiac club!

 

Are they doing other thyroid testing since it seems you have an underlying thyroid disorder? Thyroiditis seems to cause an elevated thyroglobulin test as can Grave's disease and Hashimoto's.

 

My doc usually wants me in the 1-2 range for my TSH but right now it's hovering around 5. Since I am not having symptoms of a hypo thyroid ( muscle cramps being the major one for me) we aren't going to adjust my meds right now since I can't keep weight on. I was diagnosed with Grave's in 2003.

 

Hope that helps. Thanks for posting your lab's reference ranges.  Sometimes trying to help without them is impossible lol, they vary so much from lab to lab based on their methodologies and instrumentation

 

Thanks.

 

What other thyroid testing is there to be done? On some other forum they mentioned an ultrasound but why do I need that? I'm sure it's extremely expensive. And I had a doctor friend review my test results; he said I don't have a thyroid problem because my TSH, T4 and T3 are all in range but I still do worry about my antibodies; that isn't healthy. I hope that going gluten-free will also bring my thyroid antibodies down.

 

I am not convinced that there's nothing we can do as people with autoimmune diseases. I read that Dr. Alessio Fasano believes that people lose the immunity to gluten and become celiac because of a change in the microbiome and I have read that there is belief out there in the medical world that probiotics (perhaps a few specific strains) can regulate zonulin/gut permeability and heal/ameliorate/cure Celiac. I wonder if anyone here knows more on this topic than I?

cyclinglady Grand Master
cyclinglady
Posted

Unless you have nodules or cancer runs in your family, you probably do not need an ultrasound. I have nodules, but they have not increased in size in 20 years. Your TS is probably just fine. I can function well at that level. To bring your thyroid antibodies down, you may consider taking a tiny dose of thyroid, but I would wait to see if they decrease after being on the gluten-free diet for six months to a year. Anything to bring down inflammation is bound to help!

BTW, my antibodies have been over 2,000 many times but have never come down below 1,000. That was all before my celiac disease diagnosis. Maybe in another year, I can ask to get them retested. In the meantime, my thyroid has been stable for the last six months! Yeah!

I will defer to those posters who are more thyroid savvy and my T3 and T4 ranges are always normal, so I have not researched (or retained that information!)

I was a weak positive, but showed a Marsh Stage IIIB on my biopsy. Anemia was my main symptom. I wish you a speedy recovery!

  • 1 month later...
BLM44 Newbie
BLM44
Posted

Hi!  I was just diagnosed with Celiac Disease...today (my biopsy results were just posted).  My celiac panel blood test results were in the hundreds, so my doc was confident that my biospy would be positive, too, and it was.

But I was diagnosed with Hashimotos Thyroidits (autoimmune hypothyroidism) in 2002.

Your antibody numbers would seem to suggest that you have an autoimmune disorder.  You would need your doctor to tell you exactly what that means. I don't know (remember) if that means Hashimotos or Graves, or if a specific antibody test needs to be done for those.   

Your TSH is within normal limits.  From everything I've read and learned, women feel better when their TSH is between 1-2, but if you are within normal limits, your doctor may not prescribe you anything at this time.  If you do have an autoimmune disorder (Hashimotos or Graves), you would need to get your TSH and Free T3 / T4 tested every 3-6 months to monitor.  But I would definitely get your doctor to explain in greater detail about the antibody test. 

millerb68 Newbie
millerb68
Posted

In my recent testing which brought a celiac diagnosis, my thyroid levels all tested normal, also, but my doctor diagnosed me with subclinical hypothyroid (Open Original Shared Link Open Original Shared Link I had never heard of it before, and my previous doctor never mentioned it. She has me taking T4/T3. If you are concerned, I would do some research and present it to your doc. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.